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I Hate I Hate I Hate...

penguin

By penguin
in Coping with Celiac Disease

Recommended Posts

Guest nini
Guest nini
Posted
Nini,

Sorry to go off topic, I know you are having personal problems, but I'm wondering about Chiropractors. What exactly are they used for? Do you believe they get results?

Again, sorry you are having work problems.

yes I believe that Chiropractors get results, chiropractic is usually thought of as treatment for whiplash after car accidents. That is only one of the things they are good for, also for headaches, back pain, neck pain... I believe that they are also good for general well being, keeping the nervous system free from blockage, the nervous system can function better.

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  • Replies 162
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Judyin Philly Enthusiast
Judyin Philly
Posted

HI

MAYBE WE SHOULD START A THREAD ON --"HOW CHIROPRACTORS HAVE HELPED US"...THOSE THAT WANT TO CAN START THEIR OWN THREAD OF WHY THEY HATE THEM.

MINE IS THE ONLY EXPERT ON celiac disease THAT I HAVE SEEN. MY INTERNIST & GI TOLD ME TO CONSULT HER ON THE DIET AS SHE KNEW MORE ABOUT IT THAN THEY DID...GIVEN HOW SHE'D HELPED ME OVER THE 11 YEARS I'VE GONE TO HER.

IT TOOK 3 YEARS TO GET UP THE COURAGE TO SEE HER AS I DIDN'T BELIEVE IN THEM. THAT BEING SAID. ' THERE ARE GOOD ONES WHO ADJUST EACH PATIENT IN A DIFFERENT WAY BASED ON THEIR PARTICULAR NEED' JUST AS THERE ARE BAD DR.S THERE ARE ALSO BAD CHIRO'S.

MY SWIMMING TEACHER OF 5 YEARS BEGGED ME TO SEE HER.

SHE CAME TO MY HOUSE AFTER DX'D AND PERSONALLY 'DEGULTEN MY KITCHE'

I WOULDN'T BE WALKING TODAY WITHOUT HER.

JUDY IN PHILLY

PS NISILA--I THINK THE IDEA OF A REHAB PLACE MIGHT BE GOOD. BET YOUR CHIRO WOULD GIVE A GOOD REFERENCE...I FORGET --DO YOU HAVE A DEGREE OR CERTIFICATION..I HAVE A FRIEND WHO JUST WENT FOR MASSAGE THEARPIST AND IS SO BUSY SHE'S EXHAUSED..I KNOW THERE IS A PLACE FOR YOU SOME WHERE OUT THERE.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Judyin Philly -- Great idea!

I took your advice and here it is....

How Chiropractors Have Helped Us, A alternative to main stream medicine we can explore

Open Original Shared Link

Judyin Philly Enthusiast
Judyin Philly
Posted
Judyin Philly -- Great idea!

I took your advice and here it is....

How Chiropractors Have Helped Us, A alternative to main stream medicine we can explore

Open Original Shared Link

Sillyak--

Thanks so much for doing this.

I hope this thread will help others find the help we have.

I'll copy this and add my post tomorrow when I'm not so tired. Going to bed.

Thanks again.

Ursula. loved both your posts. they are amazing 'healers' aren't they.

judy

Nantzie Collaborator
Nantzie
Posted

I hate that good people have bad things happen to them.

I hate that losing people hurts.

I hate that love is the biggest, most painful risk we can take.

But above all that, today, right this minute, after working out almost EVERY day this last two weeks...

I

HATE

BACK FAT!!!!

Blech.

ianm Apprentice
ianm
Posted

Nini I don't know anything about your occupation so I can't offer any suggestions. There is a better job out there and this may be a sign to start looking. Good luck and hope all works out.

Guest nini
Guest nini
Posted
Nini I don't know anything about your occupation so I can't offer any suggestions. There is a better job out there and this may be a sign to start looking. Good luck and hope all works out.

thanks Ian. I updated my resume yesterday, so I'm ready to start looking...

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Megan Rookie
Megan
Posted

I hate Doctors who request your phone call and don't get back with you for four days, and then it's their nurse. So, anything new that may have happened in those 4 days I have to leave a new message for, which won't be returned for 4 days by his nurse again...

I HATE THE CITY....my country doctors were back with me in 2 hours and they knew my name, my history, and gave me great advice even though I'm seeing someone else...these doctors here I'm just a number or something, obviously not someone they really care about...AAGGHH!!!

I just want to feel good!! or really I want someone to tell me it's not gluten it's something entirely different because I could only afford a day and a half worth of gluten free food....ughhh, I hate this!

francelajoie Explorer
francelajoie
Posted

I HATE MY JOB!

eleep Enthusiast
eleep
Posted

Okay -- here goes (deep breath) :

I hate the fact that my boyfriend of 5 1/2 years and I were about to get engaged in January and, were it not for the sudden revelation about all this Celiac stuff for me and his dissertation defense would still be about to get engaged, or, in fact, engaged, but NO -- he had to go and freak out and actually move out of our shared house and now I need a roommate to cover the last few months of the lease -- not to mention the fact that I'm writing a dissertation as well AND my boyfriend is on the job market looking for an academic job which will take him far away and possibly even make it impossible to heal the rifts in our relationship -- even though we were both ready to take the jump towards marriage together -- because now I'm having second thoughts about writing my dissertation long-distance just so I can move to be with him RIGHT NOW and am thinking that -- if we get back together I'll need at least six months in town here to write before I can move -- (and he's just now said he wants us to date each other again -- last night after three and a half weeks of hellish moving out frenzy and his total refusal to own any of his anger about this. I hate that we've created another rift in the trust between us.

Despite all of this, I'm feeling fabulous and getting a lot of work done and spending time with friends -- which is the ironic other result of finally figuring out what was wrong with my health.

rache Apprentice
rache
Posted

i saw this topic and thought maybe listing my HATES could make me feel better... So here we go!

I hate.....

- not being able to have a whopper w/ cheese and fries at burker king!

- not having an appetite

- the feeling of being full after eating 2 bites of something

- being nauseous 24/7!!!!!!!

- this overall sick feeling i feel like i have ALL the time

- how depressed i always get

- how i feel like an outcast when im around everyone else eating normal foods

- that no one around me understands the frustration with this disease

- that i dont feel like myself anymore

- weighing 88lbs. i really really hate it!

- when people say "i wish i had that disease so i could be skinny'

- paying $6 for a loaf of bread that tastes like cardboard

- that i cant take some miracle pill

- having NO energy

- feeling sick

- feeling sick

- and feeling sick. i hate it!! :(

Guest nini
Guest nini
Posted

I hate job hunting

I hate being broke

I hate having cereal be the ONLY food in the house that I can eat... (see above BROKE)

printmaker81 Rookie
printmaker81
Posted

I'm finally feeling pretty good again, so I can take most of these things with a grain of salt, but it doesn't hurt to vent a litlle here:

I hate when my department head tells me he understands my restricted diet because he's a vegetarian and I can't bless him out because he's my department head.

I hate that immediately after this he tells me we're ordering pizza for a departmental dinner.

I hate being reduced to eating a salad so often when eating out.

I hate being so skinny and feeling guilty for hating that I am so skinny because all my other friends are trying to lose weight. I really hate that I have a friend who is trying to lose a substantial amount of weight and we often go to the gym together, and I just have that feeling that I make her feel bad.

I hate that my 'disease' becomes the topic of conversation at nearly dinner/party/bar when I meet someone new. That whole Now why can't you eat grains -what a freakish body you have-tell me more syndrome. Particularly when my other friends could probably recite my lines for me.

I hate the stinking inconvenience of a gluten free diet.

I hate most of all that my mother almost assuredly have Celiac but won't get tested. It worries me all the time.

I hate nausea. Really. I hate it. Three straight years of it constantly, and somehow I think that should be exempt from ever vomiting again.

Well, I guess now that I've purged myself here, I should count my blessings on the love,love,love page...

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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      Fiber Supplement

      By trents · Posted

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