Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Morning poop


HayleyR

Recommended Posts

HayleyR Newbie

Hello all, I'm new here and I'm really just looking for some support! I've had problems with my poop for a while now but honestly just ignored them as really they didn't bother me that much, but I recently I realised that it's not normal! I think I have a sensitivity to lactose which I cut down several month ago but have allowed dairy to sneak back in my diet... but I'm not sure about gluten as well.  Each morning I wake and have a fairly normal if soft poop but it floats, followed later... 30 mins or an hour... by a more or less liquid poop sometimes explosive. I don't go again then until it repeats the next day, I don't have cramping but an urgency to go... I stopped eating gluten for a few days and my poop now sinks rather than floats but I still get the second diarrhea. Is this a symptom anyone else has had and how long until the liquid poop stopped, I think gluten free means less fibre so should I take a supplement... I am anxious basically, waking each morning waiting for a normal bowel movement... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeFrizz Rookie

Hi Hayley!

First let me say, I feel your frustration. I was having almost the exact same BM pattern when I was first diagnosed 18 months ago, complete with the classic yellowish narrow stools. My GI and PCP told me that my intestines were so damaged (initial TTG level was 121- yeep!) food was basically going in one end and out the other.

Here are a couple things that have helped for me!

1) Much as it stinks (no pun intended), you may need to eliminate dairy OR switch to lactose-free or Lactaid products. I take a dose of Lactaid with every meal that contains dairy, and my husband and I have converted almost everything in our fridge to Lactaid (milk, sour cream), Lactose-free (creamer), or naturally lactose-free (Cabot makes some cheeses that are naturally lactose free!). This transition has done a lot to help my digestive health and general "Ugh" feelings.

2) When I was diagnosed, my GI recommended I start taking Citrucel caplets (the caplets specifically, not the powder) to help with the IBS-like symptoms I was presenting with. They've done WONDERS for my digestive health in the last 18 months... on the inverse, I definitely feel it when I forget to take them. That might be a good option for you? 

3) don't be afraid to talk poop with your doctor! My GI jokes that he's VERY interested in his patient's poop, because it can tell you a LOT about someone's health. See if talking to them about your troubles leads to some recommendations!

 

Hope this helps, and I hope you feel better!

Wheatwacked Veteran
6 hours ago, HayleyR said:

I stopped eating gluten for a few days and my poop now sinks rather than floats

6 hours ago, HayleyR said:

I think gluten free means less fibre so should I take a supplement...

Hi @HayleyR. Welcome to Celiac.com. Firstly, in just a few days you have proven to yourself that eating gluten is not good for you. It took some of us years to get to this point. Gluten is not really a great source of fiber. Here is a link to Mayo Clinic list of high fiber foods. Chart of high-fiber foods. A cup of cooked spaghetti has 6 grams of fiber and little other nutrition while a cup of cooked lentils has 15.5 grams of fiber and is a good source of protein.

If you need an official diagnosis, now is the time before starting a gluten free diet because once you take away gluten you will start to heal and the testing results are more accurate the sicker you are.

If you stick to the foods on this website Products allowed/disallowed in the Gluten Contamination Elimination Diet (GCED), targeting the elimination of gluten cross-contamination it will speed up your recovery. Also, get as much vitamin D as you can, it attenuates the autoimmune system. The role of vitamin D in autoimmune diseases. A lifeguard in summer measures around 80 ng/ml blood plasma vitamin D. Doctors are taught that greater than 30 ng/ml, the amount required to protect children from Rickets, is sufficient. They are wrong. 

 Vitamin D Is Not as Toxic as Was Once Thought: "The historical underpinnings of contemporary perspectives on vitamin D toxicity are rarely appreciated, but the concept that vitamin D is one of the most toxic fat-soluble vitamins has been instilled in the psyche of health regulators and the medical community... Dudenkov et al also found that only 1 person with a serum 25(OH)D level of 364 ng/ mL had evidence of clinical toxicity"

 

trents Grand Master

HaleyR, it would be ideal if you were to actually get tested for celiac disease. There are antibodies that can be looked or for after a blood draw that indicated celiac disease if positive. Thing is though, you would need to go back on regular amounts of gluten for 6-8 weeks for the testing to be valid. Sounds like you are not digesting fat properly thus the floating stools. Dairy intolerance is very common with celiac disease. Cutting down on major sources of gluten is not hard but eliminating all gluten is much harder since it finds its way into food in many unexpected ways and many unexpected places. Eating out is one of the surest ways to get unexpected gluten contamination because of how handling practices in restaurant kitchens brings non gluten food into contact with gluten-containing food.

Celiac disease damages the villi that line the small bowel where most of the nutrition from the food we eat is absorbed. This damage almost always results in vitamin and mineral deficiencies over time.

Scott Adams Grand Master

Welcome to the forum!

I could not tell from your post whether or not you've:

1) Been diagnosed with celiac disease;

2) Are on a 100% gluten-free diet;

3) If the answer is yes to either, how long have you been gluten-free?

More info would be helpful.

Ginger38 Rising Star
17 hours ago, HayleyR said:

Hello all, I'm new here and I'm really just looking for some support! I've had problems with my poop for a while now but honestly just ignored them as really they didn't bother me that much, but I recently I realised that it's not normal! I think I have a sensitivity to lactose which I cut down several month ago but have allowed dairy to sneak back in my diet... but I'm not sure about gluten as well.  Each morning I wake and have a fairly normal if soft poop but it floats, followed later... 30 mins or an hour... by a more or less liquid poop sometimes explosive. I don't go again then until it repeats the next day, I don't have cramping but an urgency to go... I stopped eating gluten for a few days and my poop now sinks rather than floats but I still get the second diarrhea. Is this a symptom anyone else has had and how long until the liquid poop stopped, I think gluten free means less fibre so should I take a supplement... I am anxious basically, waking each morning waiting for a normal bowel movement... 

Your story sounds like mine. I had poop issues for years, had my gallbladder out and everything. I never thought it was normal but just learned to kind of live with it I guess. I later started having abdominal pain, nausea, reflux… all kinds of stuff. I was tested for celiac and had positive antibodies but was told I didn’t have celiac. It’s been a confusing roller coaster ride since. My poop is almost always yellow orange color, sometimes explosive with urgency that sometimes causes accidents. It’s not formed and floats. It’s extremely stinky and sometimes I have mucous as well. 

The longest I have been successfully gluten free was about 4 Months and I did notice some improvement in my stools, not completely resolved but definitely an improvement. 

I don’t know what to really recommend because I am still trying to figure out my own stuff but wanted to let you know my experience 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.