Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting for biopsy result

Oliverg
 Share

Recommended Posts

Oliverg Rookie
Oliverg
Posted

Hi I had a positive result through the blood test for celaic . Had a endoscopy last night they took a biopsy . The nurse said I have a follow up on 3 weeks time for the result 9th June. But the gastro consultant disappeared and didn't get to ask him any questions. Can I start going gluten free now or do I have to wait. Just feel like the whole process of this you don't get answers or help just expected to sit and wait and find this forum alot more useful then the docs.

 

thanks 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. 

Free free to share your blood test results if you have those, along with the reference ranges.

I assume you have symptoms, which likely led to you getting the tests done, and that your hope is that a gluten-free diet will provide you with relief. If you go gluten-free and you do see relief it would mean that, at the very least, you have non-celiac gluten sensitivity (there are no tests for this), and if your blood test results OR your biopsy are positive for celiac disease, would likely confirm a celiac disease diagnosis.

Oliverg Rookie
Oliverg
Posted
  • Author
14 hours ago, Scott Adams said:

Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. 

Free free to share your blood test results if you have those, along with the reference ranges.

I assume you have symptoms, which likely led to you getting the tests done, and that your hope is that a gluten-free diet will provide you with relief. If you go gluten-free and you do see relief it would mean that, at the very least, you have non-celiac gluten sensitivity (there are no tests for this), and if your blood test results OR your biopsy are positive for celiac disease, would likely confirm a celiac disease diagnosis.

Hi thanks for the reply the doctor said on the blood test I was a high positive for ttg iga he was normal range is considered between 1-10 and a high is 40. He said mine come back at 262. I have symptoms migraines, diarrhoea, dizziness, stomach cramps, fatigue , acid reflux axienty and depression, mouth ulcers and tongue ulcers. I have noise and light sensitivity and ear fullness wether those last symptoms I mentioned are to do with celiac. I have an Aunty and uncle ( brother and sister ) and 2 cousins and also my sister who is celiac. My aunt and sister said they had an endoscope and got the results straight away. They said I got to wait 3 weeks for mine which was making me think wether the blood test was wrong and I don't have celiac. I have had these symptoms for around 12 weeks so maybe i have caught it early with my family saying it sounds like you got celiac so get tested and there is no damage to the intestine as of yet? The gastro done 6 biopsies and found 2 dunodenal ulcers and acid in the stomach. Been prescribed PPI for 6 weeks. Heliobactor pylori was negative. Also been tested for crohns as my brother has this and that come back negative thankfully.

 

feel like I'm going out of mind.

 

thanks

Scott Adams Grand Master
Scott Adams
Posted

Given your symptoms, family history, and incredibly high ttg score, it’s best to go gluten-free. They are now diagnosing celiac disease with blood tests alone if your score is 5-10x the leve for celiac disease:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.