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Diagnosed via blood test 1 year ago randomly having symptoms again while strictly gluten free?

Meghan255
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Meghan255 Newbie
Meghan255
Posted

Hi! 
I was diagnosed via bloodwork a year ago with celiac, going gluten free definitely cleared up a lot of my symptoms (nausea after gluten meals, loose floating stools, rank gas). Had random bouts of upset tummy (possibly glutened a few times). Really tightened down my diet decided to try a few probiotics to get back to my pre-celiac regularity because I never got back to perfectly normal bowels after diagnosis. After the last probiotic I quit taking my stomach has been off! Lots of rumbling, gas, and even diarrhea again. Messaged my doctor and he told me to take align probiotic. I’m one week into it and seeing minimal improvement. It couldn’t be gluten upsetting my stomach so what gives? I’ve explored the possibility of SIBO? Just not sure why I’ve never leveled off after diagnosis and completely cutting out gluten? Ugh! Any other diagnosed celiacs still having trouble after going gluten free? Could it be IBS on top of celiac? I’ve eliminated dairy before and it doesn’t seem to help? So I don’t believe I have a lactose issue? 

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trents Grand Master
trents
Posted

Welcome to the forum, Meghan255!

IBS is more common in the celiac population than in the general population. So, it's a possibility.

There's also the possibility that you have developed additional food intolerances and it can be almost almost anything, though the most common are dairy and oats (even glute free oats). 

Have you checked all the labels of the processed and canned goods in your pantry lately. Food companies can and do change formulations such that what used to be gluten-free is no more. What about supplements and meds? Wheat starch can be used as a filler in pills.

Are you intimate with someone who is still consuming gluten? Kissing can "gluten" the celiac if the other party has consumed gluten close to the time of the mouth to mouth contact.

knitty kitty Grand Master
knitty kitty
Posted

@Meghan255,

Welcome to the forum!

Could you please tell us what you include in your diet?

Do you include dairy? 

Do you eat Gluten free facsimile foods (cookies, bread, processed packaged foods)?

Do you eat nightshades (tomatoes, potatoes, eggplant, and peppers)?

Are you vegetarian?

Thanks!

Scott Adams Grand Master
Scott Adams
Posted

This article may be helpful, and if you eat in restaurant, even from a gluten-free menu, cross contamination is still likely:

 

MADMOM Community Regular
MADMOM
Posted
On 7/25/2022 at 3:58 PM, Meghan255 said:

Hi! 
I was diagnosed via bloodwork a year ago with celiac, going gluten free definitely cleared up a lot of my symptoms (nausea after gluten meals, loose floating stools, rank gas). Had random bouts of upset tummy (possibly glutened a few times). Really tightened down my diet decided to try a few probiotics to get back to my pre-celiac regularity because I never got back to perfectly normal bowels after diagnosis. After the last probiotic I quit taking my stomach has been off! Lots of rumbling, gas, and even diarrhea again. Messaged my doctor and he told me to take align probiotic. I’m one week into it and seeing minimal improvement. It couldn’t be gluten upsetting my stomach so what gives? I’ve explored the possibility of SIBO? Just not sure why I’ve never leveled off after diagnosis and completely cutting out gluten? Ugh! Any other diagnosed celiacs still having trouble after going gluten free? Could it be IBS on top of celiac? I’ve eliminated dairy before and it doesn’t seem to help? So I don’t believe I have a lactose issue? 

i actually have been experiencing some GI issues this past 10 days on and off and i’ve been strictly gluten-free since jan of 2021- today for example i woke up with a slight rash on my mouth area and chin that settled down until dinner time when i felt the itchy crawly skin feeling again - i used several new facial products in last 2 days which may have caused it and i think my GI issues might be from having a bit too much lactose lately / which i generally don’t have - im hoping it will clear up and i will get back to normal - i may have gotten intolerant to lactose - 

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