Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune or celiac?


Jessiemyers

Recommended Posts

Jessiemyers Newbie

Celiac runs in my family--my sister, a cousin. But I never had any issues with wheat until I went through early menopause at 48. Then I came down suddenly with this autoimmune disease called eosinophilic fascitis -- basically the fascia all over my body was inflamed. they did an mri -- scarring all along my forearms... they put me on high dose prednisone but it didnt really help. i did an elimination diet and discovered it was wheat.... now every time i eat wheat its the same thing: 48-72 hours later, the skin around my ankles wrists and upper back gets super tight.

 

has anyone heard of anything like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @Jessiemyers!

No, I have not heard of this kind of reaction to gluten in our celiac/NCGS forum community. There is an epidermal expression of gluten intolerance/celiac disease known as dermatitis hermpetiformis, which is a rash with pustules in the bumps, but what you describe doesn't sound like that.

Having said that, we are steadily adding to the list of symptoms and collateral health conditions caused by celiac disease which now numbers over 200.

Be aware that if you are intending to get tested for celiac disease you must be eating generous amounts of gluten daily for weeks leading up to the testing. We're talking about an amount of gluten equivalent to about 4-6 pieces of bread daily. Realize also that gluten is found not only in wheat but in barley and rye.

Scott Adams Grand Master

I've not heard of a connection before between celiac disease and eosinophilic fascitis, however given the high number of disorders that are related to celiac disease it's certainly possible that in some with eosinophilic fascitis, there might be a connection. While both conditions involve an abnormal immune response, there is no established connection between eosinophilic fasciitis and celiac disease. However, it's not uncommon for individuals with one autoimmune condition to be at a higher risk of developing another, due to the general dysregulation of the immune system. If someone has both conditions, it's likely coincidental rather than directly related.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,482
    • Most Online (within 30 mins)
      7,748

    Singhman
    Newest Member
    Singhman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...