Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I already feel like I’m going to get a negative result


Eloisee

Recommended Posts

Eloisee Newbie

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eloisee Newbie
57 minutes ago, Eloisee said:

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 

*had* an active EBV. Apologies! 

trents Grand Master

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

Eloisee Newbie
2 minutes ago, trents said:

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

So the burping is weird, it’s not traditionally burping because I technically can’t burp. It’s like this build up which then just gurgles and makes noises (as it it’s coming from my throat). 

I’ve never had abnormal B12. Only ever a slight vitamin D deficiency. Also on my previous bloodwork done a month ago they tested my thyroid and T3 uptake was low and T4 Total was high (numbers weren’t so bad, but enough to be picked up as abnormal). 

I currently take an SSRI for anxiety (which I’ve been on for quite a long time) and birth control pill (been on that for about 12 years, but switched to the generic form about 3 years ago). 

trents Grand Master

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

Eloisee Newbie
7 minutes ago, trents said:

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

No supplements. Any blood tests in the past have come back normal. It was in 2017/2018 when it started showing my ferritin was low and IBC was high. It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

trents Grand Master

As you say, the celiac antibody tests results are pending. If positive, the would explain a lot of what you are experiencing. There is also the possibility of NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not damage the small bowel villi. There is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10-12x more common that celiac disease. I hope you were still eating regular amounts of gluten when the test was done.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eloisee Newbie

The amount of gluten I consumed on a daily basis is quite a bit. I probably eat it in a least 2 meals every day. Thanks for all the feedback, will post an update when I get my results!

C4Celiac Contributor
9 hours ago, Eloisee said:

 

Did anyone else have night sweats as a symptom?

Yes I had them before being diagnosed in early 2020..

It's your body trying to sweat out the poison..  

Wheatwacked Veteran
10 hours ago, Eloisee said:

It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

Believe it.

Multiple deficiencies, each with its own symptoms. There is a thing called High Calorie Malnutrition. The Role of Thiamin in High Calorie Malnutrition

It is estimated that less than 10% on the SAD diet get enough Choline. Prehistoric man ate sodium to potassium ratio was about 1:11. Currently we are around 1:1. The WHO and many countries including the US have declared potassium a nutrient of concern. The 1 to 5 mg of Lithium we got from groundwater, well, we all drink bottle water. Vitamin D plasma level is considered normal above 29 ng/ml, yet a healthy lifeguard typically is 80 ng/ml. As the iodine intake is half what it was in 1970, prescriptions of thyroid meds has increased. In one study, 66% of childbearing age women were deficient in iodine. As has the incidence of breast cancer. Ideally we should consume a diet that is 66% omega 6 fatty acids to 34% omega 3. I recently read an estimate that is 20:1 in our western diet. Milk from conventional feed and supplemental Palmitic Acid to increase production Palmitic acid increased yields of milk and milk fat and nutrient digestibility across production level of lactating cows "A recent national study found that cows fed a diet of totally organic grass and legumes produced milk with elevated levels of omega-3 and CLA, which provides a markedly healthier balance of fatty acids. The improved fatty acid profile in grass-fed organic milk and dairy products brings the omega-6/omega-3 ratio to nearly 1 to 1, compared to 5.7 to 1 in conventional whole milk. Grass-fed cows produce healthier milk." They would like us to think lactose intolerance as the cause of inflammation and not just greed. In many of us we've killed off many of the beneficial microbes in our guts with diet.

Quote

By 2014, there was a 242 percent increase (232,670) in new cases of female breast cancer (Siegel, Zou, and Jemal 2014). During this period—1970 to 2014—the U.S. population increased 56.8 percent (203,392,031 to 318,892,100). Thus, the rate of increase in female breast cancer has been more than 4-fold (i.e., 4.26-fold) the increase in the U.S. population during the same period.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4135458/

http://nutrientlog.doodlesnotes.net/  A bunch of daily meal plans with daily totals of most nutrients.

 

knitty kitty Grand Master

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

  • 2 weeks later...
marcel g Apprentice
On 5/8/2022 at 1:23 PM, knitty kitty said:

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

Also interesting. I also used to get night sweats. Sometimes I’d have to change my clothes and put a towel down to get back to sleep. I can’t remember when they stopped, if it coincided with going to a low gluten diet. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    MandyK
    Newest Member
    MandyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.