Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Questions

starlight1221

Recommended Posts

starlight1221 Newbie
starlight1221
Posted

I'm being tested for celiac on Monday, but this week has just been pure hell for me because of the waiting. I've definately got some GERD issues, and my mom has GERD and ulcers so it's kinda expected. Celiac doesn't run in my family, but I started to suspect celiac when I got heartburn to a piece of bread and now I'm in a panic. My mom doesn't think I have it, but I have a few celiac questions I can't find the answer to and answers might help to put this in better perspective for me.

-Are you more likely to get celiac-related heartburn if you eat something with wheat in the afternoon/evening, or is it a 24/7 problem? My heartburn/regurgitation never comes after I eat breakfast, only usually mid-afternoon/evening, and usually never when I'm falling asleep.

-I've had IBS since I was born. I had a colonoscopy a few years ago and diagnosed with true IBS because my large intenstinal walls were inflammed and I had no other large intestinal diseases (they didn't do celiac testing). Since celiac is a small-intestine thing, can celiac cause the large intestinal walls to become inflamed?

-Is it possible for someone with celiac to change to a diet of almost completely wheat products and have the IBS symptoms go away? Right now, everything I eat has a high wheat concentration (seriously, basicially if it doesn't say CONTAINS: WHEAT, I don't eat it) and my stomach has NEVER been better, aside from this blasted acid reflux issue I'm having.

-If you slip up and eat gluten, do you have the same reaction every time? Like, I have specific problems to specific foods, not just one general reaction. Heartburn to certain foods, gas to miniwheats, cramps to too many chocolate chip cookies (three is fine, 10 is not), and if I have a butter crust on pizza (not regular pizza, just the butter crust ones), I'm in the bathroom within 15 minutes, and (sorry TMI) once even found a whole tomato piece in the toliet. Since my whole diet is wheat, wouldn't I be having these symptoms 24/7?

The only reason I even suspect celiac is because of the bread issue....and it seems to only happen with burger buns or rolls, not white bread. I have poptarts every morning with no ill effects, and when I had Life cereal every morning before I got sick of it, I was even better.

Thank you so much for any answers you all can give me. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

I too have had reflux my entire life. I had surgery for it when I was 10. I found out about celiac because I was about to have a second surgery for reflux and decided to do more research.

Your questions are hard to answer. Symptoms are different for everyone. Since going gluten free my reflux is gone. However, if I eat something I shouldn't, I get reflux. It took about a month being gluten free before my reflux went away. Now that I'm feeling much better I notice reflux with other foods and I have started realizing I'm allergic to other things. I never knew that when I felt like I was refluxing everything.

For me I have mostly the same symptoms every time I'm glutened. The problem is, like I said above, I'm finding other things I can't tolerate. So, I may not feel well, and it may not feel like when I'm glutened, but it may be hard to tell what made me feel that way. Also, symptoms can be delayed so you might not be able to say this carrot made me feel this way. And, at a meal most people eat so many ingredients that it is hard to tell which one made you sick.

My experience has been that it takes a while for your system to heal for you to really figure out what symptoms are caused by what. If you are constantly eating wheat it doesn't mean you will be in the bathroom every 5 minutes. But, if you go off gluten for a few months and then get glutened, you may be in the bathroom all day.

My recommendation would be to try to go off gluten. Give it at least 2 weeks; that is how long it took me to figure out when I was glutened. I had to get better before I could figure out I was having a reaction. The gerd took a lot longer to get better, but I'm off all my medication (I was on aciphex twice a day) and doing great.

The blood tests aren't always accurate, so just keep that in mind. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...