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Will my villi ever heal?

Pat B

By Pat B
in Dermatitis Herpetiformis

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Pat B Newbie
Pat B
Posted

I was diagnosed with DH in 2015 - had a positive punch biopsy of lesion on knee.  I have been gluten-free (and have not cheated) since then but a recent endoscopy showed that I still have mild villous blunting/atrophy and increased intraepithelial lymphocytes.  Everything I've read says that the villi should return to normal 6 mo- 2 years after starting gluten-free diet.  Has anyone else had this issue and what does it mean? Thank you! 

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Jpate Apprentice
Jpate
Posted
16 hours ago, Pat B said:

I was diagnosed with DH in 2015 - had a positive punch biopsy of lesion on knee.  I have been gluten-free (and have not cheated) since then but a recent endoscopy showed that I still have mild villous blunting/atrophy and increased intraepithelial lymphocytes.  Everything I've read says that the villi should return to normal 6 mo- 2 years after starting gluten-free diet.  Has anyone else had this issue and what does it mean? Thank you! 

Hi I have RCD2 and villous atrophy have been like it for about 5 years now. I don't worry about it anymore just accepted that I have got it. 

The main issue in life is be positive, and get on with your life and be safe

 

  • 2 weeks later...
Misslee Apprentice
Misslee
Posted
On 11/12/2020 at 1:46 PM, Jpate said:

Hi I have RCD2 and villous atrophy have been like it for about 5 years now. I don't worry about it anymore just accepted that I have got it. 

The main issue in life is be positive, and get on with your life and be safe

 

Don't you have malabsorbation of food tho? isn't that dangerous?

Jpate Apprentice
Jpate
Posted

At the moment I have lost about 3 kilo in the past 9 months and the amount of food I eat which is a lot. I weigh under 9st however I have been very thin all of my life. I am not absorbing a lot of nutrients from my food. It seems what ever I eat comes out the other end. 

I have been seeing a Professor for the last 7years every 3 months and I have had enough. So I don't think I will be going back anymore and I'm going to finish seeing him. 

 

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