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CELIAC DISEASES VS. BLOCKAGES IN SMALL INTESTINES


PATTYABER

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PATTYABER Newbie

I recently read an article where celiac disease can cause a condition usually in children where the small intestines "flops over" causing a blockage in the small intestines.  It can also occur in teens and rarely in adults.  I haven't been tested yet but have an appointment next month with my gastroenterologist.  I did the 23 and me DNA testing a few years ago and am always getting updates.  I received one the other day that said I had the variants for celiac disease.  I felt for the first time that might explain the problems I have been having for years.  The pain, bloating, nausea, bowel issues, etc. and this past year I had an intestinal blockage in July that required extensive surgery and another surgery in December for a twisting of my small intestines that required a colon resection.  I was wondering if these issues could be related if it turns out I do have celiac disease.  


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Wheatwacked Veteran
1 hour ago, PATTYABER said:

surgery in December for a twisting of my small intestines that required a colon resection.

My dad had that when he was 84. He had to have a colonoscopy after because his intestines were like lace. Funny, all the research I did when my brother had a stoma from intestine to bladder fixed indicated a high success rate for the operation. Intestinal surgery has a high survival and success. So why do such a large number of people with one surgery often require additional surgeries?

Do not mess with this! Your long-term symptoms fit Celiac Disease and you have the genes. Get a Celiac Panel done if you can before starting a gluten free diet. Do not delay. It does not matter if it is non-Celiac wheat/gluten sensitivity or Celiac disease. Take a multivitamin like Geritol Tablets to increase your vitamin intake. 100% RDA of the essential vitamins is the minimum you need. Ideally you want somewhere above the minimum and the upper limit. More is better. Celiac Disease can cause malnutrition which will hamper your effort to heal. Consider extra vitamin D, Thiamine and Choline. A shame they did not do a Celiac Biopsy or blood tests beforehand, but 10 years is common before the celiac disease diagnosis is found.

Scott Adams Grand Master

I've not heard of volvulus being linked to celiac disease, but it would not surprise me at all if a study were to come out that showed a link. I agree...get tested for celiac disease before starting a gluten-free diet. More on volvulus:

https://www.medicalnewstoday.com/articles/321479 

PS - others have posted here before about it:

https://www.celiac.com/search/?q=volvulus&quick=1

ViolaRose Rookie

Other conditions can be related especially    stomach conditions. Celiac is known as a disease that hides because it can mimic so many other things. But you can also have those conditions and not have celiac.

how were you diagnosed with the intestinal issues if you don’t mind me asking? I’ve had extra pain lately and I’m wondering if something new is wrong. 

 

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    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
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      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
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