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Hidden Gluten

BNGed8
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BNGed8 Explorer
BNGed8
Posted

Hey All,

So after being diagnosed a little over a month ago, I have my good and bad days (more bad). It seems somedays I barely have any muscle twitching or pain, but then other days it just takes over the whole day. I am thinking maybe since this is all new to me, maybe gluten is sneaking in somehow? I just recently stopped ordering out, even if it was gluten free as I have read a lot about cross contamination.

I was wondering if the people who have had Celiac for awhile can chime in & list a few things they found to be a sneaky source of gluten or if there are any articles they can share. I have been doing my fair share of research and read through almost any topic on this site I can find before I fall asleep. Also do you guys recommend going dairy free to start to see if that speeds up the healing (or eliminate anything else)?

I am going to start a food diary/journal as I have seen many people recommend, but didn't know if anyone knew of an APP for the iPhone that would make this easier? I know this is probably all still from my initial diagnosis, but want to try and heal as quickly as possible & will definitely help going forward.

As always thanks again for any input! 

  • 1 month later...
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GodsGal Community Regular
GodsGal
Posted
On 7/19/2021 at 11:38 AM, BNGed8 said:

Hey All,

So after being diagnosed a little over a month ago, I have my good and bad days (more bad). It seems somedays I barely have any muscle twitching or pain, but then other days it just takes over the whole day. I am thinking maybe since this is all new to me, maybe gluten is sneaking in somehow? I just recently stopped ordering out, even if it was gluten free as I have read a lot about cross contamination.

I was wondering if the people who have had Celiac for awhile can chime in & list a few things they found to be a sneaky source of gluten or if there are any articles they can share. I have been doing my fair share of research and read through almost any topic on this site I can find before I fall asleep. Also do you guys recommend going dairy free to start to see if that speeds up the healing (or eliminate anything else)?

I am going to start a food diary/journal as I have seen many people recommend, but didn't know if anyone knew of an APP for the iPhone that would make this easier? I know this is probably all still from my initial diagnosis, but want to try and heal as quickly as possible & will definitely help going forward.

As always thanks again for any input! 

Hi BNGed8,

Sorry for such a late response. I hope you are doing better. I would recommend going off dairy and oats for the time being.

Also, check your toothpaste, any cosmetics, hygiene products, pet food, soaps, shampoos, conditioners, and detergents. I discovered that my skin issues were a result of my celiac disease. 

Another thing to take into consideration is things that are labeled "gluten free" vs. "certified gluten free". In the USA items can be labeled gluten free if they contain less than 20 ppm of gluten. For many of us, 20 ppm is still too much. I look for gluten free certification marks. These products are tested to much lower levels. GFCO certifies products that are under 10 ppm. NCA certifies products that are under 5 ppm.

Another website that really helped me out is glutenfreewatchdog.org. A friend recommended the app "Find Me Gluten Free" for traveling. But, I have not really used it yet.

I hope this helps!

Scott Adams Grand Master
Scott Adams
Posted

This article should be helpful:

 

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