Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Told to avoid Gluten free oats - 3 year old recently diagnosed


Rebecca129

Recommended Posts

sddave Enthusiast
21 hours ago, cristiana said:

Dave, this is something I would like to know as I've never been able to find this out.   All I can say is about three months ago I found I could eat oats (pure, certified gluten free) again seemingly without pain and probably rather overdid it.  Then, a month later, the burning stomach and neuro symptoms (muscle twitching) started up.   There could of course be a completely different cause but until I get my blood tests back at my bi-annual visit to the gastroenterologists I won't know.

 

Sorry to hear.    As I stated earlier.    I won't eat anything with oats or soy.    I get worse rashes (DH) now when gluten and leaves a permanent mark.    They were minor, but since going gluten-free they got worse.    So I  rarely take any chances being glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced
On 8/10/2021 at 2:24 PM, cristiana said:

https://www.nigella.com/recipes/guests/regula-ysewijns-flapjacks

 

This looks like a good recipe.   I'd advise to stick to oats - don't use spelt - and also forget about the chocolate chips.  Your first flapjack should be unadulterated.   If you slightly undercook them or add a bit more syrup (I think in the States it's called light treacle?) they will be softer.

https://www.nigella.com/recipes/guests/regula-ysewijns-flapjacks

thanx!!  i think that corn syrup would probably work :) 

cristiana Veteran
11 minutes ago, notme! said:

thanx!!  i think that corn syrup would probably work :) 

Yes... I googled an exact US alternative to golden syrup and several sites says there isn't one!  However, I gather you can buy it in certain stores in the US.  The brand you need for an authentic British flapjack is Lyles Golden Syrup.   

Sorry... going slightly off piste with this Oats thread!

cristiana Veteran
4 hours ago, sddave said:

Sorry to hear.    As I stated earlier.    I won't eat anything with oats or soy.    I get worse rashes (DH) now when gluten and leaves a permanent mark.    They were minor, but since going gluten-free they got worse.    So I  rarely take any chances being glutened.

This is very interesting.  I didn't know oats and soya could aggravate DH. 

 

knitty kitty Grand Master
On 8/12/2021 at 4:59 PM, cristiana said:

Yes... I googled an exact US alternative to golden syrup and several sites says there isn't one!  However, I gather you can buy it in certain stores in the US.  The brand you need for an authentic British flapjack is Lyles.

This is my favorite brand of golden syrup.  Have enjoyed it for years without problems.

https://www.goldeneaglesyrup.com/about

It's delicious!

cristiana Veteran
9 hours ago, knitty kitty said:

This is my favorite brand of golden syrup.  Have enjoyed it for years without problems.

https://www.goldeneaglesyrup.com/about

It's delicious!

I'd really like to try this.   I shall look out for it.   

However, I wonder if it would taste like or even "act" like Lyles as the only ingredient in Lyles is partially inverted refiners syrup which is made from either cane or beet sugar, and there is nothing else in it.  I guess the message for flapjack purists would be to track down Lyles first, make a batch, then try the same with Golden Eagle.   Mmmm... a nice excuse to bake tonnes of flapjack!

notme Experienced

this week, i tried the nuts dot com brand of gluten-free organic rolled oats with success  :)  the texture/flavor was much better than the instant brand (natures path) that i've been able to digest.  the taste is 'plain', too, lolz.  i jujjed it up with some craisins and mesquite maple walnuts (also from my favorite nut company)  

off to find golden syrup!!  our grocery store actually has a british section, so i'm gonna start there  :D 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    2. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    3. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.