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Tendonitis everywhere..


Aysegul

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Aysegul Newbie

Hi everyone :)

I have some tendon issues for 6 years i m just 30 right now. I was a computer eng. It s started in my both lateral elbows(vit d was 4 in these years), doctors said because of the computer. than started my medial elbows than my knees than my wrists than fingers than my ankles and toes and my all foot. I quit my job. My aaall blood tested are fine. Ca, P, vit D etc levels normal..  There is no clue for roumatoid semptoms. I have no inflammation in my blood and no swelling etc. Doctors just say i ve hypermobility syndrom but actually not that bad. I was looking for solution and found this website. I read here some articles aboud tendonitis and celiac but we re in 2021 now the posts are in 10 years ago :)i Will start to go pilates this week and start a gluten diet but i wonder, is anybody here have same problem and fixed it with a diet? 

thanks much 

Have a healthy days ! 


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trents Grand Master

You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free, realize that for these tests to be valid you would need to be eating regular amounts of gluten for 6-8 weeks. 

Aysegul Newbie
30 minutes ago, trents said:

You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free, realize that for these tests to be valid you would need to be eating regular amounts of gluten for 6-8 weeks. 

I mean some blood tests were done like Crp, rf (i think it measures inflammation of the body ..?) And doctors / i went zillion doctors/ said you dont have something inflammatory. Yesterday i asked for celiac tests to the doctor but he just done ttg , i m waiting for the result. Yes i read this forum that i need to gluten for validation of the test. I ve never tried gluten diet yet. Thank you for your reply 

Scott Adams Grand Master

Please feel free to share your ttg test results when you get them. Also, keep in mind that there are two conditions: 1) Celiac disease, which about 1% of people have; 2) Non-celiac gluten sensitivity, which ~10% of people have. 

Currently there is not test for non-celiac gluten sensitivity, so if your tests are negative, you may still want to try a gluten-free diet to see if it helps you.

Aysegul Newbie

I got my tests: 

Anti endomisium anticor 2.7 u/ml

Anti gliadin igg 2

Transglutaminase igg 1.7 

But as you said,  i have had gluten free diet for 4 days. If i feel more comfortable i will write here again several months later...        +my b12 levels are always around 200 and b12 is never suggested, because actually its always in its reference value. But some doctors said keep b12 values between 600-1000 , so i will try to elevate it. I dont know and dont think there is a link between b12 levels and tendon problems but i m just trying to find a solution, i hope . 

Thank you. 

Scott Adams Grand Master

Can you share the reference levels for each test, as each lab has different cut of levels that denote celiac disease?

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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
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      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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