I already feel like I’m going to get a negative result

[Eloisee]

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 

[Eloisee]

  On 5/7/2022 at 10:57 AM, Eloisee said:

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 

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*had* an active EBV. Apologies! 

[trents]

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

[Eloisee]

  On 5/7/2022 at 1:38 PM, trents said:

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

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So the burping is weird, it’s not traditionally burping because I technically can’t burp. It’s like this build up which then just gurgles and makes noises (as it it’s coming from my throat). 

I’ve never had abnormal B12. Only ever a slight vitamin D deficiency. Also on my previous bloodwork done a month ago they tested my thyroid and T3 uptake was low and T4 Total was high (numbers weren’t so bad, but enough to be picked up as abnormal). 

I currently take an SSRI for anxiety (which I’ve been on for quite a long time) and birth control pill (been on that for about 12 years, but switched to the generic form about 3 years ago). 

[trents]

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

[Eloisee]

  On 5/7/2022 at 1:52 PM, trents said:

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

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No supplements. Any blood tests in the past have come back normal. It was in 2017/2018 when it started showing my ferritin was low and IBC was high. It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

[trents]

As you say, the celiac antibody tests results are pending. If positive, the would explain a lot of what you are experiencing. There is also the possibility of NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not damage the small bowel villi. There is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10-12x more common that celiac disease. I hope you were still eating regular amounts of gluten when the test was done.

[Eloisee]

The amount of gluten I consumed on a daily basis is quite a bit. I probably eat it in a least 2 meals every day. Thanks for all the feedback, will post an update when I get my results!

[C4Celiac]

  On 5/7/2022 at 10:57 AM, Eloisee said:

 

Did anyone else have night sweats as a symptom?

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Yes I had them before being diagnosed in early 2020..

It's your body trying to sweat out the poison..  

[Wheatwacked]

  On 5/7/2022 at 2:02 PM, Eloisee said:

It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

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Believe it.

Multiple deficiencies, each with its own symptoms. There is a thing called High Calorie Malnutrition. The Role of Thiamin in High Calorie Malnutrition

It is estimated that less than 10% on the SAD diet get enough Choline. Prehistoric man ate sodium to potassium ratio was about 1:11. Currently we are around 1:1. The WHO and many countries including the US have declared potassium a nutrient of concern. The 1 to 5 mg of Lithium we got from groundwater, well, we all drink bottle water. Vitamin D plasma level is considered normal above 29 ng/ml, yet a healthy lifeguard typically is 80 ng/ml. As the iodine intake is half what it was in 1970, prescriptions of thyroid meds has increased. In one study, 66% of childbearing age women were deficient in iodine. As has the incidence of breast cancer. Ideally we should consume a diet that is 66% omega 6 fatty acids to 34% omega 3. I recently read an estimate that is 20:1 in our western diet. Milk from conventional feed and supplemental Palmitic Acid to increase production Palmitic acid increased yields of milk and milk fat and nutrient digestibility across production level of lactating cows "A recent national study found that cows fed a diet of totally organic grass and legumes produced milk with elevated levels of omega-3 and CLA, which provides a markedly healthier balance of fatty acids. The improved fatty acid profile in grass-fed organic milk and dairy products brings the omega-6/omega-3 ratio to nearly 1 to 1, compared to 5.7 to 1 in conventional whole milk. Grass-fed cows produce healthier milk." They would like us to think lactose intolerance as the cause of inflammation and not just greed. In many of us we've killed off many of the beneficial microbes in our guts with diet.

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By 2014, there was a 242 percent increase (232,670) in new cases of female breast cancer (Siegel, Zou, and Jemal 2014). During this period—1970 to 2014—the U.S. population increased 56.8 percent (203,392,031 to 318,892,100). Thus, the rate of increase in female breast cancer has been more than 4-fold (i.e., 4.26-fold) the increase in the U.S. population during the same period.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4135458/

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http://nutrientlog.doodlesnotes.net/  A bunch of daily meal plans with daily totals of most nutrients.

 

[knitty kitty]

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

[marcel g]

  On 5/8/2022 at 6:23 AM, knitty kitty said:

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

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Also interesting. I also used to get night sweats. Sometimes I’d have to change my clothes and put a towel down to get back to sleep. I can’t remember when they stopped, if it coincided with going to a low gluten diet.