Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How long should b12 be take as supplement?


Lindquist

Recommended Posts

Lindquist Contributor

My doctor said i have b12 deficiency , but now my b12 levels show high on blood results in P-Cobalamin in plasma it was on 1266 tmol/L does it show negative on results when you start taking supplements? How long you guys eat b12 ? Can you quit with b12 on celiac? Or do you must eat it all life?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, Lindquist!

First of all, there is no danger in taking B12 or any of the vitamins indefinitely. They are water soluble and you will excrete any excess in your urine. They are not toxic. But if your levels are now adequate or above normal you may quit taking the supplement as long as your gut is healed so that you don't lose ground with B12 levels over time. Are you strict about your gluten free diet? How long since your diagnosis? Have you had follow-up testing, either blood antibody testing or biopsy since you were initially diagnosed and if so, did the testing show gut healing?

Lindquist Contributor

i got my celiac diagnose on 15 march 2023 but i know i could have it long time before, i also have low stomach acid, and doctor said before i have ibs, but now they seen i had gluten antibodies that was high. 

Lindquist Contributor
5 hours ago, trents said:

Welcome to the forum, Lindquist!

First of all, there is no danger in taking B12 or any of the vitamins indefinitely. They are water soluble and you will excrete any excess in your urine. They are not toxic. But if your levels are now adequate or above normal you may quit taking the supplement as long as your gut is healed so that you don't lose ground with B12 levels over time. Are you strict about your gluten free diet? How long since your diagnosis? Have you had follow-up testing, either blood antibody testing or biopsy since you were initially diagnosed and if so, did the testing show gut healing?

I can not eat gluten anymore then i get ill, its not worth it. I eat paleo just now i eat also lchf, is that good start? I want clean eating

trents Grand Master

Ichf?

Wheatwacked Veteran

LCHF Is that LowCarbHighFiber?

What is the cause of your low stomach acid?

Vitamin B12 is only in animal sourced foods. The normal range for vitamin B12 (total) is between 200 – 1100 ng/L (nanograms per liter), 200 – 1100 pg/mL (picograms per milliliter), or 148 – 811 pmol/L (picomoles per liter).  Even at large doses, vitamin B12 is generally considered to be safe because the body does not store excess amounts.

 

13 hours ago, Lindquist said:

Or do you must eat it all life?  Can you quit with b12 on celiac?

You need B12 all your life. It is only found in animal products so a vegan will need to supplement always.  On gluten free diet as your gut heals malabsorption will get better and you may not need supplemental B12 IF YOU GET ENOUGH IN YOUR DIET. The total B12 plasma test is considered accurate so use it to guage your need. If your are deficient in B12 you also should look at intake of other B vitamins. High homocysteine levels could be caused by low intake of B6 or Choline, or B12 or Folate. It is an indicator of inflammation.

 eight B complex vitamins—thiamin, riboflavin, niacin, vitamin B6, folate, vitamin B12, pantothenic acid, and biotin—and choline. These water-soluble nutrients fall into two categories: those involved in the reactions of intermediary metabolism related to energy production and redox status and those involved in the transfer of single-carbon units. The B Vitamins and Choline: Overview and Methods

Lindquist Contributor
On 4/2/2023 at 4:16 AM, Wheatwacked said:

LCHF Is that LowCarbHighFiber?

What is the cause of your low stomach acid?

Vitamin B12 is only in animal sourced foods. The normal range for vitamin B12 (total) is between 200 – 1100 ng/L (nanograms per liter), 200 – 1100 pg/mL (picograms per milliliter), or 148 – 811 pmol/L (picomoles per liter).  Even at large doses, vitamin B12 is generally considered to be safe because the body does not store excess amounts.

 

You need B12 all your life. It is only found in animal products so a vegan will need to supplement always.  On gluten free diet as your gut heals malabsorption will get better and you may not need supplemental B12 IF YOU GET ENOUGH IN YOUR DIET. The total B12 plasma test is considered accurate so use it to guage your need. If your are deficient in B12 you also should look at intake of other B vitamins. High homocysteine levels could be caused by low intake of B6 or Choline, or B12 or Folate. It is an indicator of inflammation.

 eight B complex vitamins—thiamin, riboflavin, niacin, vitamin B6, folate, vitamin B12, pantothenic acid, and biotin—and choline. These water-soluble nutrients fall into two categories: those involved in the reactions of intermediary metabolism related to energy production and redox status and those involved in the transfer of single-carbon units. The B Vitamins and Choline: Overview and Methods

Thanks for replay, i am also milkprotein allergic caused of my other allergy symtoms i have of cat, dog, horse, mold, grass, birch, so i must avoid dairy products too, so i drink coconut milk or almond milk now. Hope that will work better for me. I think to eat paleo is better if im allergic to milk. 

Just now, Lindquist said:

Thanks for replay, i am also milkprotein allergic caused of my other allergy symtoms i have of cat, dog, horse, mold, grass, birch, so i must avoid dairy products too, so i drink coconut milk or almond milk now. Hope that will work better for me. I think to eat paleo is better if im allergic to milk. 

Low Carb High Fat

Paleo is what people eat in the evolution at stoneage without dairy and starch, gluten


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Lindquist Contributor

You guys and Girls handle glutenfree wheat starch thst has 20 PPM gluten? But it says gluten free. Is it ok or not? What flour you make cookies with?

trents Grand Master

We have reports frequently on this forum of celiacs being made ill by products made from modified wheat starch that has supposedly been rendered so as to meet the qualifications for marketing it as "gluten free". For example, DiGiornio's Gluten Free Pizza.  I suspect it depends on how sensitive to minor amounts of gluten the individual person is. 20ppm is on the cusp. If in doubt, I would avoid it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrish42 replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    2. - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

    3. - Scott Adams replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    4. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

    5. - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,257
    • Most Online (within 30 mins)
      7,748

    Y2Kimberly
    Newest Member
    Y2Kimberly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...