Severe food intolerance - please help

[Aaron275]

I don't know what to do. Every time I try something different that I think is going to help, it just makes me feel even worse.

I've reacted to all of these things:

Canned salmon
Blueberries
Spinach
Bananas
Almond milk

What am I supposed to do when I can't even eat basic things like this?

I last ate gluten a little over 3 months ago. I know it can take longer than that to heal, but is it normal to still have such extreme food intolerances at this point?

I also suspect that I have SIBO or something similar. If I do have that, could it be making my food intolerances worse?

Thanks

[Hulmey]

15 minutes ago, Aaron275 said:

I don't know what to do. Every time I try something different that I think is going to help, it just makes me feel even worse.

I've reacted to all of these things:

Canned salmon
Blueberries
Spinach
Bananas
Almond milk

What am I supposed to do when I can't even eat basic things like this?

I last ate gluten a little over 3 months ago. I know it can take longer than that to heal, but is it normal to still have such extreme food intolerances at this point?

I also suspect that I have SIBO or something similar. If I do have that, could it be making my food intolerances worse?

Thanks

Hi, sounds similar to where I found myself. I've been gluten-free for years, but found a few years ago that lots of new things reacted. It's taken a while to get there but I've now had test for SIBO that showed methane producing SIBO, so having antibiotics, so not sure if that will solve the issue yet. Other things you may wish to look into, in addition to SIBO are Histamine Intolerance and Lectins. Histamine Intolerance can be resolved with a low-histamine diet, and the foods you list would be ones to avoid (Salmon is fine, but not tinned). Lectins are a protein in a lot of plant-based foods, including grains. Gluten is a lectin. They may cross-react like gluten, but you would not find lectins in tinned salmon or spinach. This is the big downside of coeliac - most doctors seem to think adopting a gluten free diet, and incorporating gluten free foods is the answer, but it's a bigger picture of needing to repair gut with a good dietary protocol and undoing any iffy issues like SIBO. You may also wish to consider any remaining cross-contamination risks in your diet and also that (if you live in US or UK) that gluten-free foods are allowed to contain up to 20ppm of gluten (20k parts per million) which does not work for all people with coeliac.

[Scott Adams]

How long have you been on a gluten-free diet? It took me 1-2 years to recover from several temporary food intolerance issues. For me it was cow's milk, chicken eggs, tomatoes, corn and to a certain extent, garlic. I can now have all of these, but they did cause me serious issues for a while.

Many celiacs who still have issues after going gluten-free seem to improve on a low FODMAP diet:

 

 

[Awol cast iron stomach]

I also jump on the intolerances. I had up to 13 for 2 years .  I consistently have to avoid 3 now. Gluten, corn, (especially starch and corn and corn starch derivatives) , and cow milk.

For me the Fodmap's foods  didn't personally fix the issue. I did whole foods, had to avoid additives / ingredients etc . 

As the other poster mentioned how histamine might be wonky. For quite sometime histamine intolerance was controversial. It now appears to have more exposure and research to it than before. The food lists can vary depending on your source. As the other poster mentioned many of the foods you mentioned are considered high histamine or a histamine liberator.

We all often have to document our symptoms and food in addition to gluten as triggers. Some of us have tag along issues beside celiac or NCGS. 

I know it is frustrating. Start slow find some safe foods and build from there. Remember also that nutrients are important to healing. Try not to cut too many.

Lastly, having gone undiagnosed/misdiagnosed too long. I did alternative chiropractic care decades/ years and probiotics before they were even sold in stores.

My Dr and team knowing I was more alternative had me try accupuncture. As my body over the years developed tag along issues .  I have read that people with histamine issues, or mast cell issues in addition to celiac or gluten intolerance sometimes find accupuncture helpful.

Good luck.

 

 

 

 

 

Edited February 2, 2021 by Awol cast iron stomach
Repeat error