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14 years after diagnosis I’m cheating


Gluten-Hater

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Gluten-Hater Apprentice
5 minutes ago, Wheatwacked said:

"In case you were wondering, it doesn’t matter if you’re getting D2 or D3, and the sunlight-generated kind isn’t better than the nutritional variety. “The body can use each perfectly fine,” says Dr. Insogna. " https://www.yalemedicine.org/news/vitamin-d-myths-debunked

After 2 years of 250 mcg (10,000 IU) a day of vitamin D3 my blood level was  48 ng/ml. After 6 years it is (checked last month) 87 ng/ml. Even if you only do it for one or two bottles you will notice an improvement in your feelings of burn out very quickly. While sunlight is nice, and going outside has other advantages, once you get into the fall until the spring in the northern tier, you are using up your reserves. With that I have osteopenia. My dad broke his femur neck in a slip and mom cracked her forarm in a trip. I wonder if the higher incidence of osteopenia/osteoporosis in Celiac might just be that we are tested more. My T score in femur neck = -2.4.  In addition to D and Calcium for your osteoporosis, you need vitamin K, manganese, phosphorus, etc. Here is a good article: 11 Supplements That May Help Manage or Prevent Osteoporosis (healthline.com)   https://www.healthline.com/nutrition/osteoporosis-supplements

AA did not help me because I am superanxious about speaking. One week after starting GFD in 2014 my addiction was broken. Same thing, the stomach pain no longer was worth it. For years I would take a sip, throw up, then drink a half pint of vodka.

Still smoking after 50+ years, so congratulations to you. At one point I was on the patch, chewing the gum and still went outside for a cigarette after doing hypnosis. One day soon. When I started they were $0.35 a pack!

Pipingrock.com has the best prices for vitamins that I have found. "High Potency Vitamin D3, 10,000 IU, 100 Quick Release Softgel $4.99"

I love that name { wheatwack} hilarious. I’m still young 42 but have the early osteoporosis in first tests at age 30. Anyway thanks for all that info. Skin cancer runs in my family so I just let my legs get some sun. I’ll have to purchase those Vitamens come October. Thanks for the humor. Lol. I’m dying for a cigarette but I swore this time is the time I’d quit plus only been smoking past 3 yrs straight before than none for 18 yrs. drinking I’m done for no stomach lining makes everything unbearable to drink. During my biopsy my Doctor said I had lost my 

On 8/25/2021 at 9:45 PM, Scott Adams said:

I would urge you to try to quit gluten again. Have you tried this new pizza? Yes, it contains "gluten-free" wheat starch, and the last few batches I've tested were gluten-free, but it tastes like the real thing...so binge on it instead of gluten:

 If you want to change your screen name send me a personal message with three choices.

How about { GLUTENHATER}?

On 8/25/2021 at 9:45 PM, Scott Adams said:

I would urge you to try to quit gluten again. Have you tried this new pizza? Yes, it contains "gluten-free" wheat starch, and the last few batches I've tested were gluten-free, but it tastes like the real thing...so binge on it instead of gluten:

 If you want to change your screen name send me a personal message with three choices.

How about { GLUTENHATER}?


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trents Grand Master
15 minutes ago, Glutenlover said:

Yes I meant that being descended from that organization the Mennonites that I’m allowed to give my opinion, after thorough research into that community I have myself deemed it as a whole a horrific cult. At least with the Amish whom not I live nearby, they allow all teens the chance to leave and decide if they want to stay after a certain period of time. With all or most mennonites they force them to stay are overly strict act like the taliban towards women and the outiside world. I’m a former defense contractor and I compare Mennonites to the Taliban minus the guns so that’s strictly my opinion I’m sharing. My job as a defense contractor made many famous friends and enemies and earned the respect of the pentagon. I have issues with a lot of things and know of many cults throughout this world from my experiences but let’s just stick to Celiac disease. If you are Mennonite I’m sorry if my opinion offends you sincerely 

No, my Christian heritage is not Mennonite. My wife's is, however. It just strikes me as wise not to say unnecessary things that have the potential to offend someone.

DebJ14 Enthusiast
On 8/25/2021 at 6:33 PM, trents said:

So how did you feel physically after your binge? Was it worth it?

If I were to eat a piece of wheat crust pizza or a wheat made blueberry muffin, within two or three hours I would be writhing on the bathroom floor with intractable vomiting and unbearably painful gut cramping followed by several hours of diarrhea. When I was diagnosed about 20 years ago my symptoms were relatively minor. I could eat that pizza or that muffin and my gastric distress would be very minor. Not so now. Are you a silent celiac still? Even after being off gluten all those years?

 I never cheat because within 30 minutes I have projectile vomiting and explosive diarrhea that lasts for hours.  Then, I feel awful for days afterward.  When I was diagnosed in 2007 my biggest issues were migraines, rashes, joint pain, ataxia, and severe constipation.  The longer I have been off gluten, dairy and yeast, the worse the reaction if exposed to any of them.

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    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
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