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horselover

By horselover
in Coping with Celiac Disease

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horselover Rookie
horselover
Posted

Hi, I am new here but I have alot of questions. First of all I was dignosed with celiac about 2 months ago, once I went off gluten all of my symtoms stoped in 2 days. But now I have a problem all of my symtoms seem to be coming back, I have not changed anything I am extremly gluten free, I have all my meals made at a place called gluten free meals and that is all I eat. I don't know if I developed a new allergy or what is going on but I do not feel well and haven't for 2 weeks. Can anyone help????

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Guest nini
Guest nini
Posted

have you checked your medications and personal care products? things like shampoos, lotions, even makeup all have to be gluten-free

also, many newly dx'ed celiacs have a problem with dairy initially. You may need to eliminate dairy for a while until your system begins to heal.

I have a newbie survival kit that I can e-mail to you if you want it... just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit"

Megan Rookie
Megan
Posted

jumping on this question thing....what is whey flour and can we eat it? I guess I don't understand what it is and it's not listed as something we can't eat.

OH and found my first box that said GLUTEN free...Wal-mart Brand mashed potato flakes! :lol:

shellbean Apprentice
shellbean
Posted
jumping on this question thing....what is whey flour and can we eat it? I guess I don't understand what it is and it's not listed as something we can't eat.

OH and found my first box that said GLUTEN free...Wal-mart Brand mashed potato flakes! :lol:

I just found some of WalMart brand stuff that said gluten free on it too and you should have seen me! I just about embarrassed myself! I was sooo happy! People started looking at me funny when I yelled out "LOOK IT SAYS GLUTEN FREE!!!!!! I CAN EAT IT!!!!!!!!!!!!" :lol: I made myself laugh at that one! LOL. One question I have too is how do you know when shampoos, lotions, etc have gluten? I don't know what ingredients are gluten infested. Do you know how I can find out without calling all the manufacturers?

Rusla Enthusiast
Rusla
Posted

Don't worry I get all excited and bounce around and dance when I see things are gluten-free.

I just realized something, it was horselover's name. I will never be able to kiss horses velvety lips again.

key Contributor
key
Posted

horselover,

This also happened to me. Felt great and that felt bad. I think what happens is that we get more sensitive to VERY tiny amounts of gluten and at first our bodies are just happy to be rid of the majority of it. Just go over what you are eating and be sure that nothing is being contaminated by gluten. Also check your lipsticks and if you are touching any gluten throughout the day. Also what you drink, etc. Hopes this helps. Also like someone said it could be dairy, but usually as you heal for six months or so you can reintroduce it to your diet. Hope you start feeling better.

Monica

TCA Contributor
TCA
Posted
I just found some of WalMart brand stuff that said gluten free on it too and you should have seen me! I just about embarrassed myself! I was sooo happy! People started looking at me funny when I yelled out "LOOK IT SAYS GLUTEN FREE!!!!!! I CAN EAT IT!!!!!!!!!!!!" :lol: I made myself laugh at that one! LOL. One question I have too is how do you know when shampoos, lotions, etc have gluten? I don't know what ingredients are gluten infested. Do you know how I can find out without calling all the manufacturers?

Call the manufacturers. Garnier Fructis is ok. Unilever (Suave, salon selctives, dove....) will list things, but some don't. Garnier sent me a list of chemical agents that can have gluten in them and most of them don't look glutenous. Softsoap, lubriderm, and baby magic are ok. My daughter had severe reactions to a curel lotion I was using. You can also get the Delphi list. It has a lot of saft stuff on there. If you don't, PM me and I'll try to find my electronic copy. Someone here was kind enought to send it to me.

horselover - I thought I was doing so good on the diet at first and then I started learning more and found htings I was eating had gluten in them. I takes a while to get it down pat. I don't know if this is happening to you, but it did to me. What kind of horses are you into? My dad used to train show horses, saddlebreds mostly. I miss them so much! My last horse passed 3 years ago.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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      By SilkieFairy · Posted

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