Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly diagnosed


trying2heal

Recommended Posts

trying2heal Newbie

I've been very careful since diagnosis this past Saturday. Today my friend made me supposedly gluten free spaghetti. I enjoyed it but since then I have horrible body rash that feels like stinging all over and intense itching! I was also cleaning with comet earlier but this is a severe reaction.  Do you think I've been glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

trying2heal Newbie
1 minute ago, trents said:

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

I would occasionally get raised lines always on neck sometimes back and shoulders but wasn't sure from what. They would itch horribly just like now. Been eating gluten all my life only recently like past month have I developed bloating, pain, gas, etc. Went to Dr. And ran blood test and diagnosed. I was going to post a pic of it, but not sure how lol

trents Grand Master

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Scott Adams Grand Master

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

  • 2 weeks later...
trying2heal Newbie
On 8/29/2023 at 5:24 PM, trents said:

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Thank you for taking the time to reply. Turns out I was diagnosed with cholinergic uticaria. A little gift courtesy of celiacs disease. It causes extremely itchy stinging hives when you're body temperature raises and you sweat. The body sends out a histamine response and it's pretty miserable. I take Zyrtec and make sure to try to cool down quickly. It's made exercise quite difficult lately as you can imagine, but it seems to be calming down some.

On 8/30/2023 at 10:29 AM, Scott Adams said:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

Thank you very much for these informative articles!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,503
    • Most Online (within 30 mins)
      7,748

    Jenn Cass
    Newest Member
    Jenn Cass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
    • Whyz
      I’m only half way to being diagnosed I’ve started eating gluten free food because normal food makes me feel ill. is this ok
×
×
  • Create New...