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Prolong symtoms

LC

By LC
in Coping with Celiac Disease

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LC Newbie
LC
Posted

Hi. I was diagnosed with Celiac about 8 years ago and have been gluten-free since. In early January 2022 a family member was in contact with an individual who was positive with Covid, as a result everyone in his house and our ended up sick. Everyone recover well except me. I am still feeling tired, lack of energy, headache and diarrhea, for 5 weeks now. My Doctor suggested  blood and stool test. My question is it normal for people with Celiac to have prolong symtoms once infected with Covid? Anybody else had this kind of issue? Thank you.

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knitty kitty Grand Master
knitty kitty
Posted

@LC,

Thiamine supplementation has been found to help Covd patients (especially those on respirators) in hospital and long haulers.  

Fighting any infection uses up our stores of thiamine.  Thiamine is one of eight B vitamins that our bodies need to function properly.  

Taking Vitamin C, a B Complex along with extra thiamine (300 - 1000mg) has been shown to be beneficial to those recovering from Covid.  Discuss with your doctor the benefits of supplementing.  The B vitamins are water soluble and nontoxic.  Any excess you don't need will be excreted.

Fatigue, headache, and diarrhea are symptoms of low Thiamine. 

Hope this helps! 

LC Newbie
LC
Posted
  • Author

Thank you Knitty Kitty for the reply. A week ago I started taking Vegan gluten-free B complex by Sisu along with my regular daily multi vit, hopefully that will do the trick.

knitty kitty Grand Master
knitty kitty
Posted
3 hours ago, LC said:

Thank you Knitty Kitty for the reply. A week ago I started taking Vegan gluten-free B complex by Sisu along with my regular daily multi vit, hopefully that will do the trick.

The Vegan gluten free B Complex only has 25 mg of Thiamine.  

Thiamine dose needs to be 300 mg minimum.  

"Be well: A potential role for vitamin B in COVID-19"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/

And...

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://ccforum.biomedcentral.com/articles/10.1186/s13054-021-03648-9

  • 2 weeks later...
LC Newbie
LC
Posted
  • Author

Got blood test result today, high on B12, 763 pmol/l normal range 145-569  (1032.87 pg/ml normal range 60-950). Doctor said that he was not consern and must be high because I take B supplement and he had no answers for why I am still sick with headaches, fautigue, nausea, lack of appetite and diarrhea for 7 weeks. I am Vegan and Celiac and always take a multi vit per day and a week before the test, I added Sisu B complex for the extra Thiamine, I was tired of being sick, hoping it would help, Doctor said no vitamine suplement for one month and have an other blood test. I Google High B12 and found this: An abnormally high vitamin B-12 status is anything over 900 pg/mL. ( mine is 1032.87 pg/ml) This result may suggest liver or kidney problems, diabetes, or certain forms of leukemia. 

knitty kitty Grand Master
knitty kitty
Posted
37 minutes ago, LC said:

Got blood test result today, high on B12, 763 pmol/l normal range 145-569  (1032.87 pg/ml normal range 60-950). Doctor said that he was not consern and must be high because I take B supplement and he had no answers for why I am still sick with headaches, fautigue, nausea, lack of appetite and diarrhea for 7 weeks. I am Vegan and Celiac and always take a multi vit per day and a week before the test, I added Sisu B complex for the extra Thiamine, I was tired of being sick, hoping it would help, Doctor said no vitamine suplement for one month and have an other blood test. I Google High B12 and found this: An abnormally high vitamin B-12 status is anything over 900 pg/mL. ( mine is 1032.87 pg/ml) This result may suggest liver or kidney problems, diabetes, or certain forms of leukemia. 

Look on the labels of the multi vitamins and the B Complex vitamins and add up the total amount of B12.  

There are B Complex supplements and multivitamins that don't contain B12. 

You should stop taking any vitamin supplements four to eight weeks before having them measured.  Otherwise the measurement reflects how much you've been taking that hasn't been absorbed yet. 

 

"Health Risks from Excessive Vitamin B12

The FNB did not establish a UL for vitamin B12 because of its low potential for toxicity [1]. Even at large doses, vitamin B12 is generally considered to be safe because the body does not store excess amounts."

from...

https://ods.od.nih.gov/factsheets/VitaminB12-HealthProfessional/#h8

LC Newbie
LC
Posted
  • Author

Multi vit 50 Mcg
Super B complex 250
Total dairly intake 550 mcg
For maybe 1.5 week before the blood test. 

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knitty kitty Grand Master
knitty kitty
Posted
59 minutes ago, LC said:

Multi vit 50 Mcg
Super B complex 250
Total dairly intake 550 mcg
For maybe 1.5 week before the blood test. 

It's fine.  You just got the B12 supplements measured.  

If you're not comfortable, find a B Complex without the B12.  

Mine was as high if not higher, and the doctor said to quit taking my B12.  I did and within a few weeks, I had insufficiency symptoms again.  Once my small intestine healed and I was able to absorb more from my diet, I cut back on the B12 and had no return of symptoms. 

Do what you are comfortable with.  It's your body.  Do what feels right for you.  Everyone is different.

But I never had any problems from keeping my B12 high while healing.  

Our liver stores B12.  When those stores are depleted, neuropsychiatric symptoms (B12 deficiency dementia*) can occur and later anemia appears.  We need to replenish the stores in the liver. The liver can store as much as a couple of years of B12, so it's going to take a bit of time and a bunch of B12 to make that happen.  Saturating the system provides enough for daily needs, and plenty for storage and healing.  Any extra the body can't use is excreted in urine.   

B12 is needed for providing energy and making all sorts of blood cells. B12 is needed to rid the body homocysteine, an inflammatory chemical released  during an immune or autoimmune response.  Healing is better if homocysteine levels are lower.  

(*B12 deficiency dementia doesn't happen to everyone before anemia.  Those most susceptible are those who experience gluten ataxia.  Yeah, high homocysteine levels in the brain can really mess a person up.  I know from personal experience.)

Hope this helps!

Keep us posted on your progress!

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