Waiting for biopsy result

[Oliverg]

Hi I had a positive result through the blood test for celaic . Had a endoscopy last night they took a biopsy . The nurse said I have a follow up on 3 weeks time for the result 9th June. But the gastro consultant disappeared and didn't get to ask him any questions. Can I start going gluten free now or do I have to wait. Just feel like the whole process of this you don't get answers or help just expected to sit and wait and find this forum alot more useful then the docs.

 

thanks 

[Scott Adams]

Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. 

Free free to share your blood test results if you have those, along with the reference ranges.

I assume you have symptoms, which likely led to you getting the tests done, and that your hope is that a gluten-free diet will provide you with relief. If you go gluten-free and you do see relief it would mean that, at the very least, you have non-celiac gluten sensitivity (there are no tests for this), and if your blood test results OR your biopsy are positive for celiac disease, would likely confirm a celiac disease diagnosis.

[Oliverg]

14 hours ago, Scott Adams said:

Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. 

Free free to share your blood test results if you have those, along with the reference ranges.

I assume you have symptoms, which likely led to you getting the tests done, and that your hope is that a gluten-free diet will provide you with relief. If you go gluten-free and you do see relief it would mean that, at the very least, you have non-celiac gluten sensitivity (there are no tests for this), and if your blood test results OR your biopsy are positive for celiac disease, would likely confirm a celiac disease diagnosis.

Hi thanks for the reply the doctor said on the blood test I was a high positive for ttg iga he was normal range is considered between 1-10 and a high is 40. He said mine come back at 262. I have symptoms migraines, diarrhoea, dizziness, stomach cramps, fatigue , acid reflux axienty and depression, mouth ulcers and tongue ulcers. I have noise and light sensitivity and ear fullness wether those last symptoms I mentioned are to do with celiac. I have an Aunty and uncle ( brother and sister ) and 2 cousins and also my sister who is celiac. My aunt and sister said they had an endoscope and got the results straight away. They said I got to wait 3 weeks for mine which was making me think wether the blood test was wrong and I don't have celiac. I have had these symptoms for around 12 weeks so maybe i have caught it early with my family saying it sounds like you got celiac so get tested and there is no damage to the intestine as of yet? The gastro done 6 biopsies and found 2 dunodenal ulcers and acid in the stomach. Been prescribed PPI for 6 weeks. Heliobactor pylori was negative. Also been tested for crohns as my brother has this and that come back negative thankfully.

 

feel like I'm going out of mind.

 

thanks

[Scott Adams]

Given your symptoms, family history, and incredibly high ttg score, it’s best to go gluten-free. They are now diagnosing celiac disease with blood tests alone if your score is 5-10x the leve for celiac disease: