Celiac Crisis ???

[Rhondajb1]

Can dehydration from diarrhea cause Celiac Crisis??

It started with severe unexplained diarrhea in AM. No fever, not Covid (tested). Then Nausea came on and a few hrs later intense tingling in hands up arms, fingers stiffened and could not move. Stomach pain (from diarrhea all day) slightly moved up to chest for a time. Lasted a few minutes. My head dropped, couldn’t keep it up and hard to talk and couldn’t walk. Was it a seizure? Condition slightly improved after a short time but was very sleepy and couldn’t keep eyes open. Dry mouth, very red sunken eyes, waves of heat and nausea and heavy feeling in limbs for hours. Felling like I dodged a bullet as I recovered without medical attention and now I’m reading if it was Celiac Crisis I could have died 😳

 

 

[plumbago]

It doesn't matter what caused it. If you are losing that much fluid and electrolytes, yes after a while it can be serious and you need to go to the emergency dept right away.

[Rhondajb1]

Yes Agreed. I could not think clearly at the time. We’ll never know. 

[cristiana]

Hi Ryondajb1 

Poor you, that sounds awful.  Do you know where gluten might have snuck in?

I must admit my last "proper" glutening - a piece of cake that was actually made with normal flour in error - was scarily dramatic.  Chills, feeling faint, could hardly stand up, vomiting, heart felt out of sync.   I dread the next time because I wonder if it could possibly be worse.   

I really sympathise and hope you feel a lot better soon.

Cristiana

[Rhondajb1]

35 minutes ago, cristiana said:

Hi Ryondajb1 

Poor you, that sounds awful.  Do you know where gluten might have snuck in?

I must admit my last "proper" glutening - a piece of cake that was actually made with normal flour in error - was scarily dramatic.  Chills, feeling faint, could hardly stand up, vomiting, heart felt out of sync.   I dread the next time because I wonder if it could possibly be worse.   

I really sympathise and hope you feel a lot better soon.

Cristiana

Thanks! I do. Don’t evvvver want that to happen again. I was traveling and gluten could have been anywhere.

[cristiana]

Don't blame you.

I've had small amounts since by mistake,  and trace amounts made me feel just like I've got a really sore stomach for a couple of days.   So I do wonder if you were served something that was actually made with wheatflour, like that piece of cake I had?   

It has made me extra vigilant, I can tell you.  

Edited December 20, 2022 by cristiana

[AnnetteD]

10 hours ago, Rhondajb1 said:

Can dehydration from diarrhea cause Celiac Crisis??

It started with severe unexplained diarrhea in AM. No fever, not Covid (tested). Then Nausea came on and a few hrs later intense tingling in hands up arms, fingers stiffened and could not move. Stomach pain (from diarrhea all day) slightly moved up to chest for a time. Lasted a few minutes. My head dropped, couldn’t keep it up and hard to talk and couldn’t walk. Was it a seizure? Condition slightly improved after a short time but was very sleepy and couldn’t keep eyes open. Dry mouth, very red sunken eyes, waves of heat and nausea and heavy feeling in limbs for hours. Felling like I dodged a bullet as I recovered without medical attention and now I’m reading if it was Celiac Crisis I could have died 😳

 

 

Repeated dehydration from diarrhea from gluten can cause permanent kidney damage.  I have been advised by my kidney specialist to go to ER when this happens to prevent further damage. Hopefully you did dodge the bullet this time, but I would be careful and seek medical care in future.

[Wheatwacked]

I had a similar incident a few times. It came on suddenly as I was eating. It was the same food I've had many times so gluten was not the issue I think. Suddenly my brain started spiraling down, out of control nearly blacking out like the time I had laughing gas at the oral surgeon, then I thew up everything, got chills and shakey, then massive diahrea and more vomit at the same time. I drank some water and went to bed. Was ok the next morning. At the time I was eating less than 2000 mg potassium a day.

Your symptoms match Hypokalemia which could have been caused by the unexplained diahrrea. So the question might be what caused the diahrrea? It could be your intake of potassium is low and the diahrrea put you into severe deficiency leading to the other symptoms. I suggest you track your intake of potassium to rule it out. The DV in the US is 4.7 grams a day as nutrition labels show, oddly though the RDA is half that. There is no accurate testing available as most is inside the cells. Low potassium is a concern worldwide.    Hypokalemia

 Potassium Fact Sheet for Health Professionals "The DV for potassium is 4,700 mg for adults and children age 4 years and older [17]. FDA requires the new food labels to list potassium content... Many dietary supplement manufacturers and distributors limit the amount of potassium in their products to 99 mg (which is only about 2% of the DV) because of two concerns related to potassium-containing drugs. First, the FDA has ruled that some oral drug products that contain potassium chloride and provide more than 99 mg potassium are not safe because they have been associated with small-bowel lesions... Dietary surveys consistently show that people in the United States consume less potassium than recommended"