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I Hate I Hate I Hate...

penguin

By penguin
in Coping with Celiac Disease

Recommended Posts

Guest nini
Guest nini
Posted
Nini,

Sorry to go off topic, I know you are having personal problems, but I'm wondering about Chiropractors. What exactly are they used for? Do you believe they get results?

Again, sorry you are having work problems.

yes I believe that Chiropractors get results, chiropractic is usually thought of as treatment for whiplash after car accidents. That is only one of the things they are good for, also for headaches, back pain, neck pain... I believe that they are also good for general well being, keeping the nervous system free from blockage, the nervous system can function better.

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  • Replies 162
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Judyin Philly Enthusiast
Judyin Philly
Posted

HI

MAYBE WE SHOULD START A THREAD ON --"HOW CHIROPRACTORS HAVE HELPED US"...THOSE THAT WANT TO CAN START THEIR OWN THREAD OF WHY THEY HATE THEM.

MINE IS THE ONLY EXPERT ON celiac disease THAT I HAVE SEEN. MY INTERNIST & GI TOLD ME TO CONSULT HER ON THE DIET AS SHE KNEW MORE ABOUT IT THAN THEY DID...GIVEN HOW SHE'D HELPED ME OVER THE 11 YEARS I'VE GONE TO HER.

IT TOOK 3 YEARS TO GET UP THE COURAGE TO SEE HER AS I DIDN'T BELIEVE IN THEM. THAT BEING SAID. ' THERE ARE GOOD ONES WHO ADJUST EACH PATIENT IN A DIFFERENT WAY BASED ON THEIR PARTICULAR NEED' JUST AS THERE ARE BAD DR.S THERE ARE ALSO BAD CHIRO'S.

MY SWIMMING TEACHER OF 5 YEARS BEGGED ME TO SEE HER.

SHE CAME TO MY HOUSE AFTER DX'D AND PERSONALLY 'DEGULTEN MY KITCHE'

I WOULDN'T BE WALKING TODAY WITHOUT HER.

JUDY IN PHILLY

PS NISILA--I THINK THE IDEA OF A REHAB PLACE MIGHT BE GOOD. BET YOUR CHIRO WOULD GIVE A GOOD REFERENCE...I FORGET --DO YOU HAVE A DEGREE OR CERTIFICATION..I HAVE A FRIEND WHO JUST WENT FOR MASSAGE THEARPIST AND IS SO BUSY SHE'S EXHAUSED..I KNOW THERE IS A PLACE FOR YOU SOME WHERE OUT THERE.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Judyin Philly -- Great idea!

I took your advice and here it is....

How Chiropractors Have Helped Us, A alternative to main stream medicine we can explore

Open Original Shared Link

Judyin Philly Enthusiast
Judyin Philly
Posted
Judyin Philly -- Great idea!

I took your advice and here it is....

How Chiropractors Have Helped Us, A alternative to main stream medicine we can explore

Open Original Shared Link

Sillyak--

Thanks so much for doing this.

I hope this thread will help others find the help we have.

I'll copy this and add my post tomorrow when I'm not so tired. Going to bed.

Thanks again.

Ursula. loved both your posts. they are amazing 'healers' aren't they.

judy

Nantzie Collaborator
Nantzie
Posted

I hate that good people have bad things happen to them.

I hate that losing people hurts.

I hate that love is the biggest, most painful risk we can take.

But above all that, today, right this minute, after working out almost EVERY day this last two weeks...

I

HATE

BACK FAT!!!!

Blech.

ianm Apprentice
ianm
Posted

Nini I don't know anything about your occupation so I can't offer any suggestions. There is a better job out there and this may be a sign to start looking. Good luck and hope all works out.

Guest nini
Guest nini
Posted
Nini I don't know anything about your occupation so I can't offer any suggestions. There is a better job out there and this may be a sign to start looking. Good luck and hope all works out.

thanks Ian. I updated my resume yesterday, so I'm ready to start looking...

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Megan Rookie
Megan
Posted

I hate Doctors who request your phone call and don't get back with you for four days, and then it's their nurse. So, anything new that may have happened in those 4 days I have to leave a new message for, which won't be returned for 4 days by his nurse again...

I HATE THE CITY....my country doctors were back with me in 2 hours and they knew my name, my history, and gave me great advice even though I'm seeing someone else...these doctors here I'm just a number or something, obviously not someone they really care about...AAGGHH!!!

I just want to feel good!! or really I want someone to tell me it's not gluten it's something entirely different because I could only afford a day and a half worth of gluten free food....ughhh, I hate this!

francelajoie Explorer
francelajoie
Posted

I HATE MY JOB!

eleep Enthusiast
eleep
Posted

Okay -- here goes (deep breath) :

I hate the fact that my boyfriend of 5 1/2 years and I were about to get engaged in January and, were it not for the sudden revelation about all this Celiac stuff for me and his dissertation defense would still be about to get engaged, or, in fact, engaged, but NO -- he had to go and freak out and actually move out of our shared house and now I need a roommate to cover the last few months of the lease -- not to mention the fact that I'm writing a dissertation as well AND my boyfriend is on the job market looking for an academic job which will take him far away and possibly even make it impossible to heal the rifts in our relationship -- even though we were both ready to take the jump towards marriage together -- because now I'm having second thoughts about writing my dissertation long-distance just so I can move to be with him RIGHT NOW and am thinking that -- if we get back together I'll need at least six months in town here to write before I can move -- (and he's just now said he wants us to date each other again -- last night after three and a half weeks of hellish moving out frenzy and his total refusal to own any of his anger about this. I hate that we've created another rift in the trust between us.

Despite all of this, I'm feeling fabulous and getting a lot of work done and spending time with friends -- which is the ironic other result of finally figuring out what was wrong with my health.

rache Apprentice
rache
Posted

i saw this topic and thought maybe listing my HATES could make me feel better... So here we go!

I hate.....

- not being able to have a whopper w/ cheese and fries at burker king!

- not having an appetite

- the feeling of being full after eating 2 bites of something

- being nauseous 24/7!!!!!!!

- this overall sick feeling i feel like i have ALL the time

- how depressed i always get

- how i feel like an outcast when im around everyone else eating normal foods

- that no one around me understands the frustration with this disease

- that i dont feel like myself anymore

- weighing 88lbs. i really really hate it!

- when people say "i wish i had that disease so i could be skinny'

- paying $6 for a loaf of bread that tastes like cardboard

- that i cant take some miracle pill

- having NO energy

- feeling sick

- feeling sick

- and feeling sick. i hate it!! :(

Guest nini
Guest nini
Posted

I hate job hunting

I hate being broke

I hate having cereal be the ONLY food in the house that I can eat... (see above BROKE)

printmaker81 Rookie
printmaker81
Posted

I'm finally feeling pretty good again, so I can take most of these things with a grain of salt, but it doesn't hurt to vent a litlle here:

I hate when my department head tells me he understands my restricted diet because he's a vegetarian and I can't bless him out because he's my department head.

I hate that immediately after this he tells me we're ordering pizza for a departmental dinner.

I hate being reduced to eating a salad so often when eating out.

I hate being so skinny and feeling guilty for hating that I am so skinny because all my other friends are trying to lose weight. I really hate that I have a friend who is trying to lose a substantial amount of weight and we often go to the gym together, and I just have that feeling that I make her feel bad.

I hate that my 'disease' becomes the topic of conversation at nearly dinner/party/bar when I meet someone new. That whole Now why can't you eat grains -what a freakish body you have-tell me more syndrome. Particularly when my other friends could probably recite my lines for me.

I hate the stinking inconvenience of a gluten free diet.

I hate most of all that my mother almost assuredly have Celiac but won't get tested. It worries me all the time.

I hate nausea. Really. I hate it. Three straight years of it constantly, and somehow I think that should be exempt from ever vomiting again.

Well, I guess now that I've purged myself here, I should count my blessings on the love,love,love page...

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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