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Frustrated Celiac backsliding and I can't handle eating ANYTHING!!!!

Mary W.

By Mary W.
in Coping with Celiac Disease

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Mary W. Newbie
Mary W.
Posted

Ive been coping with Celiac for 12 years. When I was diagnosed I couldn't handle soy, dairy (casein or lactose), nightshades, corn or corn derivatives, chicken.  I couldn't go to a restaurant for probably 5 years. I hunkered down. I powered through. I was so careful and patient. Then viola I started to heal enough that I could slowly reintroduce foods. Eventually I could eat everything except gluten (of course).  Well this year I guess I was too careless when eating out.  I think I just got sick of being careful. I got sick of having to deal with it.  I absolutely NEVER knowingly ate gluten but I think I just got lazy about doing the research and making sure I was safe. And here I am right back to square one. No dairy. no nightshades. Even things like most vegetables or protein pancakes are too much for my system to digest right now.  Thankfully I can still eat corn, soy and meats. But Im beyond frustrated with my carelessness and going through this process again. 

Can anyone relate?  Does anyone have any recommendations on helping my gut heal and helping my body along this process for my second ride through?Any advice would be greatly appreciated. Thank you!!

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Scott Adams Grand Master
Scott Adams
Posted

Your story sounds like mine, and at the time of my diagnosis I could also not have corn, tomatoes, dairy, chicken eggs, etc., and had several setbacks during the first couple of years on a gluten-free diet, most involving eating out, which I love to do, and I was living in San Francisco at the time, which has a million great restaurants. 

One thing for you to consider, and they are a sponsor here, which is not why I am mentioning this, but GliadinX has been shown in many published studies to break down small amounts of gluten in the stomach, before it reaches your intestines--like the amounts you might see when eating gluten-free in restaurants and getting some cross-contamination (Disclaimer: of course it's best to never eat outside your home again, but that is not a realistic lifestyle for me or all celiacs). Now I take 1-2 with a meal at a restaurant, and since I've been doing this I haven't had any issues.

Mary W. Newbie
Mary W.
Posted
  • Author
55 minutes ago, Scott Adams said:

Your story sounds like mine, and at the time of my diagnosis I could also not have corn, tomatoes, dairy, chicken eggs, etc., and had several setbacks during the first couple of years on a gluten-free diet, most involving eating out, which I love to do, and I was living in San Francisco at the time, which has a million great restaurants. 

One thing for you to consider, and they are a sponsor here, which is not why I am mentioning this, but GliadinX has been shown in many published studies to break down small amounts of gluten in the stomach, before it reaches your intestines--like the amounts you might see when eating gluten-free in restaurants and getting some cross-contamination (Disclaimer: of course it's best to never eat outside your home again, but that is not a realistic lifestyle for me or all celiacs). Now I take 1-2 with a meal at a restaurant, and since I've been doing this I have had any issues.

Thank you, Scott. I will try that! As you said, it's unrealistic not to eat out right. I will use better research and communication with restaurants as my first line of defense but I think I'll give this a try too. Thank you for the idea.  

Scott Adams Grand Master
Scott Adams
Posted

BTW, I think you understood my post, but the last bit which I correct should have said "I haven't had any issues."

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