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Excessive Bloating 14 months Later


mikemcm22

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mikemcm22 Explorer

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing. 


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DJFL77I Experienced

probably the SIBO..  it causes bloating..  did you antibiotics?

hydrogen-predominant SIBO: The primary treatment is the antibiotic rifaximin. methane-predominant SIBO: This type of SIBO is harder to treat, and it may take longer to respond to treatment. We use rifaximin plus neomycin for these cases.

 

 

Try eating nothing but fresh meat, fish, salt, and water for a while and see... nothing else

Scott Adams Grand Master

Is it possible that you are getting too much fiber? This can cause bloating. Cutting out sugar is very important when dealing with SIBO. Cutting carbs and going more paleo is a good idea, and be sure your diet is 100% gluten-free.

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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
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    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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