Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Celiac.....right?

frankenstein
 Share

Recommended Posts

trents Grand Master
trents
Posted
1 hour ago, Stumplet said:

Apologies for jumping on here, but I found your comment very interesting.

For some background I have coeliac symptoms, but tested negative (or more accurately below threshold for a postive test - very small amounts of antibodies were there) on tTG, and DCP. I am not igA deficient. I have the HLA-DQ8 gene.

I have been looking into getting the anti-endomysial blood test to see if that was positive however your comment made me pause.

I have persistantly low ferritin (under 10), dipping into anemia sometimes. I have persistently low vitamin D. I periodically treat both of these with supplements to get them into normal range. My ferritin is currently low again. It was also noted on one of my blood tests my IgM was below the normal range and my GP didn't know why.

Is it possible that I might just not be making enough coeliac antibodies due to deficincies? Or would I need to have very severe deficeiences for this to be possible? Maybe this isn't likely however as i've had other antibody tests which were positive (hashimotos, anti-mitochondrial) or are the production of some antibody types more severly impacted by deficiencies than others?

Thanks!

Have you had total IGA level tested? If total IGA is low, it will often cause false negatives in other celiac antibody tests such as the tTG-IGA.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 78
  • Created
  • Last Reply

Top Posters In This Topic

  • frankenstein

    29

  • trents

    24

  • knitty kitty

    10

  • Scott Adams

    9

Popular Days

Top Posters In This Topic

  • frankenstein

    frankenstein 29 posts

  • trents

    trents 24 posts

  • knitty kitty

    knitty kitty 10 posts

  • Scott Adams

    Scott Adams 9 posts

Popular Days

Popular Posts

trents
trents

Okay, I'll mention one more thing. No, IMO you have not had a complete battery of tests. IIR, you have not even had a total IGA test done. If total IGA is low, it can drive down scores in individual I

trents
trents

Total IGA is not a standard test ordered when doctors are checking for celiac disease. It should be but many physicians are operating under the dated assumption that IGA deficiency only happens with p

frankenstein
frankenstein

"Gastrointestinal Beriberi does occur.  It's not rare.  Doctors have been under diagnosing it. " My symptoms do not match it and any condition that has the only place where it shows up on the int

Stumplet Apprentice
Stumplet
Posted
11 minutes ago, trents said:

Have you had total IGA level tested? If total IGA is low, it will often cause false negatives in other celiac antibody tests such as the tTG-IGA.

Thanks for your reply :)

Yes my IgA is normal, only my IgM was slightly low (but nowhere near the level of a IgM deficiency which are apparently incredibly rare)

trents Grand Master
trents
Posted
3 minutes ago, Stumplet said:

Thanks for your reply :)

Yes my IgA is normal, only my IgM was slightly low (but nowhere near the level of a IgM deficiency which are apparently incredibly rare)

IgM?

Stumplet Apprentice
Stumplet
Posted
15 minutes ago, trents said:

IgM?

Immunoglobulin m, I don't think this being a bit low is directly relevant to my coeliac antibody tests. However, I didn't know what another user posted about iron and vit d deficieny impacting antibody production. So i just mentioned it on the off chance it was relevant :)

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,635
    • Most Online (within 30 mins)
      7,748
    yellowstone
    Newest Member
    yellowstone
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      What foods can trigger a response in people with gluten sensitivity?

      By trents · Posted

      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity?

      By yellowstone · Posted

      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.