Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How will accidental glutening impact healing and long term health?


Kyleweber

Recommended Posts

Kyleweber Rookie

Hi everyone,

I have been eating gluten free for about a month since being diagnosed with celiac. Despite being vigilant in reading labels, researching brands, and not taking any risks (no eating out or eating anything prepared by anyone but me), I've felt the symptoms of being glutened a few times now.

I have a lot of questions around how much contamination and gluten it takes to negate a gluten free diet. If I get contaminated once a month will my small intestine still heal? Or is that enough to undo any healing? How much impact will accidental glutening have on my long term health? Can I afford to trust gluten free food at a restaurant when there's a teenager in the kitchen focused more on flirting with the hostess than they are about gluten contamination?

Please don't confuse this with me saying I want to have cheat days or be lax in my gluten-free eating. Right now I have no sense of what constitutes a risk and whether or not it's worth taking. When I feel a symptom I can't help but feel like I'm taking years off my life.

I appreciate any insight you have. Thanks!



 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Kyle,

I don't think you'll lose years of life by slip ups here and there.  The problem with frequent slip ups is the immune system never gets a chance to completely settle down and stop making antibodies against gluten.   Personally i wouldn't trust most restaurants for the first 6 months.  It is much safer to trust your own cooking, and generally cheaper.

Link to comment
Share on other sites
Kyleweber Rookie
2 hours ago, GFinDC said:

Hi Kyle,

I don't think you'll lose years of life by slip ups here and there.  The problem with frequent slip ups is the immune system never gets a chance to completely settle down and stop making antibodies against gluten.   Personally i wouldn't trust most restaurants for the first 6 months.  It is much safer to trust your own cooking, and generally cheaper.

Thanks for the advice and response! 

Link to comment
Share on other sites
Scott Adams Grand Master

If you can't avoid eating out, consider GliadinX (a sponsor here), or another AN-PEP based enzyme. This may help mitigate small amounts of cross-contamination that can happen in restaurants.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,209
    • Most Online (within 30 mins)
      7,748

    Yankavich
    Newest Member
    Yankavich
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...