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CELIAC DISEASES VS. BLOCKAGES IN SMALL INTESTINES


PATTYABER

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PATTYABER Newbie

I recently read an article where celiac disease can cause a condition usually in children where the small intestines "flops over" causing a blockage in the small intestines.  It can also occur in teens and rarely in adults.  I haven't been tested yet but have an appointment next month with my gastroenterologist.  I did the 23 and me DNA testing a few years ago and am always getting updates.  I received one the other day that said I had the variants for celiac disease.  I felt for the first time that might explain the problems I have been having for years.  The pain, bloating, nausea, bowel issues, etc. and this past year I had an intestinal blockage in July that required extensive surgery and another surgery in December for a twisting of my small intestines that required a colon resection.  I was wondering if these issues could be related if it turns out I do have celiac disease.  


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Wheatwacked Veteran
1 hour ago, PATTYABER said:

surgery in December for a twisting of my small intestines that required a colon resection.

My dad had that when he was 84. He had to have a colonoscopy after because his intestines were like lace. Funny, all the research I did when my brother had a stoma from intestine to bladder fixed indicated a high success rate for the operation. Intestinal surgery has a high survival and success. So why do such a large number of people with one surgery often require additional surgeries?

Do not mess with this! Your long-term symptoms fit Celiac Disease and you have the genes. Get a Celiac Panel done if you can before starting a gluten free diet. Do not delay. It does not matter if it is non-Celiac wheat/gluten sensitivity or Celiac disease. Take a multivitamin like Geritol Tablets to increase your vitamin intake. 100% RDA of the essential vitamins is the minimum you need. Ideally you want somewhere above the minimum and the upper limit. More is better. Celiac Disease can cause malnutrition which will hamper your effort to heal. Consider extra vitamin D, Thiamine and Choline. A shame they did not do a Celiac Biopsy or blood tests beforehand, but 10 years is common before the celiac disease diagnosis is found.

Scott Adams Grand Master

I've not heard of volvulus being linked to celiac disease, but it would not surprise me at all if a study were to come out that showed a link. I agree...get tested for celiac disease before starting a gluten-free diet. More on volvulus:

https://www.medicalnewstoday.com/articles/321479 

PS - others have posted here before about it:

https://www.celiac.com/search/?q=volvulus&quick=1

ViolaRose Rookie

Other conditions can be related especially    stomach conditions. Celiac is known as a disease that hides because it can mimic so many other things. But you can also have those conditions and not have celiac.

how were you diagnosed with the intestinal issues if you don’t mind me asking? I’ve had extra pain lately and I’m wondering if something new is wrong. 

 

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    • trents
      Welcome to the community @MCAyr! One thing you need to know is that in order for celiac disease diagnostic testing to be valid, you must not have been on a gluten-free diet already. The first stage of celiac disease testing involves looking for the blood antibodies that are produced by the inflammation in the small bowel lining. Once you eliminate gluten, the antibodies begin to disappear and it takes weeks or months of being back on normal amounts of gluten for them to build up to detectable levels again.
    • MCAyr
      Hi currently being investigated for celiac; suspected dermatitis herpetiformis, low calcium and vit D, stomach discomfort and 2 episodes of awful stomach pain (docs think maybe triggered by pregnancy)  Went gluten-free for 5 weeks was feeling great then last week accidentally had some in a sweet! Followed by 2 days of absolute hell and excruciating stomach pain and cramping below right of belly button. Since then the really bad pain has gone, but I've had sore to touch above my belly button and think I can feel a lump, was painful for a couple of days to point I couldn't sleep on sides. Docs palpated few days before I could feel lump, and felt nothing.  Anyone had a hernia they didn't know about until their gluten reaction inflamed it? Or is this just another lovely gluten sensitivity symptom?  Many thanks 
    • Scott Adams
      Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed. To answer your core question: yes, living in a environment with significant, constant gluten exposure, especially from airborne flour in a home where milling and baking occurred, would have created a perpetual state of autoimmune activation for you, even beyond the direct ingestion. This chronic exposure is strongly linked to the development and exacerbation of the very autoimmune disorders you describe—Migraines, Meniere's, Hashimoto's, and more. Your body was under constant attack, and the lack of care and understanding from your family compound that trauma significantly. It is not your fault. Many in the community share similar stories of a cascade of illnesses finally explained by a celiac diagnosis, often coming too late to prevent irreversible damage. While I cannot speak to the legal aspects of your inheritance situation, your experience with the medical neglect and the lasting impact of your childhood environment is deeply valid and shared by others who understand this unique type of suffering. Thank you for having the courage to share your truth. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out" to "empowered choice." Instead of "you can't have that," use language like "we choose these safe foods so your tummy feels happy and strong." Involve her directly in her own care; let her be the "Gluten-Free Detective" at the grocery store, picking out exciting new treats, or make her the head chef in baking a special dessert that everyone gets to enjoy. When eating out, empower her by having her call the restaurant ahead to ask about safe options (with your help), making her feel in control rather than a passive victim. Acknowledge her feelings—"It's okay to feel sad that you can't have the roll, I sometimes feel that way too"—and then immediately pivot to a positive action, like unwrapping the special brownie you brought just for her. This combination of validation, involvement, and reframing turns a limitation into a shared family challenge where she feels supported, capable, and loved.
    • Scott Adams
      I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free.
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