Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Bloating 14 months Later


mikemcm22

Recommended Posts

mikemcm22 Explorer

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced

probably the SIBO..  it causes bloating..  did you antibiotics?

hydrogen-predominant SIBO: The primary treatment is the antibiotic rifaximin. methane-predominant SIBO: This type of SIBO is harder to treat, and it may take longer to respond to treatment. We use rifaximin plus neomycin for these cases.

 

 

Try eating nothing but fresh meat, fish, salt, and water for a while and see... nothing else

Scott Adams Grand Master

Is it possible that you are getting too much fiber? This can cause bloating. Cutting out sugar is very important when dealing with SIBO. Cutting carbs and going more paleo is a good idea, and be sure your diet is 100% gluten-free.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Shellly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      New labs are now very elevated

    2. - Scott Adams replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    3. - trents replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    4. - Russ H replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    5. - Elena1234 posted a topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,167
    • Most Online (within 30 mins)
      7,748

    Lindyloo590
    Newest Member
    Lindyloo590
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shellly
      Hello, I was very stick,  with flu like symptoms, but my virus panel came back negative and we couldn’t figure out what’s going on. The doctor then added a celiac panel.  Has anyone ever had such a dramatic change?  What are the odds this is true celiac I am going to have an endoscopy, but it’s expensive and I just feel like why can’t the labs be enough? 
    • Scott Adams
      Eating out in general is full of risks, but this article may help:  
    • trents
      This kind of question is always difficult to give a definitive answer to because of so many variables. One such variable is the sensitivity of the individual celiac to small amounts of gluten cross contamination. An amount that causes a reaction in one celiac many not in another, or at least not be discernable which, of course, does not exactly equate to being "safe".
    • Russ H
      I don't live in the US, but based on this thread, I wouldn't risk it:   https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/   This app is helpful: https://www.findmeglutenfree.com/
    • Elena1234
      I see that Cracker Barrel restaurants have a gluten free menu (not all locations, but one confirmed that they do). I was wondering if it is safe for my 5 year old son with celiac disease? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.