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Celiac and pregnancy


Caite-Aynes

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Caite-Aynes Newbie

I have been told by my nutritionist that I most likely have Celiac, after I cut out all gluten a month ago on a whim to try to lose weight. I have been lactose intolerant since I can remember, always fatigued, anemic, bloated and was diagnosed with IBS as a teen. Well after that conversation everything started clicking. I've also had multiple miscarriages with no determinable reason (4 pregnancies and 1 living child.) I just found out today that I am pregnant. I am trying not to panic and am determined to stick to the Celiac lifestyle to keep myself and my baby healthy. The problem is that I haven't been officially tested yet. I don't know what this means for me or my pregnancy yet. I'm in unknown territory and more than a little worried. 

 


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Wheatwacked Veteran

Congratulation. If you count a trial GFD you know. You can get tested afterward. Make sure you get enough folate, choline, iodine in addition to the other B vitamins.

Iodine and fertility: do we know enough?

Choline-what it is, and why it's as important in pregnancy as Folate

 A recent study found women taking 4,000 IU of vitamin D daily had the greatest benefits in preventing preterm labor/births and infections. Why do I need Vitamin D during pregnancy?

plumbago Experienced

Never undertake a gluten challenge when pregnant.

If not pregnant, the Celiac Disease Foundation recommends the following: "If you are currently on a gluten-free diet, your physician may recommend a gluten challenge to allow antibodies to build in your bloodstream prior to testing. NASPGHAN recommends eating roughly 2 servings of gluten, equivalent to 2 slices of wheat-based bread, daily for 6-8 weeks prior to testing.

--but again--

"A gluten challenge is not recommended before the age of 5 or during puberty. Never undertake a gluten challenge when pregnant."

When was the last time you were eating gluten? If it's relatively recently, you might just try the blood tests anyway. The only other thing I can think of at the moment is a genetic test, but that's likely fairly complicated and expensive. In any event, talk to your doctor to see what she or he advises.

And congratulations! 🎈😃❤️

Caite-Aynes Newbie

A few weeks ago I had some gluten (gold fish crackers are still a weakness) but I had some GI issues immediately after so I've stayed the heck away. I may just get it done after I have my DL to play it safe. 

Caite-Aynes Newbie

I think I can get that from a good quality prenatal vitamin, but ai wonder if I need to supplement even more because of a lot of the deficiencies a GFD can have in those vitamins and minerals. Luckily I go to my GP in a few days for my weight loss weigh in so I will have an opportunity to ask her.

trents Grand Master

Are you on prenatal vitamins? Celiac disease typically creates vitamin and mineral deficiencies because of the damage done to the lining ("villi") of the small bowel where all nutrition is absorbed. I wold certainly make sure you are on a folate supplement to guard against neural tube defects in the womb as your baby develops. And as others have said, B vitamins and D3 are very important. Make sure all your supplements are gluten free. Wheat starch is sometimes used in pills as a filler.

Caite-Aynes Newbie
1 minute ago, trents said:

Are you on prenatal vitamins? Celiac disease typically creates vitamin and mineral deficiencies because of the damage done to the lining ("villi") of the small bowel where all nutrition is absorbed. I wold certainly make sure you are on a folate supplement to guard against neural tube defects in the womb as your baby develops. And as others have said, B vitamins and D3 are very important. Make sure all your supplements are gluten free. Wheat starch is sometimes used in pills as a filler.

I just found out a few hours ago, definitely picking some up in the AM where I am at. I have D3, zinc, and Omega complex until then, I'm definitely going to consult my DR in a few days since I have an appointment that was unrelated to this in a few days


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knitty kitty Grand Master

You may want to wait until after your doctor appointment to start taking vitamins.  

Your doctor may want to do blood tests for deficiencies.  Taking a vitamin supplement before the test may mask any deficiencies you actually have.  The blood tests for vitamin deficiencies would reflect the increased levels in your blood from the vitamin supplements.  

Vitamin deficiency symptoms can occur before a deficiency is seen in the blood work.  

For vitamin deficiency tests, don't take vitamin supplements beforehand.  

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  • Posts

    • Fabrizio
      So? What do you think it will go ahead? Did you partecipate to this trial? what's the result for yuo? Thanks a lot for your answers!
    • trents
      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
    • Rebeccaj
      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
    • knitty kitty
      Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies.  Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine.  Vitamins are needed to break down histamine released from immune cells like mast cells that get over stimulated and produce histamine at the least provocation as part of the immune response to gluten. This can last even after gluten exposure is ended.  Thiamine supplementation helps calm the mast cells.  Vitamin D helps calm the immune system.  Other B vitamins and minerals are needed to correct the nutritional deficiencies that developed while the villi were damaged and not able to absorb nutrients.  The villi need vitamins and minerals to repair themselves and grow new villi. Focus on eating a nutritional dense, low inflammation diet, like the Autoimmune Protocol Diet, and supplementing to correct dietary deficiencies.  Once your body has the vitamins and minerals needed, the body can begin healing itself.  You can have nutritional deficiencies even if blood tests say you have "normal" blood levels of vitamins.  Blood is a transport system carrying vitamins from the digestive system to organs and tissues.  Vitamins are used inside cells where they cannot be measured.   Please discuss with your doctor and dietician supplementing vitamins and minerals while trying to heal.  
    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
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