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Did my old endoscopy even check for celiac?!

hazy gem
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hazy gem Newbie
hazy gem
Posted

Hi there, 

I had an endoscopy several years ago, with (what was communicated to me) the express purpose to check for celiac. (Neither of my first or second GI's did blood tests- were those around in 2017?).

Cut to now, blood test results from a neurologist. Deamid/Gliadin AB IGA 101.2 (Ref value <15.0) and Deamid/Gliadin AB IGG 20 (ref value <15).

So I go straight to a new GI and I get the old endoscopy results sent to him. He says there is no indication that they specifically looked at celiac. Look, I know celiac might have developed later. But my issues literally started when I started eating gluten after not eating it for about a year (I was ahead of the curve on the whole paleo-diet thing) and yes hindsight is 2020 but I had a lot of mental health other issues I was battling so once I found out I wasn't celiac I could never commit to gluten free after that. Also, I would go to doctor after doctor and tell them celiac was ruled out. 

This is from the old endoscopy: Diagnosis & Interpretation: Stomach, Biopsy ANTRAL MUCOSA WITH MILD CHRONIC GASTRITIS AND REACTIVE CHANGE. UNREMARKABLE GASTRIC BODY TYPE MUCOSA. NO INTENSTINAL METAPLASIA DYSPLASIA OR MALIGNANCY. APPROPRIATELY CONTROLLED IMMUNOSTAIN IS NEGATIVE FOR H>PYLORI. Gross Description: Stomach, Biopsy - Labeled as: "Gastric" Received in formalin are 4 fragments of pink-tan soft tissue ranging from 0.2 to 0.4 cm. The specimen is submitted entirely in a single cassette. 

So what are your thoughts? Did they skip the celiac analysis? Why would they do that? What is going on!?

Thank you in advance for any thoughts! 

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trents Grand Master
trents
Posted

Looks like they only examined and biopsied the stomach. Celiac disease affects the small bowel.

Scott Adams Grand Master
Scott Adams
Posted

I agree, it looks like they did not take samples in the small bowel for celiac disease. This is rather strange if they told you they were looking to see if you had celiac disease.

Since your blood test results are such a high positive, you will need to decide whether to do another endoscopy, and this article may be helpful:

https://www.celiac.com/celiac-disease/celiac-disease-blood-antibody-tests-r32/

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