Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lessions on colon

Nancie

By Nancie
in Related Issues & Disorders

 Share

Recommended Posts

Nancie Apprentice
Nancie
Posted

They have found lessions on my colon 3 years ago and found more when I had my colonoscopy, Is this common with celiac disease ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Nancie!

Celiac disease damages the villi that line the small bowel, the section of the intestines just below the stomach. The colon is on the far end. Celiac disease would not be detected by a colonoscopy but rather an endoscopy. Endoscopies enter the scope from the mouth, go down through the esophagus, the stomach and into the small bowel. Colonoscopies can't reach up that far from the other end.

Nancie Apprentice
Nancie
Posted
  • Author

They  thought I had 19 ployops when r they had done my colonoscopy , I went to the Cleveland clinic thinking I was to get the pollops removed when they went in to remove them they had found lessions on both sides of my colon . They biopsy the lessions and came up with the diagnosis of benign lymphatic colitis . I had another colonoscopy this June they had noticed I had more lessions . I started to read up on celiac disease because someone I know knew of a person who  had lessions on their colon and didn’t absorb nutrients as I have that issue and they were diagnosed with celiac disease I have most of the other symptoms as well , I also have diverticulitis also . 

trents Grand Master
trents
Posted

So, you haven't yet been tested for celiac disease. Correct?

The incidence of other intestinal diseases such as Crohn's, IBS and (not sure) colitis is higher in the celiac population than in the general population. Autoimmune disorders tend to cluster.

Nancie Apprentice
Nancie
Posted
  • Author

I have not I emailed my digestive dr at the Cleveland clinic and requested I want to be tested. It’s very frustrating I can not find a local digestive Dr that wants to take me as a patient because they are all baffled by the lessions on my colon . 

Nancie Apprentice
Nancie
Posted
  • Author

I live in Ft myers Fla if anyone lives in this area that may know a Digestive Dr that won’t turn me away  please let me know . It’s hard for me to continue to see my digestive dr at the Cleveland clinic he is in Weston Fla which is two hours away I’m looking to have a local digestive Dr also .

trents Grand Master
trents
Posted
(edited)

You can order a home celiac test kit from Imaware for about $100. You take a blood sample via finger prick and send it off. But whatever you do, don't begin the gluten free diet before all testing is complete. It would invalidate the testing.

Edited by trents
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancie Apprentice
Nancie
Posted
  • Author
47 minutes ago, trents said:

You can order a home celiac test kit from Imaware for about $100. You take a blood sample via finger prick and send it off. But whatever you do, don't begin the gluten free diet before all testing is complete. It would invalidate the testing.

 

Thank you for that information do you send the test off to a lab or to your Dr?

trents Grand Master
trents
Posted
(edited)

I think you send it back to Imaware or whoever produces the kit. There are other companies besides Imaware that offer these but Imaware is the most well known. So, I am assuming the cost of the lab work is included in the price of the kit.

Edited by trents
Nancie Apprentice
Nancie
Posted
  • Author

I did find a home kit the cost was only 15.00$ . I do have another question is it common to feel dizzy and off balance with celiac disease ?

trents Grand Master
trents
Posted
2 hours ago, Nancie said:

I did find a home kit the cost was only 15.00$ . I do have another question is it common to feel dizzy and off balance with celiac disease ?

Yes, that could be a neurological manifestation of celiac disease or of NCGS. Not uncommon.

Nancie Apprentice
Nancie
Posted
  • Author

I had scans if my head due to the dizziness and off balance to rule out anything else .

Nancie Apprentice
Nancie
Posted
  • Author
30 minutes ago, Nancie said:

I had scans if my head due to the dizziness and off balance to rule out anything else .

They sent me to physical therapy because of my balance issues and I have a horrible gait when I walk 

RMJ Mentor
RMJ
Posted

Here is a recent paper (2022) on the association between microscopic colitis and celiac disease.  (Lymphocytic colitis is a type of microscopic colitis). 

Association between microscopic colitis and celiac disease

Nancie Apprentice
Nancie
Posted
  • Author

That’s what they had diagnosed me with 2 years ago . Benign Lymphatic colitis . Is it the same as celiac ? Should I still get tested for celiac disease ? I have all the symptoms that I had read about.

Nancie Apprentice
Nancie
Posted
  • Author

I had just read more information so they are the same diseases ? They never really treated me they had put me on steroids but didn’t see any changes . I have experience the itchy skin dry patches on my arms and hands and legs . I do have alot of fatigue I’m allways dizzy and have had balance issues for several years and terrible gait .

trents Grand Master
trents
Posted

No, benign lymphatic colitis is not the same as celiac disease at all. Celiac disease affects the small intestine, right below the stomach. The colon is on the other end.

RMJ Mentor
RMJ
Posted

They are NOT at all the same disease.  But people with one of them are more likely to have the other.

Nancie Apprentice
Nancie
Posted
  • Author
19 minutes ago, RMJ said:

They are NOT at all the same disease.  But people with one of them are more likely to have the other.

So why do I have all these symptoms of celiac disease I guess my question is could it be a possibility that I should get tested even though I was diagnosed with lymphatic colitis ?

trents Grand Master
trents
Posted
9 minutes ago, Nancie said:

So why do I have all these symptoms of celiac disease I guess my question is could it be a possibility that I should get tested even though I was diagnosed with lymphatic colitis ?

Maybe you have both. As both RMJ and myself mentioned, there is a statistical correlation between celiac disease and other bowel diseases. With your symptoms I certainly would recommend getting tested for celiac disease and I would recommend asking for a full celiac panel and not just the tTG-IGA test many doctors order.

Nancie Apprentice
Nancie
Posted
  • Author

What is the difference in the 2 tests ? 

trents Grand Master
trents
Posted

A full celiac panel looks at a number of different antibodies that could be produced by celiac disease and not just one (the tTG-IGA). The tTG-IGA is considered to be the single best test for detecting the inflammation of the small bowel lining characteristic of celiac disease. It combines good sensitivity with good specificity but some people's immune response is atypical and is missed by the tTG-IGA. The inflammation can sometimes be detected by other antibody tests that the tTG-IGA misses. Many primary care docs don't know much about celiac disease and how to test for it so they order testing that is less than thorough. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

An upper GI with biopsy of the small bowel lining can also be used to check for celiac disease. It is important to be eating significant amounts of gluten for about two months leading up to the antibody testing and for at least two weeks leading up to the endoscopy/biopsy. Many make the mistake of going gluten free before testing and so invalidate the results.

Nancie Apprentice
Nancie
Posted
  • Author

Thank you for all the information I did email my Sr Friday requesting to be tested hopefully he will  send an order for the test . 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,523
    • Most Online (within 30 mins)
      7,748
    oahulover15
    Newest Member
    oahulover15
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Feeling ill

      By knitty kitty · Posted

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By Scott Adams · Posted

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      Feeling ill

      By Scott Adams · Posted

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • JA917
      How many grams is there in one slice of wheat bread?

      By JA917 · Posted

      If I'm not mistaken, you need to count by the grams of GLUTEN, not the gram weight of the bread.  So, instead of counting each slice of bread as 35 grams, it would be counted as 2 grams, so that's why the recommendation is 5 slices a day = 10 grams.  One of the moderators can correct me if I'm wrong on that!  
    • JA917
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By JA917 · Posted

      Question re: life/health insurance: if you're already under these policies, do you have to notify them if you receive an official diagnosis, or is that only for new policies?  I have had two active term life insurance policies for many years that I pay a set amount into.  And my employer covers my health insurance.  So, do I need to let them both know if I do become officially diagnosed?  I'm glad I read this, because that would certainly be marked off in the "disadvantage" box for me!
×
×
  • Create New...