Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Ma?


gfmelissa

Recommended Posts

lifeasart Newbie

Here's a shout out from a Bostonian Celiac.

I'm hoping to open a T-accessible, gluten-free/specialty bakery & store this year in the Boston area. (Davis Square seems like a good target.) I'm in the process (with another Celiac baking enthusiast, and various contacts) of collecting research and finding investors.

For the sake of this research and money-raising:

1) How many of you would visit such an establishment?

2) How frequently?

3) How far would you be willing to drive?

4) Suggestions?

Thank you!!

This will be a very exciting and rewarding business venture. Convincing folks that it's a real need in the community hasn't been difficult so far, but receiving your responses will be very helpful.

I love Whole Foods, but sometimes I just dream of sinking my teeth into a freshly baked, oozing chocolate chip cookie in an environment where I know that I anything I pick out will be safe! Even my gluten-guzzling pals have expressed interest in hanging out at a place like the one I'm concocting.

Email me at glutenfreeboston@yahoo.com. I can't wait to hear from you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cmzirkelbach Newbie

This is the website of a good support group in MA, they typically have quarterly meeting at Mass Bay CC in Wellesley Hills. They always invite vendors who sell or sample new products. People come from as far as

Worcester, MA.

Open Original Shared Link

francelajoie Explorer

Are you going in October?

I'm definatly interested. Hope I don't forget.

ebrbetty Rising Star
This is the website of a good support group in MA, they typically have quarterly meeting at Mass Bay CC in Wellesley Hills. They always invite vendors who sell or sample new products. People come from as far as

Worcester, MA.

Open Original Shared Link

thanks for the link, wellesley is not far for me, I grew up in Needham and live in Franklin now.

theres a great little store in Needham, called New Leaf, they have some wonderful products, many you can only get online.

Open Original Shared Link

BTW, how do I go about going to a meeting? can anyone go, do I need to sign up and pay a fee? I just looked at the site, it seems there are 2 meetings that day, which is the one you all would go to?

thanks Betty

cmzirkelbach Newbie

If you check on www.healthyvilli.com, on the right, click on Not a Member? Join today! There is a $25 membership fee per year.

It is a really big group of people and very informative. They have had Lee Tobin from Whole Foods Gluten Free Bakery and Beth Hilson from Gluten Free Pantry in the past.

ebrbetty Rising Star

thank you, once I'm a member is there anything else I need to do to go to the meeting? do you go to both on the same day?

cmzirkelbach Newbie

If I remember correctly, they email members annoucements about the meetings and ask that people register so they can gage how many food samples/coffee&tea/information packets.

They hold three meetings a year, January, April and October and the new member meetings precede the general meeting, so you do not have to make the drive twice.

They are having a new member meeting on October 22, starting at noon, then the general meeting follows for all members.

The phone number is 617-262-5422. You can also email members@healthyvilli.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ebrbetty Rising Star

thank you very much for the help, i'm very shy and a little scared to go :blink:

cmzirkelbach Newbie

I understand. Start with an email to the members@healthyvilli.com first. The people I have met there who run the group are very friendly and eager to share information. Plus, if you go to the new members meeting, you will not be the only new person there. Feeling like everyone knows everyone else and you are the only new person can be very disconcerting. (It happened to my husband at a PTA meeting a couple of weeks ago, and my husband is not shy at all).

The nice thing about a celiac support group is you walk into a room full of people who 'get it' and you instantly have something to talk about with anyone that is there.

So, you will not be the only new person at the meeting, and will have something in common with everyone that attends the meeting, and you should be able to sample all the food offered.

They had one caterer that made these awesome chocolate covered peanut butter balls and another that made amazing lemon squares to sample.

ebrbetty Rising Star

thanks for the help, I'm really interested in going, my hubby wants to go too, he keeps up with everything involving my health, having him with me will make my first visit a little less painful lol

happy 4th..have a good weekend :D

  • 2 weeks later...
lpasko2 Newbie
Hi Melissa,

I'm North-West of Boston...where exactly are you moving? I have lots of suggestions for stores around here.

there is a bread and circus in hadley right near northampton try mapquest to find the exact exit

  • 1 month later...
cowrdlyon Rookie
I am moving in a few weeks outside of cummington/northampton I think. ( I have found a job but not yet gone to get an apartment!) I have family south of boston, so I will probably be through there a lot. I would love to know places to shop, I am so used to being 2 minutes from whole foods that I am a bit nervous! Are there any active support groups in MA?

m

Hey Melissa,

I live in Holyoke Mass which is only 20minutes south of Northampton. My wife and I are up there all the time. There are several stores within a 15minute drive from Northampton that you can get decent food at. There are Whole Foods, Trader Joes, Cornacopia at Thornes Marketplace right in downtown Noho and the Stop & Shop in Noho has some stuff. Welcome to Ma!

cowrdlyon Rookie
Hi I live in Holyoke and go to school in Northampton. There's plenty of gluten free stuff around here. Lots of restaurants are pretty informed about celiac and gluten free. There is a natural food store called cornucopia right in downtown Noho but it's sort of pricey but there's Whole foods and trader joe's real close in Amherst. Let me know what other questions you have and what I can do to help!

I live in Holyoke also. I was just diagnosed about 3 weeks ago. I didn't think there was as many of us as there are in Western Ma let alone Holyoke! Have a great day!

  • 4 weeks later...
ironic Newbie

I'm from just north of Boston. I found out I had it in 2004.. but we got some mixed results and thought I didn't. Come to find out (just a few hours ago) I do.

I heard The Outback has its own Gluten Free menu, so I'm excited to go there.

How many of you belong to support groups and how often do they meet? Because none of my friends "get it". I was on the diet in 04, and they basically found it funny.. and couldn't comprehend that this was my diet *forever*. They were constantly asking how much longer I'd have to eat like that, and trying to get me to "just have one bite" of something *really* good. When the endoscopy came back neg. I was still almost 100% sure I had it, but I was so relieved to be off the diet I pretended that I didn't. Now I just want to feel better.

kathy1 Contributor

The Christmas Tree Shop at the Holyoke Mall carries a variety of gluten-free products at bargain prices. For example- Blue Diamond Smokehouse almond nut thins are 2.89 at Wild oats and other such local health food stores, but everytime I go to the Christmas Tree Shops they sell the same thing for $1 a box. I usually buy 10 boxes at a time since its 1 and 1/2 hour drive for me to get there.They also carry alot of Thai items real cheap too. with so much of the gluten-free foods costing alot more money, I will stock up whenever I can!

ironic Newbie

What about the one heading into Boston. With the big restuarante shaped like a ship next to it? By, umm, Bobs and Jimmys (resturante)

  • 3 weeks later...
Kristen2Denise Apprentice
I live in Holyoke also. I was just diagnosed about 3 weeks ago. I didn't think there was as many of us as there are in Western Ma let alone Holyoke! Have a great day!

Cowrdlyon....do you know about Blue Moon Grocery in Easthampton??? I went there yesterday and got Bard's Tale Beer- which I don't like so it was sad, but I got this individually sized carrot cake which was unbelieveable...seriously amazing I could rave for days. They have a good amount of gluten free stuff..email me if you want more info! Take care..K

  • 1 year later...
Rykus0 Newbie

If you haven't already, you should check out Butternuts restaurant. I think it's in Hadley... My Fiancee is a celiac, and we both LOVE their food! The chef is great and really knows how to prepare gluten-free food the right way. We're even going to have our wedding reception there!

Other than that, we live in Southwick, currently, and my bride to be has been honing her baking skills and is hoping to possibly start a business providing gluten-free baked goods. If anyone is interested, let me know!

Rykus0 Newbie

Oh, also there's a Whole Foods near there that has an excellent selection

sallyterpsichore Explorer

I live in Boston and haven't had any problems. I rarely eat out because I'm still "healing" and am playing it ultra safe, but there are gluten-free products all over the place. Even the supermarkets like Shaws/Star Market are starting to offer some gluten-free things like Tinkyada and Amy's frozen "good for you" junkfood! :P If you're moving to the city, I can tell you the places I know of that offer gluten-free beer and ciders (I drink out, but I don't eat out)

GlutenWrangler Contributor

I live in Westfield. It's cool to hear about others in my area. I figured everyone on here was out in the Boston area. There's definitely a good amount of stores in the area for celiacs. Trader Joes, Whole Foods, Cornucopia. Even Stop & Shop in Amherst has a lot of Celiac-Friendly foods. Welcome to MA!

-Brian

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.