Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?

Charisma-1630
 Share

Recommended Posts

Charisma-1630 Newbie
Charisma-1630
Posted

Hi all, 

I was diagnosed about 3 or so years ago now and I think last week I made me first major mistake… 

I was diagnosed early so I never really had symptoms and had assumed I was silent coeliacs.. I had gluten a couple of time in early diagnosis and didn’t have much reaction but been super strict since then…. Well last Friday (10 days ago) I went to a bar with some friends and had a draught coke… the next day I felt nauseous and have done on and off ever since.. I’ve also had gurgley tummy and cramps, toilet troubles on and off since then.. is it possible that the draught Coke was a cheap version and could have had gluten in?! Not sure what else it could be.. And when will I stop feeling so awful Id hoped it would be gone by now!! 😭

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted
On 4/24/2023 at 5:14 PM, Charisma-1630 said:

Hi all, 

I was diagnosed about 3 or so years ago now and I think last week I made me first major mistake… 

I was diagnosed early so I never really had symptoms and had assumed I was silent coeliacs.. I had gluten a couple of time in early diagnosis and didn’t have much reaction but been super strict since then…. Well last Friday (10 days ago) I went to a bar with some friends and had a draught coke… the next day I felt nauseous and have done on and off ever since.. I’ve also had gurgley tummy and cramps, toilet troubles on and off since then.. is it possible that the draught Coke was a cheap version and could have had gluten in?! Not sure what else it could be.. And when will I stop feeling so awful Id hoped it would be gone by now!! 😭

So sorry to hear you've been so sick!  I can't speak to "cheap versions" of soda, but I never order anything that comes through a hose that could potentially be cross-contaminated with other fluids.  For example, I don't ever trust draft gluten-free beer or cider.  I'll only drink it if it comes in a bottle.  I'm a bourbon drinker myself and always order it straight-up, on the rocks.  I never get it mixed with soda, because all soda in a bar comes through a hose.

There's also always a chance it was something else that made you sick.  And everyone gets different symptoms that can last different lengths of time.  So I can't speak to how long it will last for you - hopefully by now you're feeling better!

 

Scott Adams Grand Master
Scott Adams
Posted

In general a vast majority of sodas are gluten-free and made with corn sugar, but without knowing exactly what it was it is difficult to say for sure. However, eating large amounts of sugar can cause changes to your gut flora, and cause bacterial overgrowth in some cases. Do you drink sugary sodas often? 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,274
    • Most Online (within 30 mins)
      7,748
    nanajan1993
    Newest Member
    nanajan1993
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...