New here. I have some questions

[Onemoreceliac]

Hello everyone, I'm a newly diagnosed celiac.

How strict my gluten free diet should be?

I read on the internet that even kissing your partner who is not gluten free is bad for your gut. It's that true? 

I had a discussion with my boyfriend of 2 years about kissing part and he is so angry about it and says that he doesn't want that from a relationship and he doesn't think he cannot kiss me everytime he heats gluten.

I'm feeling kinda sad about this 😔 

Please tell me the true, it is that bad if I kiss him ? 

Thank you, I already feel bad about my diagnosis and he doesn't help me very much by not being supportive...

[trents]

Yes, kissing someone just after they have eaten something with gluten can be problematic for some celiacs. It depends on how sensitive they are. Would he be open to using mouthwash after eating?

[knitty kitty]

Welcome to the forum, @Onemoreceliac!

It's a simple thing to brush your teeth after eating.

Your boyfriend is not respecting your Celiac Disease, a medical condition that demands a gluten free diet.  Your boyfriend is not being respectful to you by his unsupportive behaviour. 

Hard as it is, Celiac can help you weed out people who don't have the staying power to stick with you.  

I can picture this guy feeding your future Celiac kids gluten and leaving you to deal with the vomit and poop alone.  

There are people out there who are less selfish. 

Stick to your guns.  Provide toothbrush and toothpaste.  

Check in your area for Celiac support groups.  Perhaps some education about Celiac and exposure to other Celiacs will help your boyfriend adjust his thinking.  

{{{Hugs}}}  

[Sabaarya]

10 hours ago, Onemoreceliac said:

Hello everyone, I'm a newly diagnosed celiac.

How strict my gluten free diet should be?

I read on the internet that even kissing your partner who is not gluten free is bad for your gut. It's that true? 

I had a discussion with my boyfriend of 2 years about kissing part and he is so angry about it and says that he doesn't want that from a relationship and he doesn't think he cannot kiss me everytime he heats gluten.

I'm feeling kinda sad about this 😔 

Please tell me the true, it is that bad if I kiss him ? 

Thank you, I already feel bad about my diagnosis and he doesn't help me very much by not being supportive...

Hi. The hardest part of this disease is explaining to everyone how serious is this disease and that they need to respect and be supportive,especially family members and close people and friends. I’m agree with knitty! I was having problems with my husband at the beginning but after he came with me to my appointment and after my doctor explained everything in details he changed his attitude towards my diagnose and diet. Of course it’s difficult for him but he tries. It’s very difficult to change all your eating and life habits in short period of time. 
You can take him to your appointments. Even my dietitian mentioned that most of her patients have problems with they family members,partners and she said that usually she makes one appointment for whole family to talk and explain family members as well how important is gluten free for celiac patients. You can try that:). Don’t worry everything is gonna be fine:)

[Onemoreceliac]

6 minutes ago, Sabaarya said:

Hi. The hardest part of this disease is explaining to everyone how serious is this disease and that they need to respect and be supportive,especially family members and close people and friends. I’m agree with knitty! I was having problems with my husband at the beginning but after he came with me to my appointment and after my doctor explained everything in details he changed his attitude towards my diagnose and diet. Of course it’s difficult for him but he tries. It’s very difficult to change all your eating and life habits in short period of time. 
You can take him to your appointments. Even my dietitian mentioned that most of her patients have problems with they family members,partners and she said that usually she makes one appointment for whole family to talk and explain family members as well how important is gluten free for celiac patients. You can try that:). Don’t worry everything is gonna be fine:)

It is possible to pass on the disease to my children? I'm the only one in the family who has the disease, my parents are fine, my sister is fine, my aunt's and uncles are fine, my 8 cousins are just fine, so my grandparents ..

[Sabaarya]

1 minute ago, Onemoreceliac said:

It is possible to pass on the disease to my children? I'm the only one in the family who has the disease, my parents are fine, my sister is fine, my aunt's and uncles are fine, my 8 cousins are just fine, so my grandparents ..

Apparently almost 40% of population have celiac genes but only 1% develop the disease through their life. If you have disease there is 50% of chances that you will pass it to your children but still doesn’t mean that they develop disease through their life. And if you have celiac genes your mother of father has it and your sister has it for sure,but as I said not everyone developes disease. I’m the only one in the family that have it for now. I have 3 year old son,his doctor checked his antibodies and they were negative,but I’m planning to make an appoitment with pediatric GI and have him check genetic panel and antibodies for my son. My close friend had genetic test and she has positive celiac genes,her brothers got checked and they have celiac genes as well,but none of them have active celiac disease.

[Onemoreceliac]

3 minutes ago, Sabaarya said:

Apparently almost 40% of population have celiac genes but only 1% develop the disease through their life. If you have disease there is 50% of chances that you will pass it to your children but still doesn’t mean that they develop disease through their life. And if you have celiac genes your mother of father has it and your sister has it for sure,but as I said not everyone developes disease. I’m the only one in the family that have it for now. I have 3 year old son,his doctor checked his antibodies and they were negative,but I’m planning to make an appoitment with pediatric GI and have him check genetic panel and antibodies for my son. My close friend had genetic test and she has positive celiac genes,her brothers got checked and they have celiac genes as well,but none of them have active celiac disease.

Lucky me..

Thank you for your answers.

[Sabaarya]

1 hour ago, Onemoreceliac said:

Lucky me..

Thank you for your answers.

I know, I was the same when I just got diagnosed:)

1 hour ago, Onemoreceliac said:

Lucky me..

Thank you for your answers.

What was your symptoms? Have you had biopsy?

[Onemoreceliac]

1 minute ago, Sabaarya said:

I know, I was the same when I just got diagnosed:)

What was your symptoms? Have you had biopsy?

For about 2 years and half I had and still have pelvic pain, bloating, stomach ache, diahreea, fatigue, migraines, always in a bad mood.

All good damn doctors said I had iritabile bowel syndrome and they said I stress to much about it and just relax and take some probiotics.

I went for one more opinion and the gastro performed colonoscopy and endoscopy with biopsy. Results: celiac disease Marsh II. 

I think I can manage the gluten free diet, but I'm worried about having kids, because they will have the gene and might develop celiac disease..

 

 

 

[trents]

7 hours ago, Sabaarya said:

Apparently almost 40% of population have celiac genes but only 1% develop the disease through their life. If you have disease there is 50% of chances that you will pass it to your children but still doesn’t mean that they develop disease through their life. And if you have celiac genes your mother of father has it and your sister has it for sure,but as I said not everyone developes disease. I’m the only one in the family that have it for now. I have 3 year old son,his doctor checked his antibodies and they were negative,but I’m planning to make an appoitment with pediatric GI and have him check genetic panel and antibodies for my son. My close friend had genetic test and she has positive celiac genes,her brothers got checked and they have celiac genes as well,but none of them have active celiac disease.

Although the statistics Sabaarya quote are accurate, there is one important one that was left out in regard to answering your question about whether or not you can pass on celiac disease to your children. Sabaarya stats deal with the likelyhood of having celiac disease based on the general population. But if you yourself have active celiac disease the chances of your children (and other first degree relatives such as your parents and siblings) may be much higher, even if they are asymptomatic or are "silent" celiacs. A recent large study done by the Mayo Clinic found that when tested with biopsy, 44% of the first degree relatives of those confirmed to have active celiac disease also had celiac disease. Earlier studies had put the figure at more like 10% so more research needs to be done on this question it seems. The key here is realizing that many who have celiac disease may not display classic symptoms for many years and pass on without ever being diagnosed or if they do develop symptoms, being diagnosed with other things such IBS or colitis.

[Scott Adams]

I would also like to add that there are around 10 celiac disease pharmaceutical treatments in the development pipeline:
https://www.beyondceliac.org/research/drugdevelopment/drug-development-pipeline/
so it is likely that by the time you have children there will be a more effective treatment for it, should they get it. Given what I've read about with gene editing technology like CRISPR, I think it's even possible that in a couple of decades there may even be a way to cure people with celiac disease.

[Onemoreceliac]

34 minutes ago, Scott Adams said:

I would also like to add that there are around 10 celiac disease pharmaceutical treatments in the development pipeline:
https://www.beyondceliac.org/research/drugdevelopment/drug-development-pipeline/
so it is likely that by the time you have children there will be a more effective treatment for it, should they get it. Given what I've been reading about gene editing technology like CRISPR, I think it's even possible that in a couple of decades there may even be a way to cure people with celiac disease.

I really hope so, thank you for the information.

[knitty kitty]

12 hours ago, Onemoreceliac said:

For about 2 years and half I had and still have pelvic pain, bloating, stomach ache, diahreea, fatigue, migraines, always in a bad mood.

All good damn doctors said I had iritabile bowel syndrome and they said I stress to much about it and just relax and take some probiotics.

I went for one more opinion and the gastro performed colonoscopy and endoscopy with biopsy. Results: celiac disease Marsh II. 

I think I can manage the gluten free diet, but I'm worried about having kids, because they will have the gene and might develop celiac disease..

 

 

 

Try the book "The AutoImmune Protocol" by Sarah Ballantyne.  She's a doctor with Celiac and has Celiac kids.  She developed the diet, which has been scientifically proven to promote healing in Celiacs.  

You're actually ahead of the game, knowing you have Celiac Disease.  You will be knowledgeable and well practiced in the gluten free diet by the time your kids come along.  So...

No worries!

[Onemoreceliac]

1 minute ago, knitty kitty said:

Try the book "The AutoImmune Protocol" by Sarah Ballantyne.  She's a doctor with Celiac and has Celiac kids.  She developed the diet, which has been scientifically proven to promote healing in Celiacs.  

You're actually ahead of the game, knowing you have Celiac Disease.  You will be knowledgeable and well practiced in the gluten free diet by the time your kids come along.  So...

No worries!

I really hope so, thank you for the book recomandation and your answers. 

Have a great day!