Husband just diagnosed with Celiac, need help with vitamins and supplements that will really help

[KathleenMK]

My very health conscious hubby has had some recent health issues that lead to a full array of test that confirmed Celiac with a biopsy. I am suspecting alot of his recent old man issues have roots in this diagnosis because he has been nutritionally deprived. Could his broken bone be lack of calcium absorbed instead of the force of the fall?  His doctor took him off all vitamins and supplements when his PSA was too high. Since that went down when he skipped the the vitamins he is reluctant to take a multi vitamin again but I worry that our healthy diet is not enough with his damaged gut.

What do those of you who are managing your Celiac's disorder find works best or you need the most? I think he needs higher dose easy to absorb nutrients to heal, so would those liquid vitamins for people who had gastric bypasses be better?  Would the collagens I take for joint and skin issues really help his gut heal or is that just hype? What about Fish oil and Omega 3s?

Any tips?

 

[Scott Adams]

I'm a strong believer that most people with celiac disease definitely need to be taking a good multi-vitamin/mineral formula, and some of my long-time symptoms like numbness and tingling in my toes only went away in the last few years, after I added magnesium citrate and other supplements. You can see my regimen here:

Is there some research on vitamins or minerals that should be avoided when one has high PSA readings? 

[trents]

I find it strange that his doctor took him off of vitamins and supplements. I have never heard before that they can cause elevated PSA levels. In fact, I would think the opposite would be true: https://www.livestrong.com/article/411179-can-vitamins-and-supplements-affect-psa-readings/

Have you and/or your husband researched this issue?

[KathleenMK]

I think it was just for the follow up test and I remember him having some article on a specific ingredient which can cause false readings in the PSA. I can't remember the details. I think he attributes the second lower reading to not taking them but I am still seeing him struggle with fatigue even after gluten-free diet has calmed most of the gut symptoms.

[trents]

  On 6/22/2023 at 7:45 PM, KathleenMK said:

I think it was just for the follow up test and I remember him having some article on a specific ingredient which can cause false readings in the PSA. I can't remember the details. I think he attributes the second lower reading to not taking them but I am still seeing him struggle with fatigue even after gluten-free diet has calmed most of the gut symptoms.

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Thanks for the clarification.

[KathleenMK]

thanks Scott and Trents for the links.

I think the supplements that they worry will affect a PSA test are the ones that would be taken to improve symptom like saw palmetto and DHEA. iI was something in his regular men's vitamin and it wasn't harmful but  just could raise the scores. And the lower score could be from other factors as well.

[trents]

So the doctor used the shotgun approach and took him off all vitamins and supplements.

[Wheatwacked]

  On 6/22/2023 at 6:13 PM, KathleenMK said:

His doctor took him off all vitamins and supplements when his PSA was too high.

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Folic Acid is added to almost every multivitamin.  "Folate metabolism may have a complex role in prostate cancer; the effects of folic acid–containing supplements on the risk of prostate cancer may be different those of natural dietary sources. Folic Acid and Risk of Prostate Cancer"

In one clinical trial, the folic acid group had 17% more cancer than the control group.

I was diagnosed with BPH Benign Prostate Hypertrophy wnen I was 21.  I found the Swanson Prostate supplement very effective.  When I started GFD at 63 , it shrank. PSA stayed high and doctors still insisted on a biopsy even though the Digital Rectal Exam showed it normal.  Chance of me have nerve damage from biopsy, 20%,was greater than the chance of me dying of cancer (<1%).  They also forget to mention there are several other causes of high PSA.  Sexual activity within 48 hours of the test is one. I declined the biopsy and found a different Primary Care doctor.

  On 6/22/2023 at 6:13 PM, KathleenMK said:

Could his broken bone be lack of calcium absorbed

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Low vitamin D causes poor calcium absorption.  I find it interesting that 40% US adults have low or deficient vitamin D and 51% of adults over 50 have osteoporosis.

My current vitamin regimen:

• 10,000 IU vitamin D (plasma target is 80 ng/ml equivalent to 200 nmol/L)
• 500 mg B1
• 500 mg B3
• 500 mg B5
• 1000 mcg (1 mg) B12
• 960 mg Phosphatidyle Choline = 500 mg cholne.
• 1000 mg Taurine (an essential amino acid, strong antioxidant, helps protect the eyes from oxiidative stress)
• 2 ounces cherry flavored Magnesium Citrate (580 mg magnesium) in twenty ounces of water.  Instead of lemonade midday.
• Vitamins A, E and Folic Acid supplements have been linked in several clinical studies to increased lung and prostate cancers.  I think it b.est to get them in food.  They are used to fortify grain flour and multivitamins because the milling process takes them out.

     This caused me to loose 30 pounds of belly fat over the past year, and compared to what I was, I'm like the energizer bunny.  It can't hurt because they are all well below the Safe Upper Level Intake recommended.  B3 Nicotinic acid relaxes the capillaries, increasing blood flow so for the first few days it can cause annoying flushing and itching.  Other forms of Low Flush B3 are not as effective for this purpose.

A sixty year old makes 10% the DHEA of a twenty year old.  I took it for quite a while. It has been called the youth hormone.  Come to think of it, I should start again.  Of course calcium, zinc, potassium, and others are important and good to track and supplement if needed, but the above supplements has had better results in my recovery. Even got me eating more.

You can create a spreadsheet to track nutrition using the Ag Departmints database SR28

Here is what mine looks like. http://nutrientlog.doodlesnotes.net/

Edited June 23, 2023 by Wheatwacked
typos

[KathleenMK]

  On 6/23/2023 at 1:39 AM, Wheatwacked said:

 

• 2 ounces cherry flavored Magnesium Citrate (580 mg magnesium) in twenty ounces of water.  Instead of lemonade midday.
• Vitamins A, E and Folic Acid supplements have been linked in several clinical studies to increased lung and prostate cancers.  I think it b.est to get them in food.  They are used to fortify grain flour and multivitamins because the milling process takes them out.

     

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Thank you Wheatwacked for a lot of good info, especially bit about Vitamins A E and folic acid supplements increasing cancer risk. these are all ones i had thought to increase for eye health and other reasons. I know all are better from food sources, and we do eat alot of the veggies high in them like leafy greens, etc. I have also thought we need more Magnesium for muscle cramps and better vascular health. I think hubby had used some nutrition app on his phone so those you mentioned may be something he would do. i have trouble just keeping up with spacing out my eye and blood pressure meds.

We had been taking D and zinc since the beginning of the pandemic. Other a very mild case of covid, we have had no season colds or allergies. For me the Supplements suggested by my eye doctor and internist have had positive side effects like better skin. So I hope we can find things that will help rebuild my husband's gut and over all health while not adding to other issues.

 

 

[patty-maguire]

Best to get vitamin levels tested rather than just supplement with no info to go on.  Also, getting tested will give you a baseline so you can check later to see if things are improving.  Common deficiencies that go along with celiac are: iron, calcium, magnesium, folate, Vitamin D and B vitamins.  Getting good food sources of these things is the best place to start, then fill in with supplements.  Many of the symptoms of celiac are due to vitamin deficiencies.  

[trents]

  On 6/28/2023 at 3:37 PM, patty_maguire said:

Best to get vitamin levels tested rather than just supplement with no info to go on.  Also, getting tested will give you a baseline so you can check later to see if things are improving.  Common deficiencies that go along with celiac are: iron, calcium, magnesium, folate, Vitamin D and B vitamins.  Getting good food sources of these things is the best place to start, then fill in with supplements.  Many of the symptoms of celiac are due to vitamin deficiencies.  

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The trouble is, it's very difficult to get a medical doctor to agree to run full panel vitamin and mineral deficiency tests. I advocate the shotgun approach just to cover all the bases. Water soluble vitamins (like the B's) are nontoxic in high doses anyway. And it is unlikely that a celiac who has gone untreated for years will have just one or two deficiencies.