What is a good brand

[Maria101]

Can someone recommend vitamins, supplements such as multi or others? 

[trents]

Welcome to the forum, @Maria101!

We generally recommend sublingual B12, high potency B-complex, 2-10k IU of D3, magnesium glycinate (about 400mg daily) and zinc. You can take a multivitamin if you wish but they usually aren't concentrated enough to help much at the front end of long term vitamin and mineral depletion correction such as we typically see when people have gone years with undiagnosed celiac disease. Make sure all vitamins and supplements are gluten free. Costco's Kirkland Signature, Nature Made and Nature's Bounty are good products at a good price and many of them are gluten free and will state son on the packaging and bottle.

Can you give us a little more history about your celiac journey?

[Maria101]

Yes, I got a endoscopy years ago, but didn’t find anything. As a year went on my mother and I did a detox diet that eliminated mostly everything and I felt great and was taking supplements as well. When holidays came I was eating gluten and dairy and got sick over the years, but didn’t know that or just didn’t remember.
I eliminated foods and started using clean products without any preservatives or any dies or performs, and got better, but wasn’t totally better as I still needed to do more research. 
I got tested last year for celiac, and I am on the border of high normal and going into having celiac. I am not sure if I have it or I am allergic to it, but eliminating both dairy and gluten is the way to go. 
I still have lots of questions and concerns, so I thought I might join a group and get some support as well. I’ll give others the support and any questions I might know answered.

[trents]

If you don't have celiac disease you could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease, is 10x more common but for which there is not diagnostic test. Celiac disease must first be ruled out. With both conditions, it is necessary to eliminate gluten from your diet. Celiac disease is not an allergy to gluten. It is an autoimmune response triggered by gluten that causes inflammation in the lining of the small bowel that, over time, erodes the villous lining of  the small bowel and reduces it's ability to absorb nutrients from the food we eat. This is why celiac disease causes vitamin and mineral deficiencies.

If you had already  reduced your consumption of gluten by the time you had celiac blood antibody testing done that would have lowered the test scores. Antibody testing is undermined by starting the gluten free diet ahead of time.

[Wheatwacked]

I get mine at pipingrock.com.

5. Additional likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  The ones that helped me the most was increasing vitamin D blood level to 80 ng/ml and recently Iodine to 650 mcg a day,  Thiamine, Choline, and Iodine.  They are all important.
10,000 IU vitamin D to control autoimmune, improve mood, especially the winter doldrums (Seasonal Affective Disorder), bone and dental health.   Vitamin D Is Not as Toxic as Was Once Thought: A Historical and an Up-to-Date Perspective
500 mg Thiamine - neurologic symptoms, carbohydrate metabolism, subclinical beri-beri.
Choline – Adequate intake 500 to 3000 mg - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects.   Could we be overlooking a potential choline crisis in the United Kingdom?
Iodine –  650 mcg of Liquid Iodine once or twice a day.  United States RDA 150 to 1100 microgram (mcg) Japan RDA 150 to 3000 mcg. speeds up healing, muscle tone, brain fog, hair and skin, thyroid. 10 drops of Strong Iodine has 500 micrograms of elemental Iodine. Nori and Kelp. For some people with Dermetitis Herpetiformus, iodine can exasperate the rash.
Iodine for Hormonal Health "Your ovaries also need iodine and without enough their structure changes. Iodine-deficient women can produce ovarian cysts and are at risk of developing PCOS."
Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply. 
500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol.  Niacin Fact Sheet for Health Professionals
500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle
1000 mcg B12 - creates hemoglobin for oxygen transport
500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously, but not enough when sickness increases inflammation. reduces Reactive Oxygen Species (ROS are are free radicals.).
I've been using Zinc Glyconate (Cold-Eeze) since 2004 anytime I feel an itchy throat or other sign of air borne virus coming on.  I haven't had cold or flue, including Covid 19, since. 
Naturally fermented dill pickles reestablished lactobacillus in my gut and reversed my recently acquired lactose intolerance.  100% grass fed dairy is less inflammatory. Milk is a good source of iodine.
Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation while increasing vitamin and mineral intake..  The target omega 6:3 ratio is less than 3:1.  The typical western diet is from 14:1 to 20:1 because of our food choices.

[Maria101]

4 hours ago, trents said:

If you don't have celiac disease you could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease, is 10x more common but for which there is not diagnostic test. Celiac disease must first be ruled out. With both conditions, it is necessary to eliminate gluten from your diet. Celiac disease is not an allergy to gluten. It is an autoimmune response triggered by gluten that causes inflammation in the lining of the small bowel that, over time, erodes the villous lining of  the small bowel and reduces it's ability to absorb nutrients from the food we eat. This is why celiac disease causes vitamin and mineral deficiencies.

If you had already  reduced your consumption of gluten by the time you had celiac blood antibody testing done that would have lowered the test scores. Antibody testing is undermined by starting the gluten free diet ahead of time.

What would you advise me to do? Would you say to eat gluten and retake the test? Also since I already know that either way whether I have celiac or gluten sensitivity bu eating gluten I get sick. Is there a diet plan of some sort and vitamins that you would suggest? I don’t eat much of meat and seafood. I stopped drinking coffee and tea. I’m also lactose intolerant as well. I’m trying to stay away from foods and veraces that have preservatives and artificial flavor.
Right now I take a multivitamin. It’s called MyKind Orgánics Garden of Life. I also try to take probiotic. The brand is called New Chapter All Flora. I’ve heard that is good for the gut to detox any garbage in the body. I have on hand if I get really sick and eat gluten, I have activated charcoal. Would you recommend taking turmeric supplement? 
I’ve heard that is inflammatory and is good. 
 

[trents]

I see no reason for you to go back on gluten just to take the test to differentiate whether or not you have celiac disease or sensitivity. At the end of the day they both call for the same treatment, i.e., avoid gluten. I've already addressed the vitamin and mineral question. Vitamin and mineral supplements are not as important if you have sensitivity instead of celiac disease. On the other hand, it won't hurt you either to take the ones I outlined above.

[Maria101]

On 2/6/2024 at 8:11 PM, trents said:

I see no reason for you to go back on gluten just to take the test to differentiate whether or not you have celiac disease or sensitivity. At the end of the day they both call for the same treatment, i.e., avoid gluten. I've already addressed the vitamin and mineral question. Vitamin and mineral supplements are not as important if you have sensitivity instead of celiac disease. On the other hand, it won't hurt you either to take the ones I outlined above.

could you recommend a at home test or is it best to see a doctor. i just want to make sure i get adequate results back and not a false possitve. for this test i would eat gluten and then take test again? What specialist is good to treat celiac or gluten sensitivity? i did go to a gastro long time ago. i have an appointment with a allergist to see what other foods i could be allergiv to besides gluten and dairy whether or not it could be a type of fruit or vegatable or even seafood or an ingredient that is put in common foods.

im also also noticing that laundry detergent, soaps, cleaning products as well as makeup, cosmetics need to have no gluten in them. i feel sad because it is hard for me to shop at the grocery store. 

[trents]

33 minutes ago, Maria101 said:

could you recommend a at home test or is it best to see a doctor. i just want to make sure i get adequate results back and not a false possitve. for this test i would eat gluten and then take test again? What specialist is good to treat celiac or gluten sensitivity? i did go to a gastro long time ago. i have an appointment with a allergist to see what other foods i could be allergiv to besides gluten and dairy whether or not it could be a type of fruit or vegatable or even seafood or an ingredient that is put in common foods.

im also also noticing that laundry detergent, soaps, cleaning products as well as makeup, cosmetics need to have no gluten in them. i feel sad because it is hard for me to shop at the grocery store. 

If you are going to do a gluten challenge it is best to see a doctor so that if it is positive it will be a part of your medical record. You would need to be eating 10gm of gluten (about 3 slices of wheat bread) daily for several weeks to build up enough antibodies (if you have celiac disease) to produce valid test results.

Celiac disease is not an allergic reaction but an autoimmune disorder triggered by gluten. It involves an entirely different immune system pathway than food allergies do. But it would be a good idea to get tested for food allergies. Celiacs often have a number of other food sensitivities. There are no specialists who "treat" gluten sensitivity. The only treatment is avoiding gluten and that burden is on the patient, not on any doctor. But if you are asking what kind of doctor is best to diagnose celaic disease, the answer is a gastroenterologist. However, any general practitioner can order the celiac antibody tests, which is the first stage of diagnosis. The second stage is an endoscopy with biopsy of the small bowel lining.

[Maria101]

1 hour ago, trents said:

If you are going to do a gluten challenge it is best to see a doctor so that if it is positive it will be a part of your medical record. You would need to be eating 10gm of gluten (about 3 slices of wheat bread) daily for several weeks to build up enough antibodies (if you have celiac disease) to produce valid test results.

Celiac disease is not an allergic reaction but an autoimmune disorder triggered by gluten. It involves an entirely different immune system pathway than food allergies do. But it would be a good idea to get tested for food allergies. Celiacs often have a number of other food sensitivities. There are no specialists who "treat" gluten sensitivity. The only treatment is avoiding gluten and that burden is on the patient, not on any doctor. But if you are asking what kind of doctor is best to diagnose celaic disease, the answer is a gastroenterologist. However, any general practitioner can order the celiac antibody tests, which is the first stage of diagnosis. The second stage is an endoscopy with biopsy of the small bowel lining.

You gave me good suggestion as to where to go and what to do. I’m just concerned when I do eat the gluten for several weeks, wondering what to do because I work and I know for sure that I’ll get sick with symptoms and that will affect my work progress. Is there a way to treat symptoms so I won’t feel as bad and can still go to work? 
also do you have a recommendation for a gastro doctor and perhaps a specialist to do an endoscopy? I guess a gastro does both.  I live in New Jersey. 

[trents]

Gastro docs do endoscopies. But the weeks of 10gm of daily gluten consumption still applies for that procedure as it does for the blood antibody testing. Unfortunately, many celiacs find that once they have been off of gluten for a significant period of time and then try to go back on it for the gluten challenge for testing that they have stronger reactions to gluten than before quitting in the first place. They lose whatever tolerance they may have had while regularly consuming it. I know of nothing that really helps much in alleviating the symptoms when going back on gluten for the challenge. I have been gluten free for over 20 years and if I get a good slug of gluten now it makes me violently ill with hours of puking, server cramps and diarrhea. Last time it happened was a couple of years ago when my wife made gluten free biscuits for me and wheat biscuits for herself. I got them mixed up. If I had to undergo a gluten challenge now I'm sure it would do me in altogether.

I'm on the west coast so I have no recommendations for a GI doc for you.

Edited February 8, 2024 by trents

[Maria101]

Can anyone suggest a meal plan for non celiac or celiac disease diet plan? I am constantly on the go if the helps. 
are there any grocery store you’d recommend? 

[Maria101]

I got tested for wheat and latex and the ige levels are high. What does this indicate? I googled it and google says indicates allergy but the symptoms could be mild, moderate, or severe based on the person. What do doctors recommend for treatment or if there is none and to eat a healthy meal. I already know that dairy upsets my stomachs such as caffeine and sugar, and dyes and the garbage that they put in foods and beverages now a days. When I have a reaction to the foods I eat, not sure of what can be done at home. I try not to take medication unless absolutely necessary. Need advice. 

My bloodwork from primary doctor reads that I am low in Vitamin D. Any brand recommendations?

[trents]

IGE levels have to do with allergic reactions. Celiac disease connects with an entirely different immune system pathway and is an autoimmune condition, not an allergy. A person can have an allergy to wheat but not have celiac disease and they can also have celiac disease and not be allergic to wheat.