Celiac related ovarian failure

[Wise1]

Hi, I haven’t been diagnosed with celiac yet. I have all the symptoms and it runs in my family, so there’s no doubt in my mind that I have it. I typically follow a gluten free diet. However, recently whenever I accidentally eat gluten I start cramping. I did a quick Google search and found that celiac can cause ovarian failure and result in infertility. No one else in my family has had this happen to them, so I’m wondering if anyone here has experienced this? If so, what did you do about it?

[trents]

Welcome to the forum, Wise1!

First, is there a reason you haven't been tested for celiac disease when it runs in your family? Please be aware that you would need to be eating gluten daily (equivalent of two slices of wheat bread) for 6-8 weeks if you ever go in for testing.

On the other hand, if you are convinced enough that you have celiac disease such that you don't feel a need to get tested, you need to make a serious commitment to eliminating gluten from your life. Sounds like you still indulge at times. I cannot comment on your ovary question but if you totally eliminate gluten from your life and the pain goes away then maybe you have your answer.

[Wise1]

Just now, trents said:

Welcome to the forum, Wise1!

First, is there a reason you haven't been tested for celiac disease when it runs in your family? Please be aware that you would need to be eating gluten daily (equivalent of two slices of wheat bread) for 6-8 weeks if you ever go in for testing.

On the other hand, if you are convinced enough that you have celiac disease such that you don't feel a need to get tested, you need to make a serious commitment to eliminating gluten from your life. Sounds like you still indulge at times. I cannot comment on your ovary question but if you totally eliminate gluten from your life and the pain goes away then maybe you have your answer.

I try to follow a strictly gluten free diet. I have problems with cross contamination and knowing which restaurants are okay to eat at. 

[trents]

Eating out will always present danger since you have no control over how the food is prepared and handled back in the kitchen. Avoid eating out if at all possible.  Studies have shown it is the number 1 underminer of gluten free eating.

Edited June 26, 2022 by trents

[Wheatwacked]

6 hours ago, Wise1 said:

that celiac can cause ovarian failure and result in infertility.

Yours is not necessarily ovarian, though it is good to be aware. If it is ovarian it could be deficiency of iodine, choline or folate, B12, B6,  common in child bearing age women and they are amoung the 20 or so nutrients absorbed (or not) by the small intestine. Definately see a gynocologist to rule out endometriosis and ovarian cancer.

dietary deficiencies + malabsorbtion = not good

Yet another reason to check vitamin D blood levels

"Low levels of vitamin D are associated with ovulation problems and an increased risk of endometriosis. " https://www.verywellfamily.com/vitamins-for-fertility-what-should-you-be-taking-4140655#:~:text=Low levels of vitamin D,be vital to healthy fertility.