Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test results


Grute11

Recommended Posts

Grute11 Rookie

Hey

My results are:

anti ttg iga - 4.3 u/ml. And

anti dgp iga - 1.6 u/ml

do I have celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
6 minutes ago, Grute11 said:

Hey

My results are:

anti ttg iga - 4.3 u/ml. And

anti dgp iga - 1.6 u/ml

do I have celiac?

There’s no way we can tell without reference ranges to know where negative ends and positive begins with that particular laboratory’s rating scheme. You need to give us more info.

Grute11 Rookie
8 minutes ago, trents said:

There’s no way we can tell without reference ranges to know where negative ends and positive begins with that particular laboratory’s rating scheme. You need to give us more info.

The laboratory reference range isnegative for any results between 0-15

Both dgp and iga

trents Grand Master

Those lab results do not indicate you have celiac disease. But there are instances where people who do have celiac disease test negatively on the labs, especially if they have already started eating gluten free previous to the blood draw. Is that true in your case? There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. But the symptoms are very similar. The difference is that NCGS does not cause damage to the small bowel villi. So, the definitive way to distinguish between the two is to have an endoscopy with a biopsy of the small bowel lining. If symptoms persist but the biopsy shows no damage to the villi then a diagnosis of NCGS is made. 

What symptoms do you have that made you look into celiac disease testing?

Grute11 Rookie
8 hours ago, trents said:

Those lab results do not indicate you have celiac disease. But there are instances where people who do have celiac disease test negatively on the labs, especially if they have already started eating gluten free previous to the blood draw. Is that true in your case? There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. But the symptoms are very similar. The difference is that NCGS does not cause damage to the small bowel villi. So, the definitive way to distinguish between the two is to have an endoscopy with a biopsy of the small bowel lining. If symptoms persist but the biopsy shows no damage to the villi then a diagnosis of NCGS is made. 

What symptoms do you have that made you look into celiac disease testing?

I was in regular diet that includes gluten half a year before the test

my main symptom was brain fog

trents Grand Master

So without the endoscopy/biopsy to confirm that there is or isn't damage to the villi, with what we have to go on being the limited antibody testing, I would look at NGCS as being the issue. You also have the option of asking for a more complete celiac panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. At any rate, whether celiac disease or NCGS, the antidote is the same: total avoidance of gluten.

Grute11 Rookie
7 minutes ago, trents said:

So without the endoscopy/biopsy to confirm that there is or isn't damage to the villi, with what we have to go on being the limited antibody testing, I would look at NGCS as being the issue. You also have the option of asking for a more complete celiac panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. At any rate, whether celiac disease or NCGS, the antidote is the same: total avoidance of gluten.

Ok 

thank you I’m really appreciate it 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

As long as you don't intend to pursue additional testing, your next step would seem to be total elimination of gluten from your diet to see if the brain fog improves. But total elimination of gluten from the diet is not as easy as it sounds because wheat (particularly) is included in many, many prepared foods that you would neve suspect it to be in as well as meds and supplements and personal hygiene products. And eating out is to be avoided like the plagues since kitchen staff typically are ignorant or careless about cross contamination of gluten free items in the preparation and handling of them. This might help: 

 

Kate333 Rising Star

I would rely on your doctor for an accurate diagnosis, but your blood test numbers are so low, I doubt you have celiac disease or even gluten sensitivity. 

Since your blood tests were low normal, and if brain fog is the only symptom, you should consider other possible explanations.  There are too many to note here, but a few well known causes of BF are simply depression, chronic fatigue syndrome, poor diet, poor sleep habits, thyroid problems, and any recent life-changing disruption/change affecting your mood/focus.  I know for me, this crazy pandemic (on top of a recent celiac disease diagnosis) has created immense stress, adversely affecting my overall health and immune system, and triggered really bad health anxiety.  Sometimes the explanation is the simplest one (and simplest one to address).  

Grute11 Rookie
11 hours ago, Kate333 said:

I would rely on your doctor for an accurate diagnosis, but your blood test numbers are so low, I doubt you have celiac disease or even gluten sensitivity. 

Since your blood tests were low normal, and if brain fog is the only symptom, you should consider other possible explanations.  There are too many to note here, but a few well known causes of BF are simply depression, chronic fatigue syndrome, poor diet, poor sleep habits, thyroid problems, and any recent life-changing disruption/change affecting your mood/focus.  I know for me, this crazy pandemic (on top of a recent celiac disease diagnosis) has created immense stress, adversely affecting my overall health and immune system, and triggered really bad health anxiety.  Sometimes the explanation is the simplest one (and simplest one to address).  

Thanks 

the weird thing is that the brain fog appears after I eat anything. If I will fast for 24 hours the brain fog will disappear until I will eat again.

trents Grand Master
3 hours ago, Grute11 said:

Thanks 

the weird thing is that the brain fog appears after I eat anything. If I will fast for 24 hours the brain fog will disappear until I will eat again.

And this happens regardless of what you eat? If you were to eat a plain meat patty would this be true?

Grute11 Rookie
1 hour ago, trents said:

And this happens regardless of what you eat? If you were to eat a plain meat patty would this be true?

I suspect that carbs do this mainly 

but I can’t tell you in 100% if it’s just whatever food I will eat make me feel like that, because it take something like 20h for the fog to disappear after I’m fasting.

So maybe it’s just carbs and maybe it just whatever I eat will make me feel like that 

 

trents Grand Master

Have you been checked for diabetes?

Grute11 Rookie
7 hours ago, trents said:

Have you been checked for diabetes?

No

but from a standard blood test my glucose were 83 mg/dl and triglycerides 90mg/dl

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.