Not new to gluten free diet, but questions

[Stormrunner]

Last year I started having a blistering rash bo one could diagnose, until my endocrinologist did a Celiac blood panel (because my other doctors thought it might have been linked to my Hashimoto's -it is...kinda, but only by autoimmune association).

I had already suspected, so I stopped eating gluten about a month ahead of this.

We went to stainless steel, corningware, and aluminum cookware as well as using copper sheets for my food.

Both my husband and my roommate went 90% gluten free, but when they do eat it they clean thoughly and don't interact with me.

All tolietries are now gluten free.

I was still having slight reaction 7 months on, though discoloration and full on blisters were gone.

My Endo and GP suggested gluten free paper products.  I was told I could be so sensitive absorbing though mucus membrane could be issue.

I changed both my paper towels and toilet paper and completely got rid of, or replaced any paper products that might touch mucus membrane areas.

My reaction was completely gone for months - only to return when I ate off paper plates and used holiday napkins not thinking at Thanksgiving at my parents.  The reaction was immediate, and though allergy meds can reduce the itching - it can't stop the blisters.  Luckily, they were few and went away in a few days.

Yes, everything I ate was gluten free as my mom and sister have Crone's and sister also has gluten intolerance.

I know most paper products should be gluten free in US, and I may just be hypersensitive at this point.

I am an artist, both digital and traditional and the amount of gluten in a lot of professional products has my doctors telling me to mask up (inhaling dust, as well as to keep anything out of my mouth as I'm neurodivergent, and sometimes unintentionally put things in my mouth) and possibly wear goggles while working for my eyes. (Note: I am not able to do traditional media until we move soon due to room issues, but it's come up).

I do not have touch sensitivity, just wanted to get that out there.  I can touch cat treats with gluten and wash my hands and be fine. 

It's just if these items touch my eyes, nose, mouth and genitals.  Hence, the doctors suggesting absorption.

I've had a gluten allergy test (including corn type) and extended allergy test and both came back negative.

And I'm not allergic to paper, as switching brands wouldn't have worked.

I was just wondering if there are other artist around with similar issues, and what you do, or if this is one of those "you are such a minute percentage this hasn't come up before".

Sorry so long for a first post, I just wanted to make sure I didn't come off as saying this is typical of all people with DH Celiac disease.  I'm well aware I'm hyper sensitive.

I haven't found anything about this online except people scoffing at gluten free children's media back when people were still assuming gluten free was just a trend, and not that kids put the darndest thing in their mouths.

Professional media is a whole different ballgame.  I've called and checked process for multiple companies and because of how the media needs to be made, wheat and other protein based gluten are used extensively in glues, paints, pencils, paper etc.

And I cannot blame the process, most neurotypical adults can take procautions. 

Hopefully this post comes across coherent.

[trents]

Good information that may prove to be helpful to others who still have gluten type reactions but are stumped as to where the sources might be since they are otherwise diligent. 

"Neurotypical adults"?

[Stormrunner]

  On 12/1/2021 at 2:52 PM, trents said:

"Neurotypical adults"?

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Not Neurodivergent.

No Autism, ADHD or other cognitive disabilities that might cause chewing on things like pencils or not understanding dangers of it.

[Wheatwacked]

A neurotypical person is an individual who thinks, perceives, and behaves in ways that are considered to be "normal" by the general population.

[Stormrunner]

This is probably a better reply than mine.

I am neurodivergent myself, so I tend to forget not everyone knows these terms.

[trents]

Thanks for the explanations. Originally, I took it to refer to systemic neurological problems some celiacs experience from gluten ingestion/exposure. 

[Hopeful1950]

Just a quick thought.  When you said you could touch cat treats and then wash hands and be fine...

Are you touching the cat?  I had to eliminate gluten from my pets diet, because they eat the food or treat, and then they lick their fur and then I would pet them.  Not a problem unless I was not thinking and then touched my eyes or mouth afterward.

[Stormrunner]

  On 12/1/2021 at 4:49 PM, Hopeful1950 said:

Just a quick thought.  When you said you could touch cat treats and then wash hands and be fine...

Are you touching the cat?  I had to eliminate gluten from my pets diet, because they eat the food or treat, and then they lick their fur and then I would pet them.  Not a problem unless I was not thinking and then touched my eyes or mouth afterward.

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Yes, most of our cats are on raw diet (gluten free mixture) and one is on raw.  We no longer have the gluten treats and give them dehydrated.

  On 12/1/2021 at 4:49 PM, Hopeful1950 said:

Just a quick thought.  When you said you could touch cat treats and then wash hands and be fine...

Are you touching the cat?  I had to eliminate gluten from my pets diet, because they eat the food or treat, and then they lick their fur and then I would pet them.  Not a problem unless I was not thinking and then touched my eyes or mouth afterward.

Expand Quote  

Yes, most of our cats are on raw diet (gluten free mixture) and one is on wet only.  We no longer have the gluten treats and give them dehydrated.

[Wheatwacked]

Pushing the definition, one could say that people who are GFD are not neurotypical because we don't worship the wheat god. I think Jean Duane PhD makes that point in 

 

[Stormrunner]

I really hate reading stuff like this.
My whole family, extended and otherwise have been so good about my Celiac that even my accidental exposure on Thanksgiving upset my mom.  I had to remind her even I forgot about the paper plates causing me issues.  And it wasn't like it caused a full blown reaction all over, just a few blisters on my stomach, under arm and along my jaw line.  Nothing compared to how I was over a year ago.

I mean, they scrubbed the smoker and oven before cooking anything. 
My egg allergy too (which docs think might be linked to my Celiac and Might go away, might being optimal word here).
Of course, they already had to take into account my mom's Chrone's, so more adjustments were fine.

I just can't understand people thinking these are trends or that it's in our head.  I know someone who almost died because their Mother in law decided she wasn't really allergic to mushrooms and pulverized some to put in a stew so the person I knew couldn't see them.
Thinking like what's in that article kills and needs to go away.