Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Love You Guys!

Megan

By Megan
in Coping with Celiac Disease

Recommended Posts

Megan Rookie
Megan
Posted

I just wanted to say thanks and how much you guys hlped me. I ate my first gluten free meal yesterday and spent the rest of my night enjoying being able to cuddle with my boyfriend since I wasn't the size of a blimp. It's the first time in a long time I've been able to eat without feeling miserable afterwards.

quick question tho...

Now that I know I feel much better when I don't eat gluten, do I need to get ahold of my doctor (considering he ever returns my phone calls) to be tested for celiacs, because as I've read if I'm gluten free it will mess up the results of some of the testing??

-- Megan and THANKS AGAIN!!! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

It kind of depends how much you want an 'official' diagnosis.

If you continue to eat gluten-free then there's no point in contacting the doc because any tests would come up negative.

To gain a positive blood test (or biopsy for that matter) you need to be eating a full (i.e 6 slices of bread a day)gluten diet.Anything less than that would affect results.

So, the balls in your court!-You seem to be having a positive response to the diet-and there are plenty of people on this board who are 'self diagnosed' through positive dietary response,and couldn't face going back to eating gluten again.

Good luck in your decision! :)

VydorScope Proficient
VydorScope
Posted
I just wanted to say thanks and how much you guys hlped me. I ate my first gluten free meal yesterday and spent the rest of my night enjoying being able to cuddle with my boyfriend since I wasn't the size of a blimp. It's the first time in a long time I've been able to eat without feeling miserable afterwards.

quick question tho...

Now that I know I feel much better when I don't eat gluten, do I need to get ahold of my doctor (considering he ever returns my phone calls) to be tested for celiacs, because as I've read if I'm gluten free it will mess up the results of some of the testing??

-- Megan and THANKS AGAIN!!! :D

Since your only one non-gluten meal in to the diet, I woudl say continue to eat gluten and go get tested ASAP. The only reason I say this is future testing for stuff like vitman screenings, ostosprosis checks, and so on WILL NOT be covered by most insurance companies with out the DX (well post-menopause osto screenings are different of course).

How ever the call is yours. Remember you could go through all the testing, have celiac disease, yet still get negative results.

jenvan Collaborator
jenvan
Posted

I agree with Vincent. Going gluten-free will definitely skew your results, as can being gluten-free, then doing a 'gluten challenge.' If you want a conventional med diagnosis, wait on diet and get in for tests. Glad your first meal was sucessful and that you felt good--Good news then for what's to come!

Guest nini
Guest nini
Posted

it's totally up to you. you do not need a medical Dr.s permission to go on this diet, and you can be gluten-free for strictly personal reasons, BUT, like it has been said, if you want an official dx, you will need to continue to eat lots of gluten, but keep in mind that there is still a high rate of false negatives with the tests, and many Dr.s are reluctant to dx based on any borderline results. (Just an FYI)

Carriefaith Enthusiast
Carriefaith
Posted

If you want a blood test and/or a biopsy, you must be consuming gluten or you may get false negative results. You don't need to be eating gluten to get a gene test done though.

CMCM Rising Star
CMCM
Posted

If you have to be eating the equivalent of 6 slices of bread a day to show up positive on a gluten blood test, I probably would have been negative for a couple of years, because I NEVER had that much ona daily basis. I'd suggest at the very least getting the gene test from Enterolab ($149), or if you want a more definitive answer, do the full gluten sensitivity panel for $369, which also includes the gene test, a casein test, test for malabsorption, and antibody test that will pick up positive reactions even if you eat minimal or no gluten for awhile. It's much more sensitive. The results come right to you, you don't have to waste money with a doctor who won't know anything anyway (but you'll be paying him/her to tell you he/she doesn't know...). I don't believe there is a cheaper or easier way to get the information than Enterolab's tests. Go to their website at www.enterolab.com and read all the info there. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...