Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing time!


Sabaarya

Recommended Posts

Sabaarya Community Regular

 

Hi everyone. Hope you guys are ok. I know I’ve asked couple of times how long did it take for you to completely heal but it’s been 7 months since I’ve started my gluten-free diet I do still experiencing ups and downs,like back pain,achy body,weird feeling in ears,achy feet,blurred vision,also gained weight feeling hungry all the time. I was feeling pretty well 3 months after diet and I was thinking that’s it an I got healed but somehow symptoms started again,not as bad as before but still.. is it normal to feel like this after 7 months?? And also 4 months after diet my blood work got improved. I still take antidepressants. Anyhow,did it take more than a year for anyone to get completely better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

The average time to recovery is 2 years, but this can vary greatly from person to person, and depends on how much intestinal damage you had, weather or not you're taking vitamin & mineral supplements, are 100% gluten-free, etc. If you eat out at restaurant you're probably getting some trace amounts of gluten in your diet.

Sabaarya Community Regular
1 hour ago, Scott Adams said:

The average time to recovery is 2 years, but this can vary greatly from person to person, and depends on how much intestinal damage you had, weather or not you're taking vitamin & mineral supplements, are 100% gluten-free, etc. If you eat out at restaurant you're probably getting some trace amounts of gluten in your diet.

I don’t eat at restaurants at all. But it’s hard to live with gluten consuming family members. Do you think Marsh 3a score is advanced stage or mild stage?

Scott Adams Grand Master

Marsh 3a would be considered mild damage:
https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html

Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.

MADMOM Community Regular
14 minutes ago, Scott Adams said:

Marsh 3a would be considered mild damage:
https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html

Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.

where can you see the marsh score on biopsy ?  my gi had said i was in the upper level as far as damage -3s but not specific 

Scott Adams Grand Master
3 hours ago, Sabaarya said:

I don’t eat at restaurants at all. But it’s hard to live with gluten consuming family members. Do you think Marsh 3a score is advanced stage or mild stage?

@Sabaarya posted this.

Sabaarya Community Regular
2 hours ago, MADMOM said:

where can you see the marsh score on biopsy ?  my gi had said i was in the upper level as far as damage -3s but not specific 

I asked my GI and he said 3A


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MADMOM Community Regular
37 minutes ago, Sabaarya said:

I asked my GI and he said 3A

i am curious now what exactly mine was 

Sabaarya Community Regular
9 hours ago, Scott Adams said:

Marsh 3a would be considered mild damage:
https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html

Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.

I’m taking supplements,but not every day. And I usually don’t take them all in one day. I do usually split them,for example Monday B complex,Tuesday iron supplement,Wednesday vitamin D. Not able to digest all of them in one day…

knitty kitty Grand Master
On 5/11/2022 at 1:35 AM, Sabaarya said:

I’m taking supplements,but not every day. And I usually don’t take them all in one day. I do usually split them,for example Monday B complex,Tuesday iron supplement,Wednesday vitamin D. Not able to digest all of them in one day…

I'm sorry you're not feeling as much improved as you would like to be by now.  I do think that you would have better results if you took the B vitamins every day.  

The B vitamins would help you with your symptoms, but they need to be taken consistently.  When we take them every day, the B vitamins will improve the body's functions and repair the nerves that are causing problems like the burning feet, blurry vision and weird ear sensations.  

As a healing Celiac, we need to supply our bodies with the essential B vitamins it needs to function every day and for healing.  Since our stores get depleted so rapidly when we've been ill, we need to take the B Complex to replenish those stores.  

Do try not to get your gluten free foods contaminated with regular gluteny foods others in your household may consume.  

Hope you feel better soon!

Sabaarya Community Regular

Thank you . I will take them everyday and see how it works

Sweetwater Newbie

Thanx for the important info. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,231
    • Most Online (within 30 mins)
      7,748

    ethan710
    Newest Member
    ethan710
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
    • Scott Adams
      By the way, have you been diagnosed with celiac disease, and if so, are you on a 100% gluten-free diet?
    • Ryangf
      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
×
×
  • Create New...