Villi in stool

[Meisam]

Do you see a tiny parts of your villi in stool? Every time I don't follow the gluten-free diet the next day I will find parts of my intestine pooped out. They are like meaty part of tomato, red, varying in size (from specs to thumbnail size). 

 

P. S. I did not do my endoscopy but had blood test resulting in Ttg antibody that suggests celiac, and the doctor who saw the picture of my stool said it is mucus of my intestine.

[Meisam]

17 minutes ago, Meisam said:

Do you see a tiny parts of your villi in stool? Every time I don't follow the gluten-free diet the next day I will find parts of my intestine pooped out. They are like meaty part of tomato, red, varying in size (from specs to thumbnail size). 

 

P. S. I did not do my endoscopy but had blood test resulting in Ttg antibody that suggests celiac, and the doctor who saw the picture of my stool said it is mucus of my intestine.

https://ibb.co/J387nrv

[cristiana]

Hi Meisam

A warm welcome to the forum.

We certainly hear of mucus in stool, but I have never heard it described quite in the way you do i.e. red bits.  Hopefully someone else may be able to relate.

I think if I were you, I'd be inclined to see if an endoscopy and colonoscopy were possible, to check there was nothing else going on, such as colitis.  I know a former contributor who had mucus in his stool, and his issue was colitis. 

Cristiana

[Meisam]

1 minute ago, cristiana said:

Hi Meisam

A warm welcome to the forum.

We certainly hear of mucus in stool, but I have never heard it described quite in the way you do i.e. red bits.  Hopefully someone else may be able to relate.

I think if I were you, I'd be inclined to see if an endoscopy and colonoscopy were possible, to check there was nothing else going on, such as colitis.  I know a former contributor who had mucus in his stool, and his issue was colitis. 

Cristiana

Thanks, 

I will. 

Here is the photo link:

https://ibb.co/J387nrv

[cristiana]

With anything like that, I think it is best to rule out other things.  Keep us posted, I hope both procedures go well.

[trents]

I don't think the villi are large enough to see with the naked eye. When the biopsy is sent in for evaluation to a lab it is microscopically examined for damage. Mucous could be tainted with blood or red-colored food like a tomato. When I have had mucous in my stool it is whitish. And I'm not sure that mucous equates with the villous lining. 

[Scott Adams]

I suppose your doctor could be right, but I doubt it is a part of your intestines, otherwise you'd likely be seeing lots of blood in your stool as well. To me it seems like a piece undigested tomato or other vegetable that may have passed very quicky through your system, which can happen when you have diarrhea. 

It seems a bit strange to me that your doctor would agree that it's part of your intestines, but not be very alarmed by this, and not want to do an endoscopy right away to see what is going on.

[Meisam]

On 8/16/2022 at 9:30 PM, Scott Adams said:

I suppose your doctor could be right, but I doubt it is a part of your intestines, otherwise you'd likely be seeing lots of blood in your stool as well. To me it seems like a piece undigested tomato or other vegetable that may have passed very quicky through your system, which can happen when you have diarrhea. 

It seems a bit strange to me that your doctor would agree that it's part of your intestines, but not be very alarmed by this, and not want to do an endoscopy right away to see what is going on.

Yes. It looks like tomato and by inspecting it you can assure that is not a tomato. Also I am going to see another doctor for biopsy. 

[cristiana]

You are very wise, Meisam.  It could be nothing, but so much better to err on the side of caution in this sort of situation.  I hope all goes well.

[trents]

An endoscopy will only examine the small bowel, the part of the intestines near the stomach outlet. It might be wise to seek a colonoscopy as well if the endoscopy doesn't reveal the cause of the red material in your stool.

But looking at the picture you supplied it doesn't look like mucous to me. Looks more like incompletely digested food like maybe a piece of bell pepper. But it's really hard to tell in a picture. Did you save the sample to show to the doctor?

Edited August 18, 2022 by trents

[cristiana]

I agree with Trents.  You may be able to have both investigations on the same day.  Definitely ask for both if the endoscopy doesn't show anything.

Edited August 18, 2022 by cristiana

[trents]

On 8/16/2022 at 4:37 AM, Meisam said:

Do you see a tiny parts of your villi in stool? Every time I don't follow the gluten-free diet the next day I will find parts of my intestine pooped out. They are like meaty part of tomato, red, varying in size (from specs to thumbnail size). 

 

P. S. I did not do my endoscopy but had blood test resulting in Ttg antibody that suggests celiac, and the doctor who saw the picture of my stool said it is mucus of my intestine.

How long ago were you diagnosed as celiac with the blood antibody test? If you have been on a gluten free diet for months or years then the villi should be healed or healing. Just thought I'd mention that in case the biopsy doesn't show the damaged villi characteristic of celiac disease.

[Meisam]

On 8/18/2022 at 6:26 PM, trents said:

An endoscopy will only examine the small bowel, the part of the intestines near the stomach outlet. It might be wise to seek a colonoscopy as well if the endoscopy doesn't reveal the cause of the red material in your stool.

But looking at the picture you supplied it doesn't look like mucous to me. Looks more like incompletely digested food like maybe a piece of bell pepper. But it's really hard to tell in a picture. Did you save the sample to show to the doctor?

Thanks. I will consider colonoscopy too and discuss it with my doctor. However, I only see these red little meaty parts after I consume gluten, which is odd. 

Unfortunately doctors in my country won't pay much attention to you and will spend less than 2 or 3 minutes with you during the visit. Hence, I couldn't get the whole answers since June (when I checked positive for tTg igG antibody). 

P. S.  I can assure you this is not pepper nor tomato. 

[Meisam]

On 8/18/2022 at 6:44 PM, trents said:

How long ago were you diagnosed as celiac with the blood antibody test? If you have been on a gluten free diet for months or years then the villi should be healed or healing. Just thought I'd mention that in case the biopsy doesn't show the damaged villi characteristic of celiac disease.

I was diagnosed (without biopsy) in June and went gluten-free since. I did not see these meaty little red parts during the gluten-free diet, although I did see them right after (1 day) using anything containing gluten. I have lost around 5-6 kg in weight. The pain in my belly usually occurs beneath my stomach. 

 

P. S. I checked negative for heliobactria. 

[Meisam]

I think there is a non-celiac gluten intolerance disease which is temporary and it may be something new and prevaling. I was diagnosed after I healed from Covid and the amount of tTg IgG in my blood test is 27 IU/ML which I think is not high or severe. 

[Scott Adams]

I don't think NCGS is temporary, and is likely a lifelong condition, although this hasn't been determined yet.

[trents]

6 hours ago, Meisam said:

I think there is a non-celiac gluten intolerance disease which is temporary and it may be something new and prevaling. I was diagnosed after I healed from Covid and the amount of tTg IgG in my blood test is 27 IU/ML which I think is not high or severe. 

Did you mean to type tTG-IGA? But what is the reference range used by that lab to determine negative vs. postive?