Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lymph nodes


Gary Hamilton
Go to solution Solved by Scott Adams,

Recommended Posts

Gary Hamilton Apprentice

Having pain in most all lymph nodes. Does that mean cancer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tracy414 Explorer
On 12/2/2022 at 10:03 PM, Gary Hamilton said:

Having pain in most all limp nodes. Does that mean cancer?

Lymph nodes can be enlarged and tender for multiple reasons, included viral or bacterial infection. You did not provide much information, but either way, if you’re concerned, see a provider for work up. 

Gary Hamilton Apprentice

I went and had blood work done. I was having pain in most of them. And had that dermatitis herpaformas rash. Still do. But she said my white blood count and stuff was good. But one side on my neck got bigger. Plus night sweats and stuff. But she did give me some attibotics  to see if it would go down. I think it has some and on day 3. Does ciliac disease make your hurt all over in stomach back and limp nodes? Thank you for replying.

Scott Adams Grand Master

Others have reported this symptom:

https://www.celiac.com/search/?q=lymph nodes&quick=1

be sure to discuss it with your doctor, and high dose thiamine may help:

 

  • 2 weeks later...
Gary Hamilton Apprentice

Does anyone have know energy and limp nodes hurting in certain places? One on neck gets notice able then goes down and back. Then in groin mostly pains around neck. I have the rash DH but just eating gluten free hasn’t cleared up all the way. Been buying gluten free frozen foods but shure it got salt in it. I wake up a lot in morning are night sick at stomach. Was having night sweats but they have stopped. Had my blood work done. Everything checked out good. So gave me some peace of mind on cancer. Only thing that gets rid of neasea is promethazine. Was bloated a lot and the xfaxin stopped that. Still wounding about shortness of breath and weight loss. Waiting to get in to a gastroenterologist to be scoped. Any answers will be helpful 

  • Solution
Scott Adams Grand Master

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Gary Hamilton Apprentice

Thank you for the advice. Yes the b3 thiamin helped with limp nodes and my dry eyes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gary Hamilton Apprentice
On 12/15/2022 at 4:50 PM, Scott Adams said:

So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this.

You lymph nodes could be swollen for many reasons, and you should discuss this with your doctor to eliminate anything like cancer or lymphoma, but did you read the link above and start taking Benfotiamine (thiamine B3) yet? It might help with your shortness of breath and other symptoms. A good vitamin B complex would be a good idea. 

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

  • 2 weeks later...
MADMOM Community Regular
On 12/25/2022 at 5:47 PM, Gary Hamilton said:

Yes the b3 did help. But still having pain every now in again in limp nodes. The night sweats got better to. But did have one last night. I go to doctor in 3 days. I did already have blood work at my regular doctor. And everything looked good. But I know that don’t tell you everything. Now just trusting the lord. But still on gluten free diet. I’ll see what gastroenterologist says Wednesday 

have you any updates on the lymph node pain?  i would assume it could be from gluten reaction and your body fighting it 

hoping eating clean fixed it 

please keep us posted 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,937
    • Most Online (within 30 mins)
      7,748

    VNelson
    Newest Member
    VNelson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
    • Scott Adams
      My mother has celiac disease and was diagnosed with Afib around 8 months ago. She's 81 and around 2 months ago had ablation therapy done, which is a very common procedure to treat this, and has been out of Afib 95% of the time since then. Apparently the full effects of this treatment don't kick in for 90 days, so the doctors expect her recovery to possibly reach 100%. Be sure to discuss this with your doctor.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.