Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test results?


Andiecat46

Recommended Posts

Andiecat46 Newbie

Hi all. I recently saw a GI doc for some issues with bloating, abdominal pressure, soft stool, bathroom issues, discomfort after eating. So far everything is normal on my blood work except for extremely high b12 level, and a weak positive in the Transglutinamese test. I have a colonoscopy scheduled for January 4. The Transgluten test just came back yesterday. So I didn’t have a follow up with the doc about that. The b12 result I saw last week and messaged him via the app and he said only if it’s low is it a concern but my level is super high, and of course Google tells me that’s not good. Any idea if these results could indicate an issue? I’ll share here. I’m anxious.

Well I can’t seem to share them. I don’t see a button to attach a pic 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plumbago Experienced

I once had a very high b12 result - this happened very shortly after I had given myself a B12 shot. It happened again, but I had been regularly supplementing orally with B12. It's very very likely not a cause for concern, unless you have not been supplementing regularly. What was the number, and what is the normal range?

Good that you are going for an endoscopy because even a weak positive on one of the celiac tests means positive for celiac disease. Oops - on re-reading, I see you are scheduled for a colonoscopy. You may need this. But to diagnose Celiac, you will need an endoscopy. I would talk to your doctor about getting that scheduled at the same time.

Andiecat46 Newbie

Oh okay. I didn’t realize that endoscopy and colonoscopy weren’t the same! Shows you how new I am this this! I’m going to message him, tO see if we can add that in on the same day.
 

My b12 level was 1544. I’m not supplementing. I did drink one Celsius drink that morning- about 6 am and my blood was drawn at 4 pm. So not sure if that makes a difference. 

trents Grand Master
(edited)
7 hours ago, Andiecat46 said:

Hi all. I recently saw a GI doc for some issues with bloating, abdominal pressure, soft stool, bathroom issues, discomfort after eating. So far everything is normal on my blood work except for extremely high b12 level, and a weak positive in the Transglutinamese test. I have a colonoscopy scheduled for January 4. The Transgluten test just came back yesterday. So I didn’t have a follow up with the doc about that. The b12 result I saw last week and messaged him via the app and he said only if it’s low is it a concern but my level is super high, and of course Google tells me that’s not good. 
 

any idea if these results could indicate an issue? I’ll share here. I’m anxious 

 

Well I can’t seem to share them. I don’t see a button to attach a pic 

To thwart spam, the window for editing a post as when adding a picture later on is very short. If you start a new post and attach the pic quickly you should be able to do it. You can use the paper clip tool at the bottom of the new post window or the three dots in the upper right corner. If that doesn't work, just type the test results in. Make sure you include the reference range for what is negative vs. positive because each lab concocts there own test and the negative vs. positive scale will vary from lab to lab.

Celiac disease attacks the villous lining of the small bowel and a colonoscopy doesn't reach up that high. They come down through the stomach with the scope when doing an endoscopy and take samples of the small bowel lining that they can check for damage under a microscope. If they do the biopsy correctly they will take several samples from the duodenum and the duodenum bulb because damage can be patchy.

Edited by trents

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,239
    • Most Online (within 30 mins)
      7,748

    Kbrown
    Newest Member
    Kbrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • R. M. LOMBARDO
      Reese's Plant Based PeanutButter Cups are made with non-Gluten Free Oats and only states on the package Dairy Free.  Is it safe for Celiacs or those with Gluten Intolerance issues to consume?  I think Mars is taking a small step in the right direction concerning food allergies and wish they were Gluten Free.
    • R. M. LOMBARDO
      These items are on sale for $3.99 at Target: Choose from Choclate Chip, Grahams or Vanilla Wafers.   I purchased all 3 plus an extra Choclate Chip.  All are produced in a dedicate Gluten & Peanut Free Facility and other choices are available on amazon.com.
    • Liquid lunch
      I had these for years, covered in scars from them. Not had any since I started taking reishi and cordyceps tincture, they’re immune modulators, I think that’s how they work. Most of my other symptoms have also disappeared, I take a treble dose if I get glutened and it’s almost an instant fix, 3 days of mild symptoms instead of 3 weeks of horrible. Might be worth a try, don’t be put off by the caterpillars, I think they’ve found a different way of growing them now. 
    • knitty kitty
      Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas.  Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates.   Candida is a yeast infection, so the antibacterial wash is not going to help.  I had to change my diet to a Paleo diet before it went away.  If I consume high levels of sugar or other simple carbohydrates (rice, corn, dairy, etc.), boils would occur at pressure points like the groin and back of the legs.  Your doctor might be able to prescribe an antifungal medication, but some of those antifungal medications destroy thiamine.  Thiamine is needed to keep fungal and bacterial infections in check.  I took Thiamine in the form Benfotiamine, but TTFD (tetrahydrofurfuryl disulfide) will work, too.   Thiamine, and the other B vitamins, especially Niacin and Biotin, along with Vitamin A, Vitamin C, and Vitamin D will help keep skin healthy.  Be sure to address these nutritional deficiencies that occur with Celiac! Ask your doctor to rule out autoimmune hidradenitis suppurativa (HS) and Human Papilloma virus, too.   Hang in there!  You'll get over this rocky patch of the journey!  Best wishes! P. S.  Get checked for Type Two Diabetes as well.  Candida, type two diabetes and a high carbohydrate diet often go together.  A Paleo diet really helps me with my Type Two Diabetes and Candida overgrowth.
    • Scott Adams
      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
×
×
  • Create New...