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DH?

Caterina0909

By Caterina0909
in Dermatitis Herpetiformis

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Caterina0909 Apprentice
Caterina0909
Posted

I have a widespread rash all over my torso and neck - pics below. It is itchy but not bothering me. Been like this since Wednesday. I also have quite a few celiac symptoms - any thoughts? 
 

 

A36F6259-C498-4B3F-A0F5-6385BE7897D3.webp

94FD7D6E-CE1E-408C-B8A9-6A34F64AD057.webp

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GodsGal Community Regular
GodsGal
Posted
On 9/18/2021 at 1:50 PM, Caterina0909 said:

I have a widespread rash all over my torso and neck - pics below. It is itchy but not bothering me. Been like this since Wednesday. I also have quite a few celiac symptoms - any thoughts? 
 

 

A36F6259-C498-4B3F-A0F5-6385BE7897D3.webp

94FD7D6E-CE1E-408C-B8A9-6A34F64AD057.webp

Hi, 

You said that you have celiac symptoms. Have you been tested for celiac? It could be DH, but it could also be something else. 

Caterina0909 Apprentice
Caterina0909
Posted
  • Author

Hello

 

Yes I have been tested but serology came back negative. I am going for an endoscopy and MRI of small bowel in the coming weeks.

 

My doctor thinks this could be pityriasis rosea, which looking at photos is entirely likely, but I just want to explore other options too given my stomach issues and malabsoprtion.

 

Thanks for your reply.

 

C

Scott Adams Grand Master
Scott Adams
Posted

To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH.

Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood test? If not, your results could be false negative.

Caterina0909 Apprentice
Caterina0909
Posted
  • Author
3 minutes ago, Scott Adams said:

To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH.

Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood test? If not, your results could be false negative.

Hi Scott 

 

Thanks for your reply. I don’t have any results - was just told that it was negative for celiac… I assumed the actual values didn’t mean anything in that case but it would be good to know if any values were slightly raised - am I right? 
 

My gp now thinks this is gluttate psoriasis. It’s not itchy (well, mildly itchy at times) - but not what I imagine DH to be after reading up on it. 
 

C

Scott Adams Grand Master
Scott Adams
Posted

It would not hurt to ask for the actual results and the reference ranges, as recent studies do indicated that elevated gluten antibodies are not something to ignore, which is what many doctors do. Not to create a clash with your doctor, but why not rule out DH by doing a biopsy for it?

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    • PixieSticks
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      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
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    • Scott Adams
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