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Newly diagnosed with Celiac disease


lnwalser96

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lnwalser96 Newbie

Hello! My names Lauren. I’m newly diagnosed with celiac disease and I am struggling. I have to eat on the go a lot due to my job. But I do my research and request gluten free. But it seems no matter what I get or eat I feel sick afterwards. Im not even entirely sure what symptoms I should look out for. What I’ve experienced so far is bloating, fatigue, gas, burping and nausea. Worse case scenario is extreme stomach pain and diarrhea….please help! I know meal Prep at home is best and I am discovering I may have to just do that! So recipes, stores, snack ideas are all appreciated!! 


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trents Grand Master

Welcome to the forum, Inwalser96! 

Studies show that eating out is the #1 way to sabotage the gluten free diet. You may order stuff that is gluten free but you have little or no control over how it is cooked and handled back in the kitchen to prevent cross contamination. Our administrator, Scott Adams, tells the story of ordering gluten free pasta at a popular Italian restaurant chain franchise and becoming quite ill afterward. He followed up with kitchen staff and found out that his gluten free pasta was being cooked in the same water along with wheat-based pasta. To avoid CC (cross contamination) things need to be cooked on dedicated or thoroughly cleaned grill surfaces/pots/pans, and be served/sliced with dedicated utensils, etc. How many eating establishments do you think are going to do that for you? I am also attaching this article which is a primer for getting off to a good start in eating gluten free. There is quite a learning curve as gluten is found in the food supply in places you would never expect: 

 

 

 

Scott Adams Grand Master

Welcome to the forum. 

If you can't avoid eating out due to work and travel, you may want to consider taking an AN-PEP based enzyme like GliadinX (a sponsor here), as there has been a lot of research that shows that it can break down small amounts of gluten in the stomach. I still eat out because I enjoy doing so, and I used to have issues ~30% of the time, but since taking these before any meal at a restaurant I haven't had any issues. I still want to support what @trents mentioned, which is the fact that it is still a much safer bet for celiacs to avoid eating out, as totally avoiding gluten is still the overall safest approach.

Wheatwacked Veteran

Red Bull (not sugar free)  for energy during the day.  Food at home.  Salads are hard to contaminate.

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    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
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      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
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