Different symptoms when glutened at different times/with different food?

[newto]

I am very new to the celiac world, haven't been diagnosed but I am suspecting gluten intolerance in general after considering my reactions to gluten. However, I'm wondering if anyone has different symptoms/reactions when exposed to different foods? e.g. I may experience abdominal pain after eating sourdough bread, but a headache (feeling of my head expanding and of increased pressure) after eating pretzels (non-gluten-free). or, is it that if i don't have abdominal pain with pretzels, then i'm not actually intolerant to gluten?

[trents]

Welcome to the forum, newto!

Sourdough bread is not gluten free. Some celiacs have reported they do not react to sourdough or at least not as much but it is largely anecdotal. Both abdominal pain and headaches are very common reactions to gluten and to those with NCGS (Non Celiac Gluten Sensitivity). And your symptoms may be due to something else not related to glunten such as SIBO (Small Bowel Bacteria Overgrowth) or reacting to the yeast in the bread instead of gluten.

At this point you are taking shots in the dark. I would suggest that the place to start is to actually get tested for celiac disease and if nothing else rule that out. But you must be eating normal amounts of gluten before any testing is done, whether it be the serum antibody test or the endoscopy/biopsy or both.

[newto]

29 minutes ago, trents said:

Welcome to the forum, newto!

Sourdough bread is not gluten free. Some celiacs have reported they do not react to sourdough or at least not as much but it is largely anecdotal. Both abdominal pain and headaches are very common reactions to gluten and to those with NCGS (Non Celiac Gluten Sensitivity). And your symptoms may be due to something else not related to glunten such as SIBO (Small Bowel Bacteria Overgrowth) or reacting to the yeast in the bread instead of gluten.

At this point you are taking shots in the dark. I would suggest that the place to start is to actually get tested for celiac disease and if nothing else rule that out. But you must be eating normal amounts of gluten before any testing is done, whether it be the serum antibody test or the endoscopy/biopsy or both.

thanks! 
 

yes, im definitely considering testing, BUT - i havent been eating a lot of gluten even before and when ive noticed repeating pattern of symptoms (about a week ago), i didnt eat gluten for the past 6 days or so (and i didnt have abdominal pain at all!). so i dont know what would be counted as 'enough' gluten for the test ? plus, how can i eat gluten-containing foods if they give me pain ;(

[newto]

32 minutes ago, trents said:

Welcome to the forum, newto!

Sourdough bread is not gluten free. Some celiacs have reported they do not react to sourdough or at least not as much but it is largely anecdotal. Both abdominal pain and headaches are very common reactions to gluten and to those with NCGS (Non Celiac Gluten Sensitivity). And your symptoms may be due to something else not related to glunten such as SIBO (Small Bowel Bacteria Overgrowth) or reacting to the yeast in the bread instead of gluten.

At this point you are taking shots in the dark. I would suggest that the place to start is to actually get tested for celiac disease and if nothing else rule that out. But you must be eating normal amounts of gluten before any testing is done, whether it be the serum antibody test or the endoscopy/biopsy or both.

and also the reason why i got fixated on gluten is bc some foods which dont contain yeast do give discomfort. Ive first noticed headaches and dizziness when i drank a barley-coffee-drink; then my regular oats (the packaging of which says that it may contain wheat or barley) also gave me abdominal pain but when i switched to gluten-free oats, ive never experienced pain after that ... 

[trents]

Okay, well it seems like you have your answer. You seem to have either celiac disease or NCGS. As the recommended pretest gluten challenge, the Mayo Clinic says the daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading up to the blood draw for the antibody testing and two weeks leading up to the endoscopy/biopsy. The only way to distinguish between celiac disease and NCGS is to rule out CS. There is not test currently available for NCGS. It does not produce antibodies or damage the small bowel villi as does celiac disease.

Edited February 9, 2022 by trents

[newto]

10 hours ago, trents said:

Okay, well it seems like you have your answer. You seem to have either celiac disease or NCGS. As the recommended pretest gluten challenge, the Mayo Clinic says the daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading up to the blood draw for the antibody testing and two weeks leading up to the endoscopy/biopsy. The only way to distinguish between celiac disease and NCGS is to rule out CS. There is not test currently available for NCGS. It does not produce antibodies or damage the small bowel villi as does celiac disease.

I guess I will have to follow the daily consumption of gluten with a pain-killer  thanks !!