Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


Bella214

Recommended Posts

Bella214 Newbie

Hi sorry to bother everyone 😔 but the last 4 weeks have been crazy for me. Abdominal pain sometimes unbearable but use buscapan to cope. Feeling tired and lack of appetite but the last 3 days I've had yellow stools.  Could this be celiac? Thanks in advance 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella214 Newbie

Also had a blood test which shown inflammation and my folic acid is low. They put me on supplements of folic acid to boost it back up. 

cristiana Veteran
(edited)

Hello Bella

No bother at all - that's what we're here for.  Welcome to the forum!

The symptoms you mention could be celiac disease.  Out of interest, did your blood tests include a full celiac panel?  If so, can you post your results?

Cristiana

Edited by cristiana
Bella214 Newbie
1 minute ago, cristiana said:

Hello Bella!

No bother at all - that's what we're here for!

The symptoms you mention could be celiac disease.  Out of interest, did your blood tests include a full celiac panel?  If so, can you post your results?

Cristiana

No I don't think so. My doctor wanted to check for full blood count cancer cells and inflammation. All that came up in slight inflammation and low folic acid 

cristiana Veteran
(edited)

Hi Bella

It sounds like your doctor went down the same route as mine initially.  I was anemic and also had inflammation, but it didn't really add up to anything.  It wasn't until I started to get diarrhea that they thought to look for celiac disease. 

I would go back to your doctor and ask for a celiac blood test - ask for a full panel.  Are you currently eating  plenty of gluten?  If so, that's great, but if not, you will need to be eating the equivalent of at least 2 slices of normal (glutenous) bread daily for 6 - 8 weeks before your doctor does your blood test.  Make sure this happens, as often doctors don't think to check that their patients has done this first and the tests come back negative.

Cristiana

Edited by cristiana
Bella214 Newbie
2 minutes ago, cristiana said:

Hi Bella

It sounds like your doctor went down the same route as mine initially.  I was anemic and also had inflammation, but it didn't really add up to anything.  It wasn't until I started to get diarrhea that they thought to look for celiac disease. 

I would go back to your doctor and ask for a celiac blood test - ask for a full panel.  Are you currently eating  plenty of gluten?  If so, that's great, but if not, you will need to be eating the equivalent of at least 2 slices of normal (glutenous) bread daily for 6 - 8 weeks before your doctor does your blood test.  Make sure this happens, as often doctors don't think to check that their patients has done this first and the tests come back negative.

Cristiana

I haven't gone on gluten free diet yet so everything I've eaten recently has had gluten that's why when my yellow stools started coming my family said to check for celiac 

 

Bella214 Newbie
4 minutes ago, Bella214 said:

I haven't gone on gluten free diet yet so everything I've eaten recently has had gluten that's why when my yellow stools started coming my family said to check for celiac 

 

I had diarrhea to begin with and now I haven't had much of an appitite but my stools are soft but yellow and oily 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran
(edited)
22 minutes ago, Bella214 said:

I haven't gone on gluten free diet yet so everything I've eaten recently has had gluten that's why when my yellow stools started coming my family said to check for celiac 

 

They are quite right- it is definitely worth testing.   

Re: yellow stools.   I can tell you that I have had this symptom.   Celiacs can become temporarily lactose intolerant and I used to have this a lot, before my gut healed. 

I'm glad you've been eating gluten. As much as it is making you feel uncomfortable, keep eating it before your blood test, and if the blood test is positive and your doctors wish to confirm the diagnosis with an endoscopy, remember you will need to keep consuming it until the endoscopy. 

C.

Edited by cristiana
Bella214 Newbie

If it comes through on the blood test can my doctor say I have it there and then. I just want to feel better. I feel like I can't be away from the toilet at the moment. 

cristiana Veteran
2 minutes ago, Bella214 said:

If it comes through on the blood test can my doctor say I have it there and then. I just want to feel better. I feel like I can't be away from the toilet at the moment. 

Hi Bella 

Yes, that would be great wouldn't it!

That said, you may find that some doctors are keen to do an endoscopy even if the blood results are positive but there are others who are happy not too.   It rather depends on the doctor/circumstances.   

Should you have a negative blood test, it could be that you have something called non-celiac gluten intolerance which means you will have celiac-like symptoms without a damaged gut.   Or you might be one of the small percentage of celiacs who have a negative blood test, but do have damage to their gut.   In order to rule in/out the latter, an endoscopy is really the only way to find out.

Do come back to us if you need any further help when your blood tests come back. 

Cristiana 

AlwaysLearning Collaborator

Cristiana rocks. Great advice.

cristiana Veteran
7 hours ago, AlwaysLearning said:

Cristiana rocks. Great advice.

Just checking my emails first thing here, over the pond.  What a lovely thing to read first thing in the morning.... thank you AL!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    2. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

    3. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

    4. - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748

    AnnmarieR
    Newest Member
    AnnmarieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...