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14 years after diagnosis I’m cheating


Gluten-Hater

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Gluten-Hater Apprentice
5 minutes ago, Wheatwacked said:

"In case you were wondering, it doesn’t matter if you’re getting D2 or D3, and the sunlight-generated kind isn’t better than the nutritional variety. “The body can use each perfectly fine,” says Dr. Insogna. " https://www.yalemedicine.org/news/vitamin-d-myths-debunked

After 2 years of 250 mcg (10,000 IU) a day of vitamin D3 my blood level was  48 ng/ml. After 6 years it is (checked last month) 87 ng/ml. Even if you only do it for one or two bottles you will notice an improvement in your feelings of burn out very quickly. While sunlight is nice, and going outside has other advantages, once you get into the fall until the spring in the northern tier, you are using up your reserves. With that I have osteopenia. My dad broke his femur neck in a slip and mom cracked her forarm in a trip. I wonder if the higher incidence of osteopenia/osteoporosis in Celiac might just be that we are tested more. My T score in femur neck = -2.4.  In addition to D and Calcium for your osteoporosis, you need vitamin K, manganese, phosphorus, etc. Here is a good article: 11 Supplements That May Help Manage or Prevent Osteoporosis (healthline.com)   https://www.healthline.com/nutrition/osteoporosis-supplements

AA did not help me because I am superanxious about speaking. One week after starting GFD in 2014 my addiction was broken. Same thing, the stomach pain no longer was worth it. For years I would take a sip, throw up, then drink a half pint of vodka.

Still smoking after 50+ years, so congratulations to you. At one point I was on the patch, chewing the gum and still went outside for a cigarette after doing hypnosis. One day soon. When I started they were $0.35 a pack!

Pipingrock.com has the best prices for vitamins that I have found. "High Potency Vitamin D3, 10,000 IU, 100 Quick Release Softgel $4.99"

I love that name { wheatwack} hilarious. I’m still young 42 but have the early osteoporosis in first tests at age 30. Anyway thanks for all that info. Skin cancer runs in my family so I just let my legs get some sun. I’ll have to purchase those Vitamens come October. Thanks for the humor. Lol. I’m dying for a cigarette but I swore this time is the time I’d quit plus only been smoking past 3 yrs straight before than none for 18 yrs. drinking I’m done for no stomach lining makes everything unbearable to drink. During my biopsy my Doctor said I had lost my 

On 8/25/2021 at 9:45 PM, Scott Adams said:

I would urge you to try to quit gluten again. Have you tried this new pizza? Yes, it contains "gluten-free" wheat starch, and the last few batches I've tested were gluten-free, but it tastes like the real thing...so binge on it instead of gluten:

 If you want to change your screen name send me a personal message with three choices.

How about { GLUTENHATER}?

On 8/25/2021 at 9:45 PM, Scott Adams said:

I would urge you to try to quit gluten again. Have you tried this new pizza? Yes, it contains "gluten-free" wheat starch, and the last few batches I've tested were gluten-free, but it tastes like the real thing...so binge on it instead of gluten:

 If you want to change your screen name send me a personal message with three choices.

How about { GLUTENHATER}?


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trents Grand Master
15 minutes ago, Glutenlover said:

Yes I meant that being descended from that organization the Mennonites that I’m allowed to give my opinion, after thorough research into that community I have myself deemed it as a whole a horrific cult. At least with the Amish whom not I live nearby, they allow all teens the chance to leave and decide if they want to stay after a certain period of time. With all or most mennonites they force them to stay are overly strict act like the taliban towards women and the outiside world. I’m a former defense contractor and I compare Mennonites to the Taliban minus the guns so that’s strictly my opinion I’m sharing. My job as a defense contractor made many famous friends and enemies and earned the respect of the pentagon. I have issues with a lot of things and know of many cults throughout this world from my experiences but let’s just stick to Celiac disease. If you are Mennonite I’m sorry if my opinion offends you sincerely 

No, my Christian heritage is not Mennonite. My wife's is, however. It just strikes me as wise not to say unnecessary things that have the potential to offend someone.

DebJ14 Enthusiast
On 8/25/2021 at 6:33 PM, trents said:

So how did you feel physically after your binge? Was it worth it?

If I were to eat a piece of wheat crust pizza or a wheat made blueberry muffin, within two or three hours I would be writhing on the bathroom floor with intractable vomiting and unbearably painful gut cramping followed by several hours of diarrhea. When I was diagnosed about 20 years ago my symptoms were relatively minor. I could eat that pizza or that muffin and my gastric distress would be very minor. Not so now. Are you a silent celiac still? Even after being off gluten all those years?

 I never cheat because within 30 minutes I have projectile vomiting and explosive diarrhea that lasts for hours.  Then, I feel awful for days afterward.  When I was diagnosed in 2007 my biggest issues were migraines, rashes, joint pain, ataxia, and severe constipation.  The longer I have been off gluten, dairy and yeast, the worse the reaction if exposed to any of them.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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