Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Bloating 14 months Later


mikemcm22

Recommended Posts

mikemcm22 Explorer

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced

probably the SIBO..  it causes bloating..  did you antibiotics?

hydrogen-predominant SIBO: The primary treatment is the antibiotic rifaximin. methane-predominant SIBO: This type of SIBO is harder to treat, and it may take longer to respond to treatment. We use rifaximin plus neomycin for these cases.

 

 

Try eating nothing but fresh meat, fish, salt, and water for a while and see... nothing else

Scott Adams Grand Master

Is it possible that you are getting too much fiber? This can cause bloating. Cutting out sugar is very important when dealing with SIBO. Cutting carbs and going more paleo is a good idea, and be sure your diet is 100% gluten-free.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,335
    • Most Online (within 30 mins)
      7,748

    JudeMaui
    Newest Member
    JudeMaui
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
×
×
  • Create New...