Test Results

[Jaimelyn]

Hi,

I had an endoscopy. Received results via MyChart. I’m going to have bloodwork done tomorrow. Do I have Celiac?

‘findings are not diagnostic, however raise the possibility of gluten sensible enterathopy.’
 

dueodenum biopsy-small intestinal mucosa with mild focal villous blunting and focal, slightly increased intraepithial lymphocytes. 
 

thanks! 

[RMJ]

Those findings can definitely be found with celiac disease, although they’re usually more severe.  It could be celiac disease that hasn’t gotten really bad yet, or celiac disease that is partially healed.  

How much gluten were you eating in the month prior to the endoscopy?  

You should be eating gluten regularly for 6-8 weeks prior to blood work. Do you know exactly what blood tests were ordered?  Some doctors only order the tests that look for TTG IgA and IgG antibodies, but some with celiac disease are only positive on DGP antibodies.

[trents]

Usually, the blood work is done first since it is non invasive and cost efficient.

As RMJ said, 6-8 weeks of consuming gluten daily in the amount equivalent to two pieces of wheat bread.

[Jaimelyn]

28 minutes ago, RMJ said:

Those findings can definitely be found with celiac disease, although they’re usually more severe.  It could be celiac disease that hasn’t gotten really bad yet, or celiac disease that is partially healed.  

How much gluten were you eating in the month prior to the endoscopy?  

You should be eating gluten regularly for 6-8 weeks prior to blood work. Do you know exactly what blood tests were ordered?  Some doctors only order the tests that look for TTG IgA and IgG antibodies, but some with celiac disease are only positive on DGP antibodies.

Nobody mentioned eating the gluten before tests. I’ve not been gluten free. I don’t normally eat much just as part of diet. Thanks for reply. 

[trents]

8 minutes ago, Jaimelyn said:

Nobody mentioned eating the gluten before tests. I’ve not been gluten free. I don’t normally eat much just as part of diet. Thanks for reply. 

Par for the course. Most physicians don't know any better. They are not knowledgeable about celiac disease.

[Jaimelyn]

On 9/20/2021 at 8:58 PM, RMJ said:

Those findings can definitely be found with celiac disease, although they’re usually more severe.  It could be celiac disease that hasn’t gotten really bad yet, or celiac disease that is partially healed.  

How much gluten were you eating in the month prior to the endoscopy?  

You should be eating gluten regularly for 6-8 weeks prior to blood work. Do you know exactly what blood tests were ordered?  Some doctors only order the tests that look for TTG IgA and IgG antibodies, but some with celiac disease are only positive on DGP antibodies.

I ended up getting the blood tests   TTG IgA and IgG. Tranglutaminase AB IgA high positive at 123. Celiac Diagnosis 9/22/21. So I’ve cut gluten and I saw nutrition yesterday. I’ve been ready a lot. Gastro follow up at end of month. 

[trents]

Well, your doctors did things backwards from how testing is usually done in the sense of doing the blood antibody tests after the endoscopy/biopsy but the outcome is what matters. Now comes the educational challenge of learning where and how gluten is hidden so as to be able to consistently avoid it.

[Jaimelyn]

7 minutes ago, trents said:

Well, your doctors did things backwards from how testing is usually done in the sense of doing the blood antibody tests after the endoscopy/biopsy but the outcome is what matters. Now comes the educational challenge of learning where and how gluten is hidden so as to be able to consistently avoid it.

I was having stomach issues so they just happened to find. And yes, this is definitely a challenge. I like this group. 
thanks for the info. 

[Jaimelyn]

Ok so I’ve been gluten free or so I thought since September. 
I had tests ran this week. My tTG Ab iGA is down to 15 from 123, yay!! But I just got these results and they are high and abnormal  I thought I was doing good! What could I be doing wrong? The one test is way down and others are up  

Gliadin Ab, IgA
Your Value
83 Units
Standard Range
<20 Units
Flag
H

Gliad Deamidated
And Gliad Deamidated 1gA Qual
Your Value
Moderate - Strong Positive
Standard Range
Negative, Test not Indicated
Flag
A

[RMJ]

22 minutes ago, Jaimelyn said:

Ok so I’ve been gluten free or so I thought since September. 
I had tests ran this week. My tTG Ab iGA is down to 15 from 123, yay!! But I just got these results and they are high and abnormal  I thought I was doing good! What could I be doing wrong? The one test is way down and others are up  

Gliadin Ab, IgA
Your Value
83 Units
Standard Range
<20 Units
Flag
H

Gliad Deamidated
And Gliad Deamidated 1gA Qual
Your Value
Moderate - Strong Positive
Standard Range
Negative, Test not Indicated
Flag
A

Congratulations on significantly lower tTG IgA results!

You only posted the tTG results before.  Have you had the Gliadin Ab IgA tested before?  If not, maybe it was really high, unknown to you, and this is a lot lower! My tTG results normalized before my deamidated gliadin peptide results.

[Jaimelyn]

3 minutes ago, RMJ said:

Congratulations on significantly lower tTG IgA results!

You only posted the tTG results before.  Have you had the Gliadin Ab IgA tested before?  If not, maybe it was really high, unknown to you, and this is a lot lower! My tTG results normalized before my deamidated gliadin peptide results.

It look like they only ran the igg test previously but that’s a good point. I’ll look at it positively and keep going. 

[C4Celiac]

I was at 12 from over 100 after 5 months.    So it looks similar to my drop around the same time.

You might see it drop very slowly now though.  Cutting out huge amounts of gluten will make it drop by a lot quickly in the beginning...  towards the end it might be harder to get it to drop if you're still eating tiny amounts of gluten regularly. 

Were your Liver enzymes tested ?   AST ALT ?   If not they should be.

and your thyroid