Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When will the anxiety, nervous stomach and dizziness go away?!!


Cosmicveganchick

Recommended Posts

Cosmicveganchick Apprentice

Hey guys!

I'm new to the gluten free lifestyle. It's been about 10 days and the dizziness anxiety and constant hunger are making me wanna loose my sh!t! Has anyone else experienced these symptoms after quitting gluten? I don't have tummy issues aside from the fact that I was backed up all of my life! Never thought it could be gluten because all I ever heard was diarrhea and stomach cramps. I would like to try exercising but I'm afraid the dizziness will get worse. From the research I've done these are all withdrawl symptoms but I'm hoping it doesn't last much longer because I do not take pharmaceuticals. The constant feeling of anxiety in my stomach tends to ease up a bit when I'm out of the house with other people but I'm mostly alone at home so it escalates. I meditate and ground and do qigong take deep breaths hot baths use essential oils drink  herbal teas etc etc. So I'm exhausted and thinking it's just a matter of time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

The withdrawals you describe are very common when someone gives up gluten, and for me this period took a few weeks, but I believe that it got a little better each day.

Exercise is probably good, but maybe best to be done at home, at least until your diarrhea is under control.

Did you get any tests done for celiac disease, or are you just trying this out due to your symptoms?

trents Grand Master

I'm guessing you'll feel better in another 10-14 days. Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)?

From your username I am guessing you do not consume animal based proteins. There are just some nutrients you can't get very well from plants. My biggest concern would be B12. Are you taking any gluten-free supplements? Wheat starch is enriched with vitamins whereas gluten-free flours are not. So when you go gluten-free you may develop some deficiencies if you don't use good supplements.

Cosmicveganchick Apprentice
39 minutes ago, Scott Adams said:

The withdrawals you describe are very common when someone gives up gluten, and for me this period took a few weeks, but I believe that it got a little better each day.

Exercise is probably good, but maybe best to be done at home, at least until your diarrhea is under control.

Did you get any tests done for celiac disease, or are you just trying this out due to your symptoms?

Thank you for that advise but I don't have any diarrhea. It's the dizziness that concerns me but I think it's mostly due to the anxiety. idk lol I didn't get tested because I feel that this totally resonates with me as I'm very intune with my body. Have many of the symptoms that I never knew about. I use holistic approaches to health and so giving this a go is worth a try! Anything that makes you have withdrawals can't be good for you!

 

39 minutes ago, Scott Adams said:

The withdrawals you describe are very common when someone gives up gluten, and for me this period took a few weeks, but I believe that it got a little better each day.

Exercise is probably good, but maybe best to be done at home, at least until your diarrhea is under control.

Did you get any tests done for celiac disease, or are you just trying this out due to your symptoms?

 

37 minutes ago, trents said:

I'm guessing you'll feel better in another 10-14 days. Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)?

From your username I am guessing you do not consume animal based proteins. There are just some nutrients you can't get very well from plants. My biggest concern would be B12. Are you taking any gluten-free supplements? Wheat starch is enriched with vitamins whereas gluten-free flours are not. So when you go gluten-free you may develop some deficiencies if you don't use good supplements.

Ugh another 10-14 days? Being single and going through this really isn't fun just saying. I know that I was anemic most of my life but not vegan for  mostt of my life. I went to my iridologist/sclerologist and she did see anemia and auto immune disease whi h I thought was strange because I normally feel great! My initial symptoms of this affecting me was dizziness and it wasn't going away so I thought that it was anemia but I didn't seem to be absorbing the iron. She said that my small intestine was messed up and I was having trouble absorbing things. She never did mention celiac so Ive been researching myself and it does cause anemia and dizziness from malabsorbtion. So a lightbulb went off and I started taking b12 and iron sublingually( under the tongue) so it would bypass my digestive system.  Had some bloodwork done after I started that because I couldn't get there before. Everything looked fine but the b12 and iron were on the lower end of in range so I knew that it was low before I started the sublingual stuff. All gluten free. Before this she advised me to do a liquid diet reset. You pretty much just have smoothies for food. That causes a detox flu! I had no idea about gluten detox at this time but I stopped gluten during this reset so I'm sure that was a part of why I felt so bad. So I was so sick and horrible body aches. Didn't want to take anything because I wanted to stay clean. Then the guy who drives me right now because I can't because of the dizziness got covid and apparently so did I omg so I suffered through most of that without taking anything except a couple of advil. I did start eating solid food including gluten after I got covid because it was just too much! I didnt know then about the gluten issue. When I lot my taste and smell I knew I had it lol anyway I'm Just ready to be well already! Atleast not dizzy and anxious any longer! Long story long sry!

trents Grand Master

Well, if you want to get tested for celiac disease realize you would need to be consuming an amount of gluten daily equivalent to 2 pieces of wheat toast for 6-8 weeks before an antibody test and for 2 weeks before an endoscopy with biopsy or the tests will not likely be valid. Are you recovered from Covid yet?

Cosmicveganchick Apprentice
Just now, trents said:

Well, if you want to get tested for celiac disease realize you would need to be consuming an amount of gluten daily equivalent to 2 pieces of wheat toast for 6-8 weeks before an antibody test and for 2 weeks before an endoscopy with biopsy or the tests will not likely be valid. Are you recovered from Covid yet?

I'm not going to bother with the testing I'm just going to get rid of gluten. Anything that makes you feel this bad when you stop eating it can't be good for you! I have recovered from covid! Was about a week or so.

Spherical Bird Contributor

What do you mean by herbal teas ? Real tea or more herbs mix ? I'd personally be careful with the tea.

If you're gluten intolerant, you might already have malabsorption problems. Drinks like tea or caffeine (which have similar effects) may prevent iron absorption. Maybe that could partly help to get rid of the anxiety. 

Make sure you're getting B12 based food too, we tend miss these as we don't absorb that vitamin very well either. It's good for nerve health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cosmicveganchick Apprentice
1 hour ago, Spherical Bird said:

What do you mean by herbal teas ? Real tea or more herbs mix ? I'd personally be careful with the tea.

If you're gluten intolerant, you might already have malabsorption problems. Drinks like tea or caffeine (which have similar effects) may prevent iron absorption. Maybe that could partly help to get rid of the anxiety. 

Make sure you're getting B12 based food too, we tend miss these as we don't absorb that vitamin very well either. It's good for nerve health.

Hi,

i just drink herbal teas and i didn’t know about the tea thing until a couple of months ago. I am anemic and have been taking siblingual iron and b12 and D3 to address that situation. I do believe that the gluten has been blocking most of my nutrient absorption that’s why I’m quitting eating it. I also started a probiotic a couple of days ago that not only helps with gut health but also mental health. We’ll see! I have been taking Ashwaghanda regularly for a while now and it does take a little of the edge off now that i think my body is starting to absorb more things. Thank you for the advice and i hope you are doing great on your path!

Spherical Bird Contributor
5 minutes ago, Cosmicveganchick said:

Hi,

i just drink herbal teas and i didn’t know about the tea thing until a couple of months ago. I am anemic and have been taking siblingual iron and b12 and D3 to address that situation. I do believe that the gluten has been blocking most of my nutrient absorption that’s why I’m quitting eating it. I also started a probiotic a couple of days ago that not only helps with gut health but also mental health. We’ll see! I have been taking Ashwaghanda regularly for a while now and it does take a little of the edge off now that i think my body is starting to absorb more things. Thank you for the advice and i hope you are doing great on your path!

Sounds great ! So so for my part, but hopefully, it will probably get better with some time too.

I never heard about ashwaghanda but its components resolutely sound interesting. Thanks for sharing ! Probiotics sounds great too. I use lactobacillus based ones and I have a feeling they resolutely help too. Glad to know you find some relief with these aswell ! 

Cosmicveganchick Apprentice
1 hour ago, Spherical Bird said:

Sounds great ! So so for my part, but hopefully, it will probably get better with some time too.

I never heard about ashwaghanda but its components resolutely sound interesting. Thanks for sharing ! Probiotics sounds great too. I use lactobacillus based ones and I have a feeling they resolutely help too. Glad to know you find some relief with these aswell ! 

You are welcome! 
the Ashwaghanda can take a little time to start it’s affects maybe a week of two of continuous use but i find it to be worth it if it can take some of this edge off! You start to go nuts after a while! 🤪 I’m just trying to stay positive and not get trapped in my head. I’m looking forward to being more vibrant than ever when this withdrawal is over!

Scott Adams Grand Master

I believe that Ashwaghanda can increase blood pressure, so just beware of this.

trents Grand Master

"Other conditions which require caution when it comes to using ashwagandha include if you’re pregnant or breastfeeding, or if you have an autoimmune disease." https://health.clevelandclinic.org/what-is-ashwagandha/

Celiac Disease is an autoimmune condition.

Cosmicveganchick Apprentice
19 minutes ago, trents said:

"Other conditions which require caution when it comes to using ashwagandha include if you’re pregnant or breastfeeding, or if you have an autoimmune disease." https://health.clevelandclinic.org/what-is-ashwagandha/

Celiac Disease is an autoimmune condition.

Yes I’m aware of those but i believe they are talking about specific Auto immune diseases like lupus but i will look further into that. Right now it’s doing nothing but helping calm the beast for me 🙏🏼

knitty kitty Grand Master

Do Not take Ashwagandha if you are taking an SSRI.

Selective Serotonin Reuptake Inhibitors (SSRI's) prevent the breakdown of serotonin.  Ashwagandha causes the production of serotonin.  Too much serotonin leads to Serotonin Syndrome.  It is a serious, unpleasant medical condition.  Even taking too much Ashwagandha by itself can cause serotonin syndrome.

Read more here....

"Recognition and treatment of serotonin syndrome"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2464814/

 

Cosmicveganchick Apprentice
On 2/17/2022 at 11:11 PM, knitty kitty said:

Do Not take Ashwagandha if you are taking an SSRI.

Selective Serotonin Reuptake Inhibitors (SSRI's) prevent the breakdown of serotonin.  Ashwagandha causes the production of serotonin.  Too much serotonin leads to Serotonin Syndrome.  It is a serious, unpleasant medical condition.  Even taking too much Ashwagandha by itself can cause serotonin syndrome.

Read more here....

"Recognition and treatment of serotonin syndrome"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2464814/

 

Ok! Good to know! Thank you!

knitty kitty Grand Master

@Cosmicveganchick,

You stated you tested low for Vitamin B12 and iron.  It's rare to have a deficiency in just one vitamin or mineral.  In Celiac disease, the damage to the small intestine where nutrients are absorbed usually causes vitamin and mineral deficiencies across the board.  

There's eight essential B vitamins.  They are codependent on each other to work properly.  

B12 (Cobalamine) needs Folate (B9), Riboflavin (B2), and Pyridoxine (B6).  Those also need Thiamine (B1), and Niacin (B3) to provide energy for them to provide energy to work properly.  Magnesium is also needed for Thiamine to work.  Supplementing just one vitamin can unbalance the others.  

Dizziness can be caused by B12 deficiency, Vitamin D deficiency, and Thiamine deficiency.  

You would be wise to supplement with all eight essential B vitamins.  A good B Complex in addition to the B12 and Vitamin D.  

Hope this helps! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    2. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    3. - Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    4. - Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    5. - Betsy Crum replied to Betsy Crum's topic in Related Issues & Disorders
      4

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,235
    • Most Online (within 30 mins)
      7,748

    judycs
    Newest Member
    judycs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...