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Excessive Bloating 14 months Later

mikemcm22
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mikemcm22 Explorer
mikemcm22
Posted

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing. 

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DJFL77I Experienced
DJFL77I
Posted

probably the SIBO..  it causes bloating..  did you antibiotics?

hydrogen-predominant SIBO: The primary treatment is the antibiotic rifaximin. methane-predominant SIBO: This type of SIBO is harder to treat, and it may take longer to respond to treatment. We use rifaximin plus neomycin for these cases.

 

 

Try eating nothing but fresh meat, fish, salt, and water for a while and see... nothing else

Scott Adams Grand Master
Scott Adams
Posted

Is it possible that you are getting too much fiber? This can cause bloating. Cutting out sugar is very important when dealing with SIBO. Cutting carbs and going more paleo is a good idea, and be sure your diet is 100% gluten-free.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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    • Wheatwacked
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      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
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      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
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