endoscopy and blood test results…

[Heamic08]

Hello!

So one of my blood test results came back a weak positive for Celiac, while my biopsy from my endoscopy came back negative for it.

 

I posted about my blood test results earlier here. But now I’m so confused! I am switching GI doctors at the moment cause I could never get in contact with mine. 

[Scott Adams]

This scenario, unfortunately, is fairly common. 

It only takes one positive blood test result to mean that you may have celiac disease, and although a negative biopsy may technically rule this out for now, it could still mean that you've simply caught this early, before it has caused you to have damaged villi. 

It is also possible that your GI doctor did not take enough biopsy specimens, or perhaps took them in areas where you show no damage. Did they give you a Marsh score for those biopsies? 

If you have symptoms that caused you to go the testing route, then you may want to try a gluten-free diet for a couple of months to see if your symptoms go away, and if so, you may have early stage celiac disease or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

 

 

[trents]

I agree with Scott. The proof is in the pudding. Commit yourself to a truly gluten free diet for a few months and see if your symptoms improve. Whether or you have celiac disease or NCGS, the antidote is the same, total abstinence from gluten for life. If the symptoms don't improve on a strict gluten free diet, bark up another tree.

Edited December 19, 2023 by trents

[Adthomas]

Thanks all. 
 

I had biopsies done today so I'll be waiting for those results in the next week or two. 
 

in August I did decide to cut out gluten for a few weeks before I added it back into my diet to prep for this procedure and I did truly feel much better and of course once I reintroduced it into my diet I felt terrible again. I'll be interested to see what my GI says about my results. I never thought that maybe this could just be the beginning stages of celiac.  Thank you all 

[Scott Adams]

Let us know how it turns out.

[Adthomas]

Thank you I will