Frustrated With celiac disease!

[l-lyn01]

I have been diagnosed with celiac disease for almost two years now, I share the same frustration that many ppl with celiac disease have. Eating out, parties, conflicts with family meals and such; but it seems to get become almost boring trying to explain myself every time I go eat something. Yes, it is gluten-free, no I did not eat any chips and so on... I understand some ppl that I am close to have concerns, but it becomes very tiring. I was just wondering has anyone ever felt the need to just giving up? I am to the point where I do not care anymore. It is my body, my health, not theirs... Then again that almost sounds mean... Right?

[nettiebeads]

I have been diagnosed with celiac disease for almost two years now, I share the same frustration that many ppl with celiac disease have. Eating out, parties, conflicts with family meals and such; but it seems to get become almost boring trying to explain myself every time I go eat something. Yes, it is gluten-free, no I did not eat any chips and so on... I understand some ppl that I am close to have concerns, but it becomes very tiring. I was just wondering has anyone ever felt the need to just giving up? I am to the point where I do not care anymore. It is my body, my health, not theirs... Then again that almost sounds mean... Right?

oh yeah. Been there many times - so tired of watching, worrying, cross-contaminated... I was at a seriously low point when I found this forum. It's been helpful, especially knowing that there are so many others in the same situation. Keep at it - you are not alone!

Annette

[IronedOut]

After I was diagnosed, my MIL worried herself sick about CC every time we came over. Finally, we agreed that I would just bring my own stuff and have a clean cabinet in her pantry. Now when we are there, she constantly asks me if I got what I'm eating out of the 'special place'. Well, duh! I know she means well but it's getting old.

[bluejeangirl]

I have been diagnosed with celiac disease for almost two years now, I share the same frustration that many ppl with celiac disease have. Eating out, parties, conflicts with family meals and such; but it seems to get become almost boring trying to explain myself every time I go eat something. Yes, it is gluten-free, no I did not eat any chips and so on... I understand some ppl that I am close to have concerns, but it becomes very tiring. I was just wondering has anyone ever felt the need to just giving up? I am to the point where I do not care anymore. It is my body, my health, not theirs... Then again that almost sounds mean... Right?

I can only give you perspective as the parent. We just want to connect with our teenagers and forget we're asking the same questions all the time. I can see how that can be annoying reading your post. Maybe you have to explain that to them. When I would ask my son to many questions about something he would just look at me and take a breath and not give me the answer. I knew to back off. Sounds like your not wanting to give up because of the diet but because of all the explaining.....its not worth it, I would just let people know your sick of the scrutininy and would like a better subject.

[gfmelissa]

I feel the same way too sometimes. I won't give the diet up but it is frustrating dealing with people. I find it frustrating that its one extreme to another, someone who has to know every detail of what you ate and whats wrong with you to the person who doesn't care at all and just wants you to eat their food they swear is gluten free with out understanding even what gluten is, and they don't want you to ask any questions about the ingrediants. I am in my mid twenties and my mother does both. Sometimes she is all over what I have eaten, and sometimes, she messes up when she is cooking and makes me feel guilty that i should eat it anyway to make her feel better. And i think for me, whats more frustrating is being diagnosed almost 3 years ago sticking to the diet really well and feeling great for about a year, then being diagnosed with another autoimmune disease. It feels like what was the point of sticking to the disease if you get sick with something completely different?

However, I guess the answer is to just focus on healing and find other avenues of life more satisfying than food when possible. i recommend yoga. : )

M

[tarnalberry]

When you get really tired of explaining, don't. (I can see having to explain to your parents, but that's about it.) Other than that, it's a "I know how to handle the diet, but it gets tiring having to be reminded of it by everyone all the time, so just let me do what I need to do" thing.

[Lollie]

My husband is on top of my diet all the time. If I go to eat something he doesn't know what it is, he'll ask if its gluten-free. Sometimes I want to just throw the food on him, but deep inside I know he does it because he cares for me and has seen how sick I can get. I bet those in your life are trying to be helpful and only care for your health. Don't give up, not on the diet and not on the people who care for you!

Good luck!

Lollie