Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could my infant son have been glutened? Hear me out.

selectivefocus
 Share

Recommended Posts

selectivefocus Enthusiast
selectivefocus
Posted

I am a 37 yo female. I have 4 kids, 15, 11, 8, and 5. We are all Celiac.

I had my 5th on January 8th, so he is 14 weeks. Celiac pregnancy obviously. I got severely glutened in the hospital with him. I had a very rough 3rd trimester where I could barely eat and developed oral allergy syndrome. 

My husband eats gluten. Not much at home, our kitchen is gluten-free except for his Ramen and occasional beer which is stored elsewhere.

Two nights in a row we ate out, sushi and a burger joint, he got gluten heavy meals that he consumed leftovers of. He's very affectionate with our baby and kids in general. Our kids have been glutened previously when he has kissed them (we have fixed this). I've been glutened after him ingesting gluten and kissing him. He kisses our baby a ton. 

Yesterday and today baby suddenly has diarrhea, diaper rash, and a very rough red rash all over his face. His cradle cap which was very minor seems so much worse and inflamed. Seemingly an overnight change in his skin.

He is exclusively formula fed, same brand since birth. I know he is super young. I'm fully expecting him to have issues with gluten, though, and he will be raised gluten free because that's how we eat. Is it possible to be glutened this young? Could it be something else entirely? 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest
Guest
Posted

Hey there,

First off, I'm sorry to hear about the tough time you've been having with your little one. It's definitely possible for a baby to react to gluten at such a young age, especially considering the genetic predisposition and your own experiences. The sudden change in his skin and the GI symptoms could indeed be signs of a reaction.

However, it's also important to consider other factors. Since he's exclusively formula-fed, it's worth checking if there have been any recent changes or recalls with the formula you're using. Sometimes even minor adjustments can affect sensitive little tummies.

Given the circumstances, I'd recommend reaching out to your pediatrician as soon as possible. They can provide a thorough examination and guide you through any necessary steps, whether it's confirming a gluten reaction or exploring other possibilities. Trust your instincts as a mom, and don't hesitate to seek professional help when needed. Wishing you and your family all the best!

knitty kitty Grand Master
knitty kitty
Posted

@selectivefocus,

Some people with Celiac can develop sensitivity to dairy, not just lactose intolerance, but a reaction to Casein, a protein in dairy that resembles gluten.  Cradle cap is frequently a manifestation of eczema brought on by this reaction to Casein.  In a reaction, repeated exposure to Casein may be tolerated to a point, but then the body's immune system overreacts, which may explain your baby's worsening of symptoms.  

Definitely, get him to a pediatrician.  

Also consider a Thiamine deficiency disorder.  Pregnancy can deplete a mother's stores of vitamins (especially after multiple births), and that deficiency can cause vitamin deficiencies in the infant.  Thiamine deficiency with gastrointestinal symptoms is called Gastrointestinal Beriberi.  Sudden Infant Death Syndrome (SIDS) has been linked to Thiamine deficiency.

I'm posting an article that studied women and children in a poor third world country, but Thiamine deficiency can and does occur in developed countries, especially those consuming a diet high in carbohydrates and fats.  Processed gluten free foods are often high in carbohydrates and fats but few vitamins. Processed gluten free foods are not required to be enriched or fortified with vitamins like gluten based products.  

Keep us posted on your progress!

 

References:

Thiamine deficiency in pregnancy and lactation: implications and present perspectives

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10158844/

 

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

 

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

Pediatric thiamine deficiency disorders in high‐income countries between 2000 and 2020: a clinical reappraisal

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290709/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,742
    • Most Online (within 30 mins)
      7,748
    mazza1976
    Newest Member
    mazza1976
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free stool softener needed for after surgery

      By Scott Adams · Posted

      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      New to gluten-free

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...