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Gluten challenge, how to ease the pain?


Lilyofthevaley

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Lilyofthevaley Newbie

After years of feeling unwell I decided to go gluten free for 12 days and it helped me a lot. The intestinal issues were almost non existent. 
Now I had to go back to gluten for 2 weeks as the doctor asked me to make my blood tests. I have 9 more days to go and I feel so miserable.

The pains in my back are killing me and the sharp random pains on my tummy came back again, not to mention the several trips to the toilet and no energy.

Is there something I can do to ease the pain?

  • 2 weeks later...

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Scott Adams Grand Master

Welcome to the forum, and I'm sorry to hear you're feeling badly on a gluten-challenge.

I have some good news and some bad news. The good news is that you've clearly linked your symptoms with eating gluten, so you're half way there. The bad news is that for a celiac disease blood test to be accurate you need to be eating around 2 slices of wheat bread per day for about 6-8 weeks, at least according to the Mayo clinic and most experts, and 2 weeks before an endoscopy/biopsy, which your doctor my order if you have a positive blood test:

 You may wish to contact your doctor and discuss this with them, as it would be a big waste of time and suffering if you don't get this right the first time.

Last, keep in mind that there is something called non-celiac gluten sensitivity, which around 10x more people than celiac disease have, and unfortunately there is no test yet for it. So, if you end up with a negative test for celiac disease, it sounds like you likely have NCGS.

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    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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