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Excessive Bloating 14 months Later


mikemcm22

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mikemcm22 Explorer

Hello all, 

So I've been 110% gluten free for a full year (some mistakes first two months) and not much has changed for me. I just has another endoscopy which confirmed that I am basically fully healed... but I still have the same symptoms as a year ago. These are mostly bloating, fatigue, and brain fog. I also have really crackly joints and excessive sports injuries (went from college runner to barely exercising as I'll end up making my injuries worse). The bloating is way worse when I eat too many carbohydrates, that usually ranges from mild to extreme. Some days I have to go lay down. Everything seems to be getting worse lately and I see no help coming from my current doctors. I also have this numb pain/rock feeling/tingling in the lower left part of my abdomen that comes and goes. I am positive it is not gluten exposure. 

I am a 26 yo male. I should note that I had a positive breathe test two years ago but all Small intestinal bacterial overgrowth (SIBO) treatments have not worked. Candida treatment did not work. FODMAP diet showed I am sensitive to fructose and I generally can't handlea carbohydrates very well. (can't eat most fruits). I am finishing up the Autoimmune protocol diet (AIP) where I've discovered a handful of foods to avoid but they don't affect the bloating. I've done everything by the book and more. The only thing I have going for me is that my gastro. said that you should have seen something over the past year and acknowledges I definitely have another issue. 

Anyone know why I have this extreme bloating? It has made the last year of my life almost impossible and I just barely get by most days even though I am "healed" in terms of testing. 


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DJFL77I Experienced

probably the SIBO..  it causes bloating..  did you antibiotics?

hydrogen-predominant SIBO: The primary treatment is the antibiotic rifaximin. methane-predominant SIBO: This type of SIBO is harder to treat, and it may take longer to respond to treatment. We use rifaximin plus neomycin for these cases.

 

 

Try eating nothing but fresh meat, fish, salt, and water for a while and see... nothing else

Scott Adams Grand Master

Is it possible that you are getting too much fiber? This can cause bloating. Cutting out sugar is very important when dealing with SIBO. Cutting carbs and going more paleo is a good idea, and be sure your diet is 100% gluten-free.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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