Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Electrolyte mixes with high potassium content?


Jenniferxgfx

Recommended Posts

Jenniferxgfx Contributor

Hi there, I’m in desperate need of electrolytes, preferably a blend with a generous amount of potassium (many of them are loaded with sodium and don’t have much potassium to balance it out)… there’s a lot on the market but I’m overwhelmed. 

I really liked Liquid IV, and I used that for a few months fine, but then I changed flavors and got glutened really badly. Apparently this is a known issue with Liquid IV, according to some Nima owners who’ve posted about it. 
 

Trace Minerals makes some mixes that are safe for me, but they’re so low in electrolytes I pretty much have to use 10+ packets a day to get enough. 
 

I can’t do citrus (Citric acid is okay but not “real orange flavor” or whatever), but most other flavors are fine. Soy and corn are okay in trace amounts (like lecithin or dextrose) but I can’t do corn syrup. 
 

right now I’m making my own blend with unsweetened cranberry juice, powdered coconut water, and maple syrup, but it’s getting tedious. 
 

thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master
(edited)

@Jenniferxgfx,

Why are you in such need for electrolytes? 

You mentioned in another post you are on medication for tachycardia? 

How long have you been on this medication?

How long have you been using these electrolyte products?

You mentioned fibromyalgia, too.  Any other symptoms?

Edited by knitty kitty
Add more information
Jenniferxgfx Contributor
44 minutes ago, knitty kitty said:

@Jenniferxgfx,

Why are you in such need for electrolytes? 

You mentioned in another post you are on medication for tachycardia? 

How long have you been on this medication?

How long have you been using these electrolyte products?

You mentioned fibromyalgia, too.  Any other symptoms?

I have POTS, which significantly worsened after I had covid 4 months ago. Keeping my electrolytes up is one of the ways symptoms are managed. 

I’m on an extremely low dose of a beta blocker to manage tachycardia (the T in POTS).

My need for potassium & other electrolytes isn’t in question… I’m just looking for SAFE gluten-free electrolytes. In general, my doctors are no help when it comes to sourcing gluten-free meds, so I’m on my own. With pharmaceuticals it’s pretty easy for me to find a safe NDC, but supplements are a lot harder for me to source. I was hoping someone here takes one they like. 

Scott Adams Grand Master

Given all of the constraints, is it possible for you to just make your own electrolyte formula?

Jenniferxgfx Contributor
2 minutes ago, Scott Adams said:

Given all of the constraints, is it possible for you to just make your own electrolyte formula?

Yeah, that's what I've been doing, it's just a bit tedious, and I'm not as exact as a manufacturer would (or should) be. It'd just be nice to have something I can pull off a shelf and dump into some water. I'm already cooking almost everything I eat from scratch, and I'm very tired. 

knitty kitty Grand Master

@Jenniferxgfx,

POTS has been linked to vitamin deficiencies, B12, and especially Thiamine Vitamin B 1.

Fighting an infection like Covid can deplete thiamine in the body.  

 

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/

And...

Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS)

https://pubmed.ncbi.nlm.nih.gov/28531358/

And...

https://www.hormonesmatter.com/recovering-from-long-covid-with-thiamine/

High dose Thiamine like Dr. Lonsdale says, has made my POTS resolve.  

Hope this helps!

Jenniferxgfx Contributor
1 hour ago, knitty kitty said:

@Jenniferxgfx,

POTS has been linked to vitamin deficiencies, B12, and especially Thiamine Vitamin B 1.

Fighting an infection like Covid can deplete thiamine in the body.  

 

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/

And...

Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS)

https://pubmed.ncbi.nlm.nih.gov/28531358/

And...

https://www.hormonesmatter.com/recovering-from-long-covid-with-thiamine/

High dose Thiamine like Dr. Lonsdale says, has made my POTS resolve.  

Hope this helps!

Yep, I do take my B’s, thanks. 
 

I also don’t eat enough so I’m not getting enough dietary potassium or magnesium. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@Jenniferxgfx,

I took a multivitamin, but I still ended up deficient in Thiamine Vitamin B 1.  It wasn't until I started taking high dose Thiamine that my health improved.

Every cell uses Thiamine to make energy so our bodies can function properly.  When we're under emotional stress, and physical stress (like fighting Covid or another infection or physical ailment), we need more Thiamine.  We can become deficient in as little as three days.  

Thiamine is water soluble.  If your body doesn't need it, thiamine is easily excreted in urine.  

If you do need Thiamine, amounts found in multivitamins are not at a high enough dose to improve how thiamine works in your body.  You can have a subclinical thiamine deficiency that goes on for years.  

During thiamine deficiency, the mitochondria cannot make enough energy.  Thiamine Transporters that allow thiamine into cells shut down.  Thiamine cannot get into the cells.  High doses of thiamine are needed to flood the system and allow thiamine to enter the cells by passive diffusion.  

The fat soluble forms of Thiamine, Benfotiamine and Allithiamine (or Thiamax) can get into cells easily through the cell membranes.  Once inside, energy production is restored.  

Fatigue is one of the early symptoms of Thiamine deficiency, as is frequent infections.  Thiamine can help improve asthma.  

Thiamine helps regulate Mast Cells so they don't degranulate histamine. 

POTS is helped by Thiamine.  The vagus nerve is affected by Thiamine deficiency.  The vagus nerve is part of the autonomic system.  If there's not enough Thiamine, problems controlling blood pressure and heart rate are affected.  Electrolyte regulations are messed up.

Tachycardia is definitely a symptom of Thiamine deficiency.  

Thiamine is found in meat.  Since you are a vegetarian, you may not be getting enough thiamine from your food.  Fruits and vegetables don't contain much Thiamine.  

Since Thiamine is safe and nontoxic even in high doses, a trial of high dose Thiamine wouldn't hurt.  

You can read more about my experiences with Thiamine in my blog.

I do hope you will be open minded and try Thiamine supplementation in addition to your multivitamin.  

 

Jenniferxgfx Contributor
1 hour ago, knitty kitty said:

@Jenniferxgfx,

I took a multivitamin, but I still ended up deficient in Thiamine Vitamin B 1.  It wasn't until I started taking high dose Thiamine that my health improved.

Every cell uses Thiamine to make energy so our bodies can function properly.  When we're under emotional stress, and physical stress (like fighting Covid or another infection or physical ailment), we need more Thiamine.  We can become deficient in as little as three days.  

Thiamine is water soluble.  If your body doesn't need it, thiamine is easily excreted in urine.  

If you do need Thiamine, amounts found in multivitamins are not at a high enough dose to improve how thiamine works in your body.  You can have a subclinical thiamine deficiency that goes on for years.  

During thiamine deficiency, the mitochondria cannot make enough energy.  Thiamine Transporters that allow thiamine into cells shut down.  Thiamine cannot get into the cells.  High doses of thiamine are needed to flood the system and allow thiamine to enter the cells by passive diffusion.  

The fat soluble forms of Thiamine, Benfotiamine and Allithiamine (or Thiamax) can get into cells easily through the cell membranes.  Once inside, energy production is restored.  

Fatigue is one of the early symptoms of Thiamine deficiency, as is frequent infections.  Thiamine can help improve asthma.  

Thiamine helps regulate Mast Cells so they don't degranulate histamine. 

POTS is helped by Thiamine.  The vagus nerve is affected by Thiamine deficiency.  The vagus nerve is part of the autonomic system.  If there's not enough Thiamine, problems controlling blood pressure and heart rate are affected.  Electrolyte regulations are messed up.

Tachycardia is definitely a symptom of Thiamine deficiency.  

Thiamine is found in meat.  Since you are a vegetarian, you may not be getting enough thiamine from your food.  Fruits and vegetables don't contain much Thiamine.  

Since Thiamine is safe and nontoxic even in high doses, a trial of high dose Thiamine wouldn't hurt.  

You can read more about my experiences with Thiamine in my blog.

I do hope you will be open minded and try Thiamine supplementation in addition to your multivitamin.  

 

I didn’t say I took a multivitamin, I said I’m taking my B’s. I agree that multivit’s don’t do the trick when you’re dealing with specific deficiencies. 
 

I appreciate the time you took to write all this out, and I hope someone finds it helpful. I’m aware of this information, but in my specific case, my potassium levels are quite low and I am regularly dehydrated, so supplementing potassium (along with magnesium and sodium) through electrolyte drinks is what my doctor has advised me to do.

There are many things that can cause POTS. B1 deficiency causes it in a small subset of POTS patients: “Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS)” (I can’t paste links).  

Other reasons can include other B vitamin deficiencies, EDS, MCAS, chiari malformation, cervical stenosis, ME/CFS, certain cardiac issues, and autoimmune disease. There are more. There are several types of POTS, and we don’t yet know what causes every case. 

I am starting to feel a little bullied here, and as if you’re trying to practice medicine. If I’d asked about the kinds of deficiencies that would cause my symptoms, your responses would’ve been perfect. But I’ve been around the block a few times, and I know what my specific problem is and I know how to treat it in this specific instance, which is why I asked what I asked. I’m just looking for fellow celiacs’ input in continuing with a treatment that has worked for me. Thanks for your understanding. 

knitty kitty Grand Master

@Jenniferxgfx,

I apologize if you felt bullied.  That's the last thing I would want to do to anyone.

I've lived through Thiamine deficiency and POTS.  I'm enthusiastic about sharing what I have learned.

I just want to leave these articles here for future readers.

 

Thiamine Deficiency Causes Intracellular Potassium Wasting

https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/

And...

https://www.ncbi.nlm.nih.gov/books/NBK564513/

And...

https://pubmed.ncbi.nlm.nih.gov/11448586/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2654033/

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Waiting on Blood test results…

    2. - trents replied to Jason Hi's topic in Doctors
      7

      Need Advice on Doctors

    3. - Jason Hi replied to Jason Hi's topic in Doctors
      7

      Need Advice on Doctors

    4. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Waiting on Blood test results…

    5. - trents replied to Jason Hi's topic in Doctors
      7

      Need Advice on Doctors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,383
    • Most Online (within 30 mins)
      7,748

    DHardy
    Newest Member
    DHardy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ChrisSeth
      I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷‍♂️
    • trents
      You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
    • Jason Hi
      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
    • trents
      How long was your gluten challenge? I hope it was longer than a week. If not, your testing was likely invalid. Recently upgraded guidelines call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for at least two weeks prior to either the blood antibody test draw or the endoscopy/biopsy. And if you had been gluten free for all those years, you likely had lost any tolerance to gluten you may have had when consuming it regularly. That's probably why it was such a tough sledding experience. Before I was diagnosed, I had very minor GI symptoms. Now, after many years of being gluten free, I get violently ill for hours if I get a good slug of gluten, like when I got my wife's wheat biscuits mixed up with the gluten free ones she made me.
×
×
  • Create New...